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Member Since 23 Sep 2009
Offline Last Active Mar 15 2013 08:44 AM

Posts I've Made

In Topic: Curious About What Vitamins Are You Deficient?

20 June 2012 - 09:41 PM

My B12 was around 120 when I was diagnosed with celiac and has since gone up to very normal levels (>500). I have to take daily D3 drops because my vit D does not go up even with sun exposure. It was <20 and it is >40 now. I have never had iron deficiency, though I know it's common with celiac.

In Topic: Anyone Else Unable To Eat Fruits And Veggies And A Whole Bunch Of Other Food?

20 June 2012 - 09:22 PM

Do you think if I were truly celiac and my small intestines were damaged enough it could be the reason for my inability to digest carbohydrates? Has any of you experienced this and were you able to digest more things after being gluten free for awhile?

It's just really frustrating because not only do I have to avoid gluten and bunch of gluten containing items, but I am so limited in the carbohydrate department and it's so hard to explain to people that I can't eat half of the gluten free stuff they want to feed me because I end up in pain. Everyone makes me salads :(

Most definitely, yes - this is a strong possibility, especially if you are recently recovering, and in the past was very ill. Dysbiosis of gut flora can also cause digestive problems, in addition to inflammation and malabsorption.

I was basically living off of potatoes, meat and bananas when I was recovering a few years ago. I had to avoid vegetables for a while and even now my veggies are limited. My diet is low carb (no grains, pseudograins, legumes or beans), high fat and I stick to specifc vegetables I know I can tolerate. Mainly cooked kale, cooked zucchini, fermented cabbage, and raw salads with what I consider easily digestible vegetables. Other vegetables, like onions, I avoid completely, because they make me sick.

My diet is still very limited but has expanded quite a bit since what it was 3 years ago. The expansion has come slowly. I periodically add something new either successfully or not. Most recently dark chocolate and almonds were added successfully, but goat milk was not.

I cannot eat most fruit. I can eat bananas, papaya, and avocado. I also seem to be OK with a small amount of dried fruits (plums, raisins) but only if they have sulfites in them. I've tried different fresh fruits from kiwi, oranges, red and green apples, peaches, pears, plums, tomatoes, watermelon, berries, and others and all I cannot tolerate. Fruits I can't tolerate gives me digestive symptoms accompanied by severe rhinitis and a rash all over my abdomen. I highly suspect the symptoms are not an allergy and not from the fruit itself but probably a reaction to a mold specific to the environment here.

When I was in California 2 years ago, I was staying at a motel for several weeks and lived off of whatever I could buy at a couple of health food stores nearby. The motel had no stove so I had to make due with what was available. The Whole Foods had berries (strawberries, blueberries, blackberries) that were in season and extremely fresh. I remember pretty much gorging on those (including the little bugs that were crawling all over them) and had no significant issues. So once your gut heals, freshness could also play a part in tolerance.

In Topic: Is This Anyone Else?

19 June 2012 - 09:17 PM

Not my whole life. I lost my teen years to something else. I strongly believe I lost only my college years to celiac disease. I had a severe GI infection my first semester, during finals, and after that is when I believe I became gluten intolerant. I was not diagnosed, however, until years later and it severely affected my ability to live a functional life. Attending classes was extremely difficult. At one point I was in a wheelchair due to multiple stress fractures in my leg bones and thought I was going to be disabled for the rest of my life. I ended up only able to go to a community college taking 3-6 credits a semester for an AA degree. It's only now that I've finally gone back to University full time for my BS when my health is finally under control.

In Topic: Possibility Of Parasites Infestation Causing Celiac Disease

19 June 2012 - 08:58 PM

I had a terrible parasite infestion before diagnosis. It lasted about a year. So many awful critters...too many types to mention. Scared me to death. It took 90 days of herbs to get rid of them. Shortly after...I was diagnosed with Celiac. I was just wondering if anyone else experienced this. I was probably Celiac for 10 years before being diagnosed. I had 4 bowel obstructions and never had a day without diahrrea and constipation alternating. So much stomach pain and suffering. So glad to have gotten gluten out of my diet. The only problem I have now is peripheral neuropathy and it drives me crazy. I guess the parasites could be b/c my immune system has been compromised for years. I know that in the past, the surgeon alwasy told me after each obstruction that I had "no parasites." That was forshadowing b/c I didn't know what parasites were and wish I could still say that. Once you've had a bad infestation...you always worry that they will come back.

Infection can trigger celiac disease if there is a predisposition to it so yes it is possible that the parasites indirectly lead to the development of celiac disease. I am curious what types of critters these were. Tapeworms? Protozoa? You mention bowel obstructions so I would assume that roundworms were involved? Also I'm not sure that herbal treatment would necessarily be effective in completely eliminating a parasite infection...

In Topic: Meat Allergy Caused By Tick Bite

19 June 2012 - 08:30 PM

Lone Star Tick causing meat allergies in central Virginia

By Kris Van Cleave June 18, 2012 - 03:49 pm

The allergy concerns people throughout the Commonwealth who have been bitten by the Lone Star Tick. People who are affected have found themselves totally unable to consume red meat.

Just posting a snippet but full story is at the link. Seems strange that people get a meat allergy after being bitten by a tick? I hadn't heard of that one before.

This is scary. Very scary. Glad there is medical research being done on this. The article and video is interesting but doesn't explain any possible mechanisms causing the "allergies." Likely just too soon into the research. I wonder if a similar epitope is shared between meat protein and some sort of bacteria or immunogen (possibly from bacteria) that the tick could be carrying, causing an overreaction of the immune system? The delayed reaction of 2-4 hours could also mean the small bowel could be involved somehow because this is about the time it would take for the food to reach the duodenum. Overall very interesting and frightening but need more details in order to speculate further. I know there is a similar thing with ciguatera fish poisoning and nuts, but it is not well researched.

Edit: There's an article on CNN about this giving more information.

According to the article it is apparently a true allergic reaction to not a protein but a sugar, galactose-alpha-1,3-galactose which is found in all mammallian meat barring humans, apes and greater primates. And the reaction is delayed. This would be considered highly unusual but is very, very interesting. I wonder if there could be more of these types of delayed allergic reactions going on that are unidentified and not necessarily related to meat or ticks.

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