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Lynayah

Member Since 17 Jul 2009
Offline Last Active Mar 21 2012 11:14 AM
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#632877 Brain Fog

Posted by Lynayah on 18 August 2010 - 06:32 PM

Scuzy,

PS: I do not have celiac. I am HIGHLY gluten intolerant -- I am told I am more sensitive to gluten than most, including those who suffer from celiac.

I just wanted to add this info because you refer to wondering if you have celiac in your posts.

So, if you are gluten-intolerant, it doesn't necessarily mean you also have celiac disease.
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#632872 Brain Fog

Posted by Lynayah on 18 August 2010 - 06:11 PM

Wow, so is it a proven symptom to have a horrible memory? I never even thought of that as a symptom. My memory used to be good, but the past few years, when all my other symptoms started it has gotten bad. I can't even remember when my friend visited me, or when a friend slept over 6 months ago, what I just heard in class.. ect... And I'm only 21...


Scuzy,

Brain fog is very common, but with the severity you describe, you might want to ask an expert.

Just wondering: Do you have other neurological symptoms as well? Do you suffer from celiac in addition to gluten-intolerance? Have you gone through testing, etc.?
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#632621 Brain Fog

Posted by Lynayah on 18 August 2010 - 03:15 AM

As I sit here remembering, I've remembered a few more symptoms I had:

When I'd type, I'd make TONS MORE typos than what is normal for me. Sometimes I'd even write one completely different word when I'd mean to write another -- instead of writing "I'm going home," maybe I'd write "I'm going town."

Sometimes I'd talk the same way. It was as though I had a mini stroke (which I hadn't).

I'd forget words far more frequently, and often, it was hard to answer questions. If someone asked me "Where are the postage stamps?" I'd have to get up and show them because it was difficult for me to put the answer into words.

I had a very tough time sitting still or focusing on things for prolonged periods. Some of the way I acted mimed Attention Deficit/Hyperactivity Disorder -- back then. Now it's gone.

Years ago, I gave up knitting because it was hard for me to focus on it. Now I knit like the wind and have fallen so in love with it. (I still drop stitches, but so does everyone!) :)

It was horrible pre-gluten-free. I blamed it on age. I blamed it on stress. I blamed it on everything but gluten.

It just breaks my heart to think of all the wonderful folks out there who suffer the same way. They are walking around beating themselves up for "falling apart" and thinking they are helpless to do anything about it, when all it takes is a change of diet.

Anyway, I hope this helps clarify brain fog a little more.
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#632620 Brain Fog

Posted by Lynayah on 18 August 2010 - 03:03 AM

Sherry:

"Brain fog" ... it's something you know you had when it's no longer there.

It's a feeling of not not being very sharp, feeling kind of fuzzy, and generally tired.
But you know more what is was when it's no longer there.


For me it was a vague feeling for a long time, but in the year before my diagnosis, it got so bad that I'd struggle with even the most simple things.

For example:

I'd drive to somewhere I'd driven countless times, and I'd forget how to get there.

I'd work on my computer and try to preform a task that was once easy (like downloading onto my iPod), and I'd get so confused that I'd have to have my husband help me.

I'd misplace things far more often than I do now.

Because I'd forget things so easily, my sense of urgency heightened. Things like I'd find myself interrupting people as they spoke so I wouldn't forget what I wanted to say.

It's gone now, thank goodness . . . however, it does creep back a little bit (just a little) if I get glutened.

Crazy.
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#630205 Anyone Here Use Knitting To Help Cope With Celiac And Gluten Sensitivities?

Posted by Lynayah on 08 August 2010 - 03:31 PM

Do you knit to help cope with a gluten-free lifestyle?
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#609562 Weight Loss And Gliadin Level

Posted by Lynayah on 08 May 2010 - 07:47 AM

Hi, Everyone:

I've been struggling with losing weight. I have also been struggling to get my gliadin level back to normal.

I'm wondering: Has anyone here found that once their gliadin level returned to normal, their body weight returned to normal as well?

Are there any articles about it?

Thank you for any information on this!
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#609550 Is There An Affordable Protein Powder, That Is Free From Gluten, Msg, Asparta...

Posted by Lynayah on 08 May 2010 - 06:33 AM

Has anyone here tried Garden of Life Raw Protein? It is labeled gluten-free, soy-free. It doesn't appear to be certified, but I'm wondering if it might be an option.

Ingredients:

amaranth sprout, organic quinoa sprout, organic millet sprout, organic buckwheat sprout, organic garbanzo bean sprout, organic kidney bean sprout, organic lentil sprout, organic adzuki bean sprout, organic flax seed sprout, organic sunflower seed sprout, organic pumpkin seed sprout, organic chia seed sprout, organic sesame seed sprout

RAW Probiotic and Enzyme Blend - High protein chlorella, protease, bacillus subtilis

Other Ingredients: Saccharomyces cerevisiae and lactobacillus bulgaricus.

Free Of: Gluten, dairy, soy allergens, lactose, fillers, isolates, synthetic nutrients, artificial sweeteners and preservatives

If anyone who is super-sensitive has tried this with any success, please let me know.
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#550038 Anybody Out There A Morbidly Obese Celiac?

Posted by Lynayah on 25 July 2009 - 09:31 PM

I was morbidly obese for many years.

As a child, I remember thinking, "Why can other kids eat a sandwiche, chips, milk for lunch . . . maybe even a Twinkie . . . and not gain weight?" It never made sense to me.

AND, I was as active as them, but I was always the nerd-fat-little-girl, even though I ran and played with the best of 'em. The only time anyone wanted me on their team was when we were playing red-rover, because I was always the chubby one who could break through the line.

Then, as an adult, I gave up and ate too much. I figured, what the heck . . . if nothing I do makes any difference, I might as well gorge and enjoy it. Sad, but true.

Later, I lost over 100 pounds and managed to get back to the top end of my BMI, but it was hard to do it sometimes. Looking back, I think gluten made it difficult. I struggled horribly when I would eat any refined foods. Once I went whole-foods only, I did okay. Pasta was a no-no, even if whole wheat. I did eat whole grain bread, but I did better on the weeks when I didn't have it.

Other whole grains were fine, however. Those that did not contain gluten. I didn't know it at the time, though, and just kind of hunt-and-pecked my way through things.

I am currently having to eat gluten every day for many weeks so I can be tested for Celiac. All I can say is that when I am gluten-free or near gluten-free, I can lose weight. When I eat gluten, I struggle so much it brings me to tears.

Case in point: I have gained 15 POUNDS in the last few weeks since having to eat gluten every day, and it is REALLY, REALLY HARD to keep going . . . but I know I must. I can get through this. Yes I can.

I have read that some people hold on to calories in an effort to survive. That is, your body and brain understand that your upper intestine isn't absorbing nutrients . . . so when the food reaches the lower intestine, it does everything it can to hold on to every gram of fat, every calorie, in an effort to keep you as healthy as possible.

I don't know if that is true, but it sure feels as though it may be true for me. Time will tell as I get my test results. In the meantime, please know that you have a friend here who cares most deeply and understands.

I am sending you hugs and best wishes!

Love,
Lyn
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