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Sniffy911

Member Since 23 Sep 2009
Offline Last Active Dec 02 2012 11:00 PM
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Posts I've Made

In Topic: Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

24 November 2012 - 03:28 PM

I'm sorry you're not feeling better yet, but I'm glad others were able to give you advice.

Main reason I'm commenting is because my tongue has been like that for over 5 years now - I've had tests for thrush, swap tests, etc. and it always comes back normal. My tongue is always swollen, looks EXACTLY like yours and is very sore at times. My doctor claims it's because of my vitamin B12 deficiency, have you had your levels checked?

Hope things get better for you, though!

My nutrionist did check my B-12 Levels. My folate was very low below normal, and my B was at the lowest part of the normal range. He suggested it was probably from the PPI's etc.

In Topic: Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

24 November 2012 - 03:26 PM

There was a period of time when I was on 40mg x2 Nexium 150mgx2 Zantac, and taking Carafate daily too.

I went to a nutrionist and he felt that I was suffering from to little and had me on a HCL regiment. When I was taking it I noticed my gas levels went down, I had less flatulence and burping after eating. I sort of just stopped though, I never saw a significant difference.

The PPI's do help my mouth status...when I took nexium before the mouth soars and coating seemed to go away for a little bit.

PPI's though give me all sorts of other problems though it seems when I take them like discomfort etc,


I just went and saw a doctor today about my throat / Tongue. My throat basically looks inflamed red and looks like constant nasal drip in the back, my tongue well looks like those pictures I left.

Doctor said didn't suspect it was thrush at all and just suggested me taking a nose spray and to brush my tongue with baking soda (i hate doctors....seems like a complete waste of money and visit)

I have nexium I can take....but I don't want to live on those type of drugs. Feel like its so horrible for you already being a celiac, and I believe in the after affects they leave you because I've gotten them.

In Topic: Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

24 November 2012 - 12:15 AM

Thank you so much both for your insight ! If it is thrush I will be truly happy and look into that direction. I wonder if my GI meds are causing or contributing to the thrush as well. The thing i've noticed though is when i Do take a PPI like nexium or something I tend not to get the tongue soars, yet it usually still looks layered and my throat never seems to heal very well.

I will make a big effort to try and change up my diet some more and see what I can do about my diet and my snacks. For me cooking still seems like so much of a chore, so I'm not overly fond of it, but I know it's the best thing I can do.

I've always wondered if it could be something other than Gerd, and maybe it is, if so I think it'll give me some relief.

In Topic: Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

23 November 2012 - 03:26 PM

I have been trying to stay away from soy as much as possible, but I haven't completely eliminated it from my diet.

Also I do make sure I keep the kitchen clean and that I don't cross contaminate or share with gluten eaters.

I took some pictures of my tongue which I wanted to share if anyone had advice or if it's happen with them with celiac, but like I said my main concern seems to be my throat always being soar and raw and my tongue.

http://tinypic.com/r/n7139/6

http://tinypic.com/r/309m2yc/6

http://tinypic.com/r/2u5x2sk/6

In Topic: Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

22 November 2012 - 04:43 AM

think prodcuts like glutino are causing a problem?