StacyA

I switched to gummy vitamins (several brands are labeled gluten-free) because most standard vitamins also made me nauseated afterwards - not glutened, and I don't suspect any gluten cc at all, just nauseated - perhaps something about the coating and my system. It has worked well because I also take omega 3 gummy vitamins which taste bad but if I chew the multi vitamins at the same time as the omega 3 vitamins they are tolerable.

Everyone is right, you'll go through some mourning if you find you need to live without certain foods the rest of your life. Consider it this way - although you don't want to have food intolerances - you also don't want to have them and not know it.

Once you get used to gluten-free shopping and cooking, though, you'll be very pleasantly surprised at your options.

What I found helped me at first was to have a special cabinet that no one else in the house is allowed to open. I store my gluten-free flour and pasta there, but I also have stashes of Sour Patch Kids or Hershey Carmel Kisses and other goodies or comfort foods. I also make batches of Betty Crocker gluten-free choc chip cookie dough and freeze uncooked discs of the dough in freezer bags and periodically, especially if I'm feeling deprived, cook a big cookie and eat it right out of the oven when it's gooey and warm.

Hang in there!

Consider the possibility of the dried fruit being cc'd during processing.  I have done just fine with Ocean Spray craisins, however I suspect I got glutened by Sunmaid Tropical Trio dried fruit two years ago.  The 'Tropical Trio' mixture did not contain raisins, but what I got from the experience was to be leery of dried fruits, particularly Sunmaid - not that I'm trying to bash that company at all, I am just being careful.

Perhaps it would be good to keep a log of times you have symptoms and the foods you had in the 24 hours before (or less, I get symptoms nearly exactly 2 hours later) so you can have a record of products to watch.  If you keep such a log, make sure to write down the brand names since memory can fade - like what brand raisins, craisins, rice, etc.  If you have those products again and you're just fine, you can delete them from your list or make a note.  In fact, for this reply I clicked on the 'Suspicious Foods List' document I keep on my computer to find the brand and name of the dried fruit mixture that I suspect zapped me.

He is Dr Edwards at the London Lupus Centre in the UK. I did have to find a medical paper written by a celiac specialist (Dr Peter Green from the Columbia Celiac Centre) who quoted my exact presentation as a rare atypical presentation of Celiac (apparent polymyalgia rheumatica plus ESR (SED rate) of 100)as evidence though. He was kind and not affronted by my having done my own research.

UKGail - can you provide a link or a little more info on the article you mention above? My mother has been dxed with PMR and is having a rough time, so I am looking for more info, particularly since I have celiac disease.