What does everyone think about using hand sanitizer to lessen the chances of cross contamination when you're not near a sink? Does it eliminate gluten on the skin?
And what are some opinions about the length of time it takes for blood levels returning to normal? Is it possible that he might take longer than others? And how often do you get blood work done? His GI doctor suggests about every 3 mo. until it returns to normal. Sometimes it's hard to wait 3 mo. to find out if the changes we've made in the past 3-4 weeks are making a difference. His symptoms are more sporadic now than when he was eating regular stuff all the time, but they are still present. Do the symptoms usually go away before the blood levels are completely down? Are the symptoms, either returning or subsiding, a good indication of what's going on?
Hand sanitizer does nothing for gluten CC. The only way to clean gluten off your hands is to wash with soap and water. That's what I always thought and it was confirmed by my kids' GI doc (my husband and I brought up for debate with him).
In our experience, blood levels can take awhile to get back to normal. Both my children, especially my oldest (4 at the time) had very positive celiac panel results. This was late October blood panel results. By late January (3 months out) the numbers were high but going down. Then another 6 months (now 9 months out) the numbers climbed again because they had been unknowingly consuming trace amounts of gluten from a supposed gluten-free item. Took it out and by the next January (now 15 months out), the numbers were coming down. And finally, this past July (21 months out) we have our first normal ttg levels. So for us, it's taken awhile! By the way, they currently go every 6 months (other than that initial 3 month visit). They can go once a year once their levels have been normal two visits in a row and they have no symptoms in-between times.
Symptoms while healing... For us, we had immediate responses to the diet. Now, the symptoms didn't magically disappear but we could obviously tell that gluten was a problem. Their symptoms continued to improve - it seemed slowest with my youngest who suffered from constipation and pale, sticky stool prior to diagnosis. Then the CC contamination occurred and I could see their symptoms slowly return/worsen. So my oldest seemed to recover quickly but my youngest took time and it wasn't really until over a year or a little more that he consistently had daily, "normal" BMs.