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Member Since 02 Aug 2009
Offline Last Active Aug 16 2009 11:47 AM

Posts I've Made

In Topic: Can Celiac Cause Dysautonomia

07 August 2009 - 01:59 PM

I would not expect this to be a problem since you are getting B12 injections but just for your information and future reference folic acid supplementation will mask B12 deficiency.

My doctor wants me to hold off the B12 injections now and see if my level holds. If I have been taking folic acid for about 6 months would that effect the b12 results, would they appear higher on testing?

In Topic: Slight Burning On Left Side Just Below Rib Cage

05 August 2009 - 03:25 PM

I have recently been diagnosed with celiac disease and I to have a burning pain below my left ribs. It feels like a bruise when I touch it but there is no bruise there, I have had it for several months and it comes and goes!! Whether it is related or not though I am unsure.

In Topic: Doc Says I'm Gluten Intolerant... But I'm Not Sure?!

05 August 2009 - 03:20 PM

I had a negative blood test for celiac but a positive biopsy. It would probably benefit you to have a biopsy but if you cannot get one then a trial of a gluten free diet can only assist in the elimination or confirmation of a diagnosis.

In Topic: Can Celiac Cause Dysautonomia

05 August 2009 - 03:08 PM

When it was at it's worst, I had intense panic attacks with gastro problems that were way beyond what I thought was "IBS". I felt like I was going to have a heart attack, and feelings of impending doom as well. Cold sweating, heart palpitation, swings in BP, extreme fatigue and weakness were symptoms - even at bedtime. Most of these symptoms have been substantially reduced, and in come cases eliminated.

Another neurological symptom was a feeling of being stuck with pins, especially in my feet/toes, but also in other areas such as arms and hands. I believe that this was a neurological symptom of Celiac, as well. I've had this for as long as I can remember, and still do. I'm used to it and it's not a cause of extreme discomfort.

There were other problems, including almost constant anxiety.

I had very low Iron, and ferritin levels were zero. I am fortunate that my wife found out about Celiac about five years ago (the anemia was a tip-off), because until then we thought that the dysautonomia and gastro problems were a result only of Mitral Valve Prolapse Syndrome. I now know that it was both conditions.

Magnesium deficiency is very common in people with Mitral Valve Prolapse, and Celiac as well.

Gluten Intolerance expert Ron Hoggan, author of Dangerous Grains, uses magnesium for rebuilding bones, and recommends it as the most important supplement for Celiac Disease.

I am glad your symptoms are less now when they were in full swing you must have suffered greatly. I am truly amazed at how gluten can effect our bodies it was something I never gave a thought to before I was diagnosed!! I will try to find out what my magnesium levels are and will consider taking theses as a supplement.

Thanks for the link I will read with interest.

In Topic: Can Celiac Cause Dysautonomia

05 August 2009 - 02:56 PM

I too have had issues with tachycardia, sob and a drop in bp when I stand up. The few cardiac tests I have had are normal. I believe this is related to my iron deficiency or low iron stores (ferritin) which I am exploring now as it can have side effects with or without anemia. I am now looking into trying to get an iron infusion to help with my symptoms. At one time I thought I might have POTS or innappropriate tachycardia before I found out about my low iron and celiac and am convinced that it is the latter.

Thank you for your reply. I to am looking into the effects of low ferritin and have found many people who have suffered symptoms from this. My bp does not drop it actually rises extremely on standing, my symptoms included severe weakness to the extent I could not tolerate being upright for more than several minutes before my weakness increased and chest pains become worse - being made to be upright by A & E staff caused me to have a T - wave inversion, sweating, extreme nausea, dizziness and many more. Orthostatic intolerence is poorly understood even by many medical professionals. I am relieved that this symptom has eased greatly and hope that it does not reoccur.

Have your symptoms improved? I hope you have gained relief from them. x

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