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Member Since 16 Sep 2009
Offline Last Active Dec 12 2009 02:44 PM

Posts I've Made

In Topic: Navigating The Holidays

12 December 2009 - 12:22 PM

For the holiday parties I have been to this year, I just bring something with me to share with the group. I make sure it is something that is somewhat substantial so that I can eat enough of it to keep myself from being starving if there is nothing else I can eat. A lot of the time there has been fresh fruit and veggies there too that someone else brought, so I eat those as well. Honestly, I have started carrying a gluten free sandwich with me everywhere we go now when it is a group get together that involves eating. That way if there is nothing I can eat, I still have my sandwich!

And remember, as stated by other posters, people do not understand celiac disease. I cannot tell you the number of times someone has told me that I can have WHITE bread because it is not WHEAT bread... They do not understand the real issue or the ingredients in food. If in doubt, err on the safe side, becuase it is YOUR health and the days of being sick is not worth sparing the hosts feelings!

I also like to use the get togethers as a chance to educate people about Celiac. When people ask me why I'm not trying the little finger sandwiches or the pumpkin pie, I explain to them that they contain gluten and that I am allergic to gluten. That is generally followed up by a "What is gluten?" question... so then I get to explain to an uninformed member of the public what Celiac disease is and tell them about all the foods that contain gluten. I just hope that they learn a little bit and next time something about it comes up, they will have a little more information.

In Topic: I Know, This Is Really Random

12 December 2009 - 12:15 PM

I'm going to have an endoscopy in January, and I know regardless of the results I'm going to go gluten free to see if I feel better.

So anyway especially near the beginning, I'm going to be always having to check whether things are safe yet...and I'm wondering how you guys deal/dealt with it in the beginning? I don't have internet on my phone, should I get it? I don't want to be stuck in a situation where it could be tricky. I'm sort of trying to think and plan ahead.

Here are a couple of other suggestions. I know that there are a couple different books that are published (I believe on a yearly basis) that contain a list of all gluten free products by brand or by type of food. The only caveat with these is, you still HAVE to read the labels before you buy those products since ingredients can change often in foods. But at least that would give you a starting point for which products to look at first. The second thing I do sometimes is if I am in a store and I am looking at buying a product that I am not sure is gluten free, there is usually a 1-800 number on the product. You can call up the company right while you are standing in the store and ask them if that specific product is gluten free or not. They should to be able to tell you right away if it is. If they seem confused or cannot guarantee it is gluten free, don't buy it! Third, a lot of stores have a lot of gluten free products in their health food sections. I shop there a lot for convenience foods because it takes the guesswork out of it.

Hope that helps some!


In Topic: Buffalo Wild Wings

08 December 2009 - 08:17 AM

I'm constantly on the lookout for new restaurants that have gluten-free options for newly diagnosed hubby. We've never been to Buffalo Wild Wings, but if they offer gluten-free options, we could become good customers.


My boyfriend and I have eaten there almost once a week for the past 6 or 7 months. I haven't ever had any problems with the food I eat from there. Now, the options are definitely limited, but you can make a meal out of it! I emailed them a little while back and they were kind enough to email me a list of their gluten free products. -- Actually, it is the allergen listing, but it shows specifically all the products that are gluten free. I don't have the email anymore, otherwise I would post it here, but they got back to me within a few hours when I emailed them.

My Buffalo Wild Wings does have dedicated fryers for all the items I eat, so I think that is important to check on before you eat there. Some stores may have different kitchens or policies.

Anyway, here is a list of the things that are currently on their gluten free list (and again make sure they have dedicated fryers!):

Traditional Chicken Wings (make sure fryer is dedicated to just the traditional wings)
Bleu Cheese Dressing
Ranch Dressing
SW Ranch Dressing
Sweet BBQ Wing Sauce
Miled Wing Sauce
Parmesan Garlic Wing Sauce
Medium Wing Sauce
Honey BBQ Wing Sauce
Honey Mustard Diping Sauce
Spicy Garlic Wing Sauce
Caribbean Jerk Wing Sauce
Hot Wing Sauce
Hot BBQ Wing Sauce
Mango Habanero Wing Sauce
Wild Wing Sauce
Blazin Wing Sauce
SW Chipotle
Caesar Dressing
BBQ Ranch Dressing
Marinara Sauce
Queso Cheese Sauce
Naked Tenders With Seasoning
French Fries (the regular ones)
Buffalo Chips
Buffalo Chips with Cheese
Tortilla Chips
Ice cream with chocolate sauce
Kids meal traditional wings
Kids meal naked tenders

So again, as long as they have dedicated fryers and you let your server know you have a gluten issue, I think it's completely okay to eat there. Like I said, we've been there a TON and I'm super sensitive and I've never gotten sick from eating there. I usually always get the 4 piece naked tenders with regular fries or buffalo chips. Then for sauces I get a side of ranch and a side of honey bbq. It's nice to be able to have a normal meal sometimes! :o)

In Topic: Why Is This Such A Popular Condition For People To Self Diagnose With?

04 December 2009 - 08:15 AM

If you send me the name of this restaurant I will send them an emailing telling them I heard they had fantastic service for celiacs. Also if you post the restaurant's name and the city it's located in under the restaurant section when others visit that area they will know where to go eat. Nice to hear of such a great dinning experience.


It was an awesome dining experience! Not all of them are that great, so it's really nice the few times we get to feel comfortable eating! :o)

The restaurant I went to was Upstream Brewery and it is the one located in Omaha, NE downtown (we have a couple locations here). Now, I have not been to the other location here, so I do not know if they have the same diligence as the downtown branch, but I was definitely impressed with the downtown restaurant!

In Topic: Please Help

03 December 2009 - 12:22 PM

Hey! Welcome to the forum! Sorry you haven't been feeling well :( This is a great place to get some support though! I've definitely had to use all these wonderful people a bunch of times! They are always great though!!

I'm only 27, and I started having all my major Celiac symptoms when I was about 17 or 18, so I understand your feelings of not wanting to be so sick at such a young age. I was not diagnosed until March 2009. I understand how frustrating doctors are! Fortunately, my family doctor here where I live trys very hard to stay up to date with all the latest issues -- so he was the one who actually diagnosed my Celiac.

When were you diagnosed and have you been on the gluten free diet long? I haven't read any of your other posts, I don't think, so maybe you discussed that earlier, so sorry if you did! :)

I definitely had and have a lot of the same symptoms. I also got lots of headaches, diziness, nausea, bone and joint pain. I have actually had a cold almost continuously since I was about 17. I used to get night sweats all the time, but those have gone totally away since going gluten free. The doctor's can't find any reason for it, but I have a little couch most of the time and my head is congested a lot. I also get a lot of fevers...and I too check my temp daily :D

They can't really seem to find reasons behind most of it, so I tend to think it is just my weird immune system's way of dealing with things! My boyfriend is a college athletic coach, so I think that maybe he brings a lot of things home with him from all the students....who knows!

But I really hope you start feeling better and like I said, everyone on here is more than willing to be supportive when you need it! It's a great place to come! :)

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