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Member Since 22 Jul 2009
Offline Last Active Aug 10 2009 05:42 AM

Posts I've Made

In Topic: Symptoms Occur After Overeating? But With gluten-free Foods.

29 July 2009 - 09:59 AM

When I overeat, I get a reaction as well. It does not last as long as a gluten reaction, and is not exactly the same, but still painful. My doctor told me a long time ago that, since there is so much damage done to my stomach, it will take a while before I'm able to eat large amount of food again. He actually advised me to eat several tiny meals a day, as opposed to 3 big ones. It helps me a great deal. :).

In Topic: General Questions

29 July 2009 - 09:44 AM

[EDIT: Just realized you only needed one. Oh well. Maybe it'll still do some good :P. Haha.]

1. How long did it take for you to realize you had the disease? How were you diagnosed?

I self-diagnosed myself long before I did the tests. Everything fit, and not eating gluten made me feel a hundred times better. Eating even a little would make me sick again. I was diagnosed by both my general doctor and a gastro who he brought in on my case. My blood tests came back negative twice, since I had cut gluten out for months before. We tried the old eat gluten, then not eat it, then eat it, then not eat it thing, and it convinced both doctors that I had Celiac. Then they diagnosed me.

2. Has living with the disease affected your family much?

Well, when I lived with my family, it did. It was very hard to get across to them that I couldn't have this, or I couldn't use that. My little sister even used to wave the food in my face and tease. However, none of them went gluten-free. My dad convinced himself he would for a few hours, after having a long discussion with me about what foods contain gluten, and how I felt after each reaction. He gets stomach problems too. But he went home that night and ate Bologna. Haha. Anyway, now I live on my own, and cook for myself, so they're free to do whatever they want. When I go to visit, which is rare, since they live 5 hours away (they usually visit me), I bring my own food and appliances, and cook my own meals in a dedicated area.

3. Is it difficult to cope when you accidentally ingest gluten? Are the symptoms worse after being off gluten for a long while?

It is very difficult for me to cope when I ingest it. I have always had a low self-esteem, but realized after cutting out gluten that it was all related to that, since I was constantly bloated. Whenever I ingest some, and bloat, I feel horrible about myself again. But once the reaction is over, I feel better again. For me, my symptoms became signicifantly worse after being off gluten for a while. Now even the tiniest crumb gives me a huge reaction.

4. Are you able to enjoy many of the same restaurants, just different menu choices?

I make a point not to eat out right now, as I am still healing. I would rather wait until I'm feeling better to test out restaurants, for fear of cross-contamination. But, of course, that is my own personal choice. It may never affect me, I just don't want to take the risk. Once I feel better, however, I will start trying to eat out at certain places, trying their gluten-free options.

5. Is there anything positive that has resulted from having the disease?

I lost all of my bloat weight, and started to feel a heck of a lot better when I cut out gluten :P. I don't eat any junk food anymore, or anything unhealthy really, so I have been eating very healthy, and that is undoubtedly great for my body. :).

Hope I helped! :).

In Topic: Being Around Gluten Foods Still Sets It Off?

29 July 2009 - 08:59 AM

The smell of most gluten-filled foods (if they're obvious) turns my stomach now. I don't get a reaction, but I just feel a bit nauseous. It's just my mind reminding me of how sick I get when I eat it, haha.

In Topic: Menstruation And Gluten And The Pill

29 July 2009 - 07:42 AM

For as long as I can remember, my periods have been irregular. They are extremely heavy, and usually come every 2 and a 1/2 weeks as opposed to once a month. I also get horribly bad pains. In one instance that I remember quite clearly, I was rolling around on my bed crying my eyes out for an entire 12 hours, because the pain was so bad that I was vomitting and blacking out. My doctor ended up prescribing a heavy anti-inflammatory, which makes me a little loopy, but at least the pain becomes more bearable, haha.

I have never really compared these flare-ups to my gluten flare-ups. It may have a lot to do with it, since when I went gluten-free, I barely ever got those pains as bad as that time.

In Topic: What Are Your "glutened" Symptoms?

29 July 2009 - 07:29 AM

Whenever I eat gluten, even in the tiniest amount, I get:

-Extreme abdominal swelling and bloating.
-Ache-y joints.
-Sharp pains in my back.
-Pains in my stomach.
-EXTREME fatigue. (I have to drag myself across the floor, and it takes everything I have to walk a few feet.)
-Trouble breathing at times. (Maybe because I'm so bloated? I'm not sure.)
-Depressed feeling/anxiety. I tend to feel on the verge of tears a lot, 'cause it makes my self-esteem plummet.
-I look very pale and sickly.
-Cravings for more gluten. Haha.
-Nausea and burning in the stomach (Usually the next morning when I wake up.)
-Sometimes I completely lose my appetite. The thought of food makes me want to throw up.

I'm not sure if this is a symptom or not, but yesterday when I had a bad reaction, I had this unbearable pain throughout my entire lower body. From my waist to my ankles was just a horirble ache. I took some tylenol, and it eased up a little. But it was horrible. Today, my elbow joints are aching a lot.

A few months ago, my friends and I went to McDonalds and Tim Hortons while we were on a road trip. An hour after eating, my stomach had gone from flat to several months pregnant. Lol. It was so swollen. Also, my stomach-related symptoms seem to be worse while I'm sitting down. When I stand up, they're still there, but not as painful.

Oh, and, when I get "glutened", the symptoms last for at least 4 or 5 days, if not longer.

A few weeks ago, I realized that I had been accidentally eating gluten, from the chicken breasts that me and my roommate buy. After that, for a period of 4 or 5 days, I had this constant shooting pain through my stomach, and I would break out into sweats, and have to lie down. I couldn't stomach anything but jell-o.

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