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Member Since 23 Sep 2009
Offline Last Active Dec 02 2012 11:00 PM

#838712 Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

Posted by on 24 November 2012 - 03:28 PM

I'm sorry you're not feeling better yet, but I'm glad others were able to give you advice.

Main reason I'm commenting is because my tongue has been like that for over 5 years now - I've had tests for thrush, swap tests, etc. and it always comes back normal. My tongue is always swollen, looks EXACTLY like yours and is very sore at times. My doctor claims it's because of my vitamin B12 deficiency, have you had your levels checked?

Hope things get better for you, though!

My nutrionist did check my B-12 Levels. My folate was very low below normal, and my B was at the lowest part of the normal range. He suggested it was probably from the PPI's etc.
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#838607 Diagnosed Celiac Disease 3 Years Ago, Still Not Getting Better

Posted by on 24 November 2012 - 12:15 AM

Thank you so much both for your insight ! If it is thrush I will be truly happy and look into that direction. I wonder if my GI meds are causing or contributing to the thrush as well. The thing i've noticed though is when i Do take a PPI like nexium or something I tend not to get the tongue soars, yet it usually still looks layered and my throat never seems to heal very well.

I will make a big effort to try and change up my diet some more and see what I can do about my diet and my snacks. For me cooking still seems like so much of a chore, so I'm not overly fond of it, but I know it's the best thing I can do.

I've always wondered if it could be something other than Gerd, and maybe it is, if so I think it'll give me some relief.
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