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Member Since 12 Aug 2009
Offline Last Active Nov 02 2009 08:35 PM

Posts I've Made

In Topic: Dude.

02 October 2009 - 04:39 PM

Sorry, i'm confussed- are these 3 different recipes or is it 3 steps? thanks

In Topic: Dr. Or Enterolab And Diagnosis Or Not

02 October 2009 - 03:26 PM

Thank You so much! That was the perfect answer, just what I needed to hear. I guess I'm the type of person who feels like I need it in black and white somehow someway. I'm just really having a hard time w/ Dr. telling me nope, no celiacs even though I litterally have experienced just about every symptom I've come across. yet, I'm improving slowly but surely being gluten-free- I just worry about the fact this is for life and I would like to know 100%, specially when it affects my girls. Thank you again

In Topic: Updating My Candy List Before Halloween Gets Here

01 October 2009 - 05:42 PM

Not sure about this- I think what you're wondering about are the milk chocolate hersheys nuggets- and boy do I hope they're gluten-free because I eat them every day for my chocolate fix. They are from what I can tell, but I'm a newbie. If anyone knows, please let me know. thanks

In Topic: Exposure To Wheat For Accurate Tests

30 September 2009 - 04:51 AM

The problem with the genetic tests are that usually they only test for the 2 genes you mentioned. However there have recently been 7 more genes that have been recognized as being associated with gluten issues. I, thankfully, didn't have gene testing done until 5 years after I was diagnosed. I did it because my blood and biopsy diagnosed DD had been retested when she went to college. She was told the original diagnosis, which is the 'gold standard' diagnosis was false because she didn't have the genes. That prompted me to test and I found I didn't have either of the 2 US recognized genes either. My genes are celiac related genes in the Far and Middle East but not considered to be celiac related here. At least not until recently. Do not rely on just gene testing for diagnosis. They are a valuable aid in the diagnosis but are not diagnostic in themselves. If you do want to do gene testing I would reccommend using Enterolab. They can also check for antibodies in your stool and if you haven't been gluten free for very long you don't have to do a challenge. Enterolab tests for more of the celiac related genes than the other lab. In the long run though your body knows the answer in most cases. If eating gluten makes you ill and avoiding it takes care of the issues then you have your answer from the best 'expert' there is. Your own body.
As far as the impact on my body goes it appears that all of the issues were directly related to gluten. The ones that did not fully resolve were organs that had been impacted for too long to achieve a total remission. I am now healthier in many ways than at any point in my life. I haven't even had a cold or virus now in almost 7 years and the only 'illness' I have suffered from has been when glutened. I am extremely senstive to gluten but now after being gluten free for so long that only happens once or maybe twice a year if I get a bit careless about checking something new.

so, which do you think would be best - genetic from entero lab or Dr. if they can do it?

In Topic: Saw The Doctor

28 September 2009 - 05:02 PM

So I saw a new doctor because I just got health insurance and I told her that I am on a gluten free diet and all of my symptoms dissapeared within a month of starting. I have been gluten free for over a year now and the last three time I have been glutened I have had severe intestinal cramping. She is in the process of getting a referral to a gastroenterologist. I told her I am very afraid of getting tested because that means I would have to eat gluten again and my symptoms are very severe.
She said to just talk to the gastro and see what they want to do. My Mom has celiac and I also have a family member that has Crohns.
She ordered a celiac blood test among other things but what is the blood test going to say if I haven't been eating gluten?
Shortly after seeing this new doctor I got glutened. At least I think I did. I have no idea what it was that caused it but it woke me up in the middle of the night with severe intestinal cramps. By severe I mean the worst pain I have felt in my life. It was like my body was trying to make balloon animals out of my intestines. The pain was so severe it made me nauseous. I was also painfully bloated. I don't know if it was the pain for just to add to all of this, but I felt extremely hot and was sweaty.
My whole stomach area was sensitive to the touch and I nearly felt like I was dying. I had diarrhea that night up until the next day.
I was finally able to get back to sleep after cringing in pain on the toilet for over an hour. Now what worries me is that twice now I have had visable mucus in my stool, and it wasn't diarrhea either. I've looked up the causes of this and it scares me to death. I read that the three major causes are irritable bowel disease, crohn's disease, and ulcerative colitis.

I don't know if I should call my doctor about this episode or wait to see the gastro or wait until I see my doctor when I go into discuss my blood results which isn't until November 2nd.

I'm scared and don't know what is wrong. Do any of you have problems like this from being glutened?

I wasn't going to do the test for celiac because my symptoms went away after being gluten free, but these episodes have become more frequent and I'm not sure what it is that I ate that caused it. The weird thing about the episode the other night is that I didn't eat anything that I had problems from before. The cramping is totally new to me and a lot different from when I would just get stomach pains.

I just wish it didn't take so long to figure out what this all means.

I think I just want to know right now is if there are other people with episodes like that and do you know what causes it?

Okay, I really don't want to freak you out but my suggestion to you would be- if that ever happens to you again GO TO THE ER IMMEDIATLY- even if it's just incase. That happened to me Exactly! I had a major bowel obstruction, almost died in surgery and after, the Dr. told me that if they hadn't figured out what was wrong w/ me within the next 24hrs. I wouldn't had made it- This had happened before and I put up w/it, this time was No different the only reason why I went this time was because I was pregnant. Better safe than sorry!

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