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emaegf

Member Since 21 Aug 2009
Offline Last Active Dec 02 2013 08:55 PM
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#890088 Recurrent Miscarriage And Celiac?

Posted by emaegf on 28 September 2013 - 06:31 PM

Blood results as well as endoscope testing will Not be reliable since you are already gluten free.  More tham likely you may have false negatives do to being on a gluten free diet for the five weeks prior to testing.

 

The blood tests look for the antibodies your body produces in response to the gluten you eat so when you remove the gluten the body has nothing to form antibodies against so there none for the blood tests to read.  Yes you could still have villi damage that can only be seen by doing a endoscope and taking samples of the intestines. But depending on how badly the damage internally was there also may come out negative do to the damage healing which starts within 24 hours of total removal of gluten from the diet.

 

 

So your best option is the genetic test unless you're willing to go back to eating gluten for 6-12 weeks and then having the blood work and endoscope done. But still if you do have a gene linked to Celiac you may not actually have active Celiac so also do go to a reproductive specialist if you aren't already.


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#890083 A Re-Test ...sigh

Posted by emaegf on 28 September 2013 - 05:54 PM

I can save you a few weeks of torture and the gastrointestinal tests, you'll still need the blood work done though. Your blisters are characteristic of Dermatitis herpetiformis (DH) an autoimmune blistering disorder also a symptom some get with a Celiac.

 

You need to see a Dermatologist familiar with Celiac and DH and have a skin biopsy done to check for the presence of the antibodies for Celiac in the skin. That is where they collect with DH.  The test must be done 3 to 5 mm away from an active lesion (the blisters). That is then looked at under a microscope where the antibodies can be seen in the skin.

 

A skin biopsy is the key tool in confirming a diagnosis of DH. Doctors take a skin sample from the area next to a lesion and, using a fluorescent dye that highlights antibodies, look for the presence of IgA deposits. Skin biopsies of people with DH are almost always positive for IgA.

You need to have the sample looked at by someone who knows what their looking for or there can be an error in the reading also if the wrong sample is taken you'll have to have another done do to the first one being ruined. A proper sample does Not include part of the blister since the fluid from the blister can distort the antibodies under the microscope resulting in an inaccurate reading.

I've been through this many times before and the test being done wrong resulted in repeated testing. 


http://celiac.nih.gov/Dermatitis.aspx

 

Do some more research on DH on your own then take your findings to your doctor and get in to see a dermatologist asap. 

 


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#818392 Five Guys And Fries

Posted by emaegf on 17 August 2012 - 09:56 PM

Isn't it great? The first time I was there all the employees stopped and the Manager told the ones who were touching the buns to play statue and not move until she tapped them on the shoulder again. She and two others were the only ones able to touch anything until they handed my bag to me. It was like a well rehearsed dance. I was very impressed and made sure I let them know before I left and emailed the store and the corporate office letting them know how much I appreciated their efforts and the food. So nice to be able to go somewhere and not have to worry about being sick afterward.
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#668347 Activated Dh Lesions

Posted by emaegf on 16 January 2011 - 09:12 PM

I eat fish on occasion without my DH acting up. It's the shellfish that you have to avoid the most.
I found this on avoiding iodine "It is not necessary for dermatitis herpetiformis patients to eliminate iodine completely from their diet, merely to avoid foods high in iodine as described above. Dr. Zone also explained that dermatitis herpetiformis patients need not avoid iodine indefinitely. Iodine is an important mineral for our bodies. dermatitis herpetiformis patients can stop avoiding iodine when their rash symptoms clear up which can take anywhere from a few months to a couple of years on a gluten-free diet." It was here http://www.celiac.co...rmis/Page1.html
You don't have to avoid all salt just iodized there are uniodized salts I use kosher salt for cooking and such. You use less and it has a cleaner taste than table salt.
For the active sores cold helps to lessen the pain and itch also you can try sprays like Bactine they work better than the cream.
no you're not back to square one.
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#665167 Sundays At Church

Posted by emaegf on 03 January 2011 - 07:01 PM

Last year when I started going back to church. a friend told me they have set aside an area in the chapel for all the gluten free memembers. We have so many gluten-free that we have a section of 3 rows. Are sacrement is passed we can change seats if we choose but it's nice to know we can partake without worry and ramifications later.
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#657127 Peppermint Hard Candies

Posted by emaegf on 29 November 2010 - 03:32 PM

Bob's Candy Canes were gluten free last year. They say gluten free on the bag usually on teh back around the nutritional information.
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#655271 Xanthan Gum

Posted by emaegf on 21 November 2010 - 05:08 PM

It fine to use it after the expiration date. Many bakers store it in the freezer in a ziploc bag, this keeps it fresh forever.
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