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Member Since 29 Jul 2009
Offline Last Active Aug 31 2011 06:35 PM

Topics I've Started

Another Indication?

30 August 2011 - 11:34 AM

This very well could be a topic that should be posted elsewhere, but my "presenting symptom" almost three years ago was an itchy rash, so that's why its here.

I know its not good to self diagnose, but at the same time I was dealing with the rash, I was helping my daughter through her problems. Long story I've told previously, won't repeat. But whenever I suggested to one of her physicians that gluten might be a contributing factor, I was either patronized or looked like I was one of those looney parents. When it finally entered my thought processes that my itchy itchy rash was possibly gluten related, I was not confident of an open perspective from my own physician (I had recently changed drs), did not want to deal with a negative response, nor did I want to incur any more expenses. That summer was a bad time for my family on several fronts. So I just went gluten free. (along with my daughter).

That was a little over two years ago, and my rash healed slowly over time; still have a couple of light purple spots but those are fading.

Every once in a while, I experience some regret that I never pursued testing. Even though I had begun to experience at the time of the rash, other things that you can string together like so many pearls (feeling occasional tingling in my hands, bone scan indicated slight osteopaenia, had been hypothyroid for several years.) And the fact that the tingling went away completely and the rash began to improve after only a few weeks on the diet. I look at these things and say, what more proof do I need?

Lately I have been feeling regretful/doubtful again, and this morning I had to go to the dentist. I hate going to the dentist. Its no fun for me, its like a torture chamber. My gums have been borderline for many years, some areas of recession, and they tend to bleed easily during cleanings. As they scrape away the tartar I get the lecture about not flossing enough...

Today was very different. No bleeding. No massive scraping session. It was the easiest cleaning I have had since....since I can remember. The hygienest said my gums looked much better, had I been flossing more regularly?

I nodded dumbly yes, but the truth is, I haven't! In fact the past few months, probably less! go figure.

I think, somewhere, I have read about a link between peridontal problems and gluten/celiac. Is this wishful thinking, or could it be another pearl/piece of evidence, supporting my self diagnosis?

Reactivation Or Something Else?

25 July 2011 - 06:30 PM

I've been on this forum for almost exactly two years. My daughter has been gluten free for 2 years; my 2nd year aniversary is Aug. 10.

I went gluten free to see if it would help with a perisistent, itchy rash of 10 months duration on my legs. It was so bad I couldn't wear shorts the summer of 09, and if I had to wear a dress, had to wear black pantyhose. Did that for two summer weddings - no fun!

But with time on the gluten free diet, the rash began to disappear. Early on, accidental or not so accidental gluten exposures quickly produced a reactivation in the form of new itchy blisters. As time went on, the time lapse between exposure lengthened, and the extent of reactivation of the rash decreased. So it seemed I was becoming more "tolerant". My last purposeful fall off the wagon was last Christmas time. If you remember me posting about that, I want to thank you all for your advice because it helped!

Last summer, 2010, I still had the rash tho it was much reduced and by the end of summer was pretty much gone. By this spring, even most of the purple spots had faded, so I have been comfortable and happy wearing shorts!!! good thing because has it been HOT!

Something weird happened this past weekend. Being beastly hot, Thursday and Friday I took the dogs to the beach in the evening. Only problem, was the horseflies were out and I got bit several times. Then in the garden over the weekend, there were the mosquitoes. More bites. (Two years not wearing shorts, I didn't think about spraying myself!)

The bites started to bother me on Sunday, enough to go buy a new tube of Gold Bond cream. This morning, (Monday) I was really surprised to see how bright red some of the bite spots looked, as well as a spot that was obviously a scratching place.

These areas weren't like the old rash, other than that bright red color! And today I have had the most horrible stomach. Rumbly and gassy. (Mind you, GI symptoms were not what prompted me to go gluten-free two years ago, they were minimal to none.) I didn't feel like eating anything at all until early evening, and some cheese and nuts sufficed.

I am comfortable now and the red areas are less angry but I am wondering a) was I glutened, and did that exacerbate the normal itchiness of bug bites? B) was my rumbly stomache a coincindence?

Ok over the weekend meat,veggies, fruit, cheese...good whole foods. Only questionable items were Lays potato ships, Klondike bars (original) and a grill sauce used on salmon. only questionable ingredient in that was soybean oil.

Insights, or similar experiences, anyone?

Questioning My Conclusion

30 December 2010 - 01:29 PM

It's been a long time since I've posted... because both my daughter and I have been doing well. Won't retell our stories....the recap is that alhtough neither of us have a formal diagnosis, the gluten-free diet helped my daughter in many ways, and going gluten-free helped me get rid of a rash with many of the hallmarks of DH.

I had been experiencing a red itchy rash, and when I went gluten-free 8/10/09, the rash began to slowly heal.

Sometimes when you don't have a formal diagnosis, you question yourself.

About a month after going gluten-free, I let myself have pasta at a family gathering, and 48 to 72 hours later, the rash worsened again, giving me incentive to stay away from wheat. I was sucessful at learning and didn't have another temptation til June 2010 - when coworkers surprised me with a cake. (Yes I ate some.)

I went home, waiting for things to start to itch. By this time one leg was completely healed (still had purply scars) and other leg was about 2/3 healed. Nothing happened...so .... two days later I ate more cake. about 48 hours after that, I had more itchiness and a few new spots. so once again, I was back on the wagon.

6 months down the road, the rash is completely gone (still have a few fading purple spots) After having successfully navigated thru Thanksgiving and Christmas, I was tempted by my sisters gingerbread cookies (they are totally awesome.) I ate two this past Tuesday...nothing happened. I ate two more last night... nothing happened.

so after dosing myself and nothing happening, this morning I began thinking
"mayben I'm not intolerant after all." Lunch time came... and I went for a wrap. (First one in over a year.)

About an hour and a half later I felt tremendously lethargic. (I haven't felt that way after eating in a long time!) And and hour after that, I had the dry heaves.

questions to all of you: if you were in my shoes, what would you be thinking about your selfdiagnosis of being gluten intolerant?

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