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Member Since 17 Nov 2004
Offline Last Active Jul 11 2005 07:44 PM

Topics I've Started

Tasty Gf Waffles

16 January 2005 - 12:52 PM

This is a recipe for wholegrain brown rice waffles at Sue Gregg's site. They are really good, and inexpensive. Everybody likes them here except my husband who doesn't like waffles anyway.


Be sure to blend for about 5 minutes before adding the baking powder, though. Otherwise they'll crumble and stick to the waffle iron. I made them first with the buttermilk and then with the rice milk. They didn't turn out that much different from each other and they both tasted great! I plan on trying out some of the other gluten-free grains. I didn't let it sit overnight, but I plan on trying that later too. They freeze well too.

You can also make pancakes this way too, if you like.

Anti-endomysial Test

12 January 2005 - 03:24 PM

My 8 yo daughter had a blood test for celiacs two months ago (but no biopsy), then we went gluten free and she felt better, though she has ups and downs. Well, she was positive on the anti-gliadin, but not the antiendomysial blood test, and the doctor said she probably had celiacs. As I've done more research, I've found that the anti-endomysial blood test is over 99% specific to celiac disease. I thought that meant that if you are negative on that test then you don't have celiacs. Is that true? We actually had the ttG blood test done instead of the antiendomysial, which I guess is about the same thing, just a different viewpoint. When the dr. was first explaining the results, he said that a negative ttG only meant that she didn't have damage to her intestines. But then, when I was talking him to him at the followup appointment last week, I asked him about testing the other family members who didn't have any symptoms. He said not to bother because you can't have celiacs with out symptoms. He said that if you have damage to your intestines then you will have symptoms. So this is very confusing because first he basically says she has no damage to her insides and but she has celiacs, and then he says you can't have celiacs w/o damage and symptoms!

As I posted on the other thread, I think I read somewhere that you can have gluten intolerance w/o being celiacs. I asked the doctor about that, and he said yes, you can there are a myriad of reasons you could be gluten intolerant. And then he left it that.

Kind of frustrating to be getting all these different answers! I just have this sneaking suspicion that she doesn't actually have celiacs and that she has some other problem. I wish it were celiacs, because that would be an answer! I guess now I just need a definitive answer, because what this other doctor told me isn't making me feel too settled!


Feels Like Ice Going Up Body

18 December 2004 - 09:40 PM

Well, 8yo dd has been eating a little bit better the last few days. I've been trying to give her more bland foods and I wonder if she may have been getting some contamination.

But the last three days or so she's told me that she gets a weird feeling that starts in her feet and moves quickly up through her whole body. She says it feels like ice going up her body. Is this a celiac thing too? She's told me this has happened about 3 or 4 times. Could she have a few more weird things happen to her??

Aplets & Cotlets

15 December 2004 - 09:59 AM

I bought some Aplets and Cotlets at Costco and was wondering if my gluten-free daughter could eat them. They are SO good. I emaield the company and this is their response:

Gluten is a protein found in some cereal grains. Most often wheat gluten is the source of certain people's digestive problems. Barley, oats, spelt, kamut, triticale and other lesser-known grains can cause problems also. Our candies do not have wheat, wheat by-products or any other of the before-mentioned grains.

Our candies are made with corn starch and corn syrup. Corn also has gluten, but corn gluten has a different molecular structure. Many people that suffer from Celiac disease, or gluten intolerance, can eat our candy, but we suggest a consultation with their physician.

If you are allergic to nuts or soy, please keep in mind that although we follow very strict cleaning procedures to reduce the likelyhood of cross contamination of allergens, this is always a possibility. Not knowing how sensitive you or your recipient are to gluten, soy or nuts, you must weigh the risks.

If you have further questions concerning a specific item, please call our Customer Service department at 1-800-888-5696.

Best regards,
Customer Service Dept.
Liberty Orchards Co., Inc.

What's Your Blood Type?

12 December 2004 - 09:38 PM

I was reading about eating right for your blood type kind of just for fun (I don't know that I believe it, but my mother does), and I was curious to know if certain blood types had more celiacs or if it's just spread out evenly over the different blood types. Of course this is a very unscientific poll, but an interesting thought. I don't know what my daughter's blood type is, I couldn't find it on her blood results (but I surely will call the dr. and ask!) Mine is AB, but I don't know if I have celiacs!

Blood Type Diet Food Values

The above link is to a database of foods. You click on the food and then it tells you if it's harmful, neutral, or beneficial for your blood type. But, to really match it to you, you have to know if you're a secretor or non-secretor based on the dr.'s mail in test. I thought it was interesting that when I selected Wheat/Gluten flour, he says Type B and Type O should avoid it, and Type A and Type AB non-secretors should avoid it. Sure doesn't leave too many people left to eat wheat/gluten flour!

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