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zoobie

Member Since 06 Oct 2009
Offline Last Active Oct 07 2009 09:25 AM
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Topics I've Started

My Mother Died From Undiagnosed Celiac--do I Have It?

06 October 2009 - 07:02 PM

My mother died from celiac complications at age 70 after 25 years of being misdiagnosed. She was told she had lupus, but in fact she had celiac. By the time they made the correct diagnosis, it was too late. She might never have been correctly diagnosed had it not been for the diagnosis of her granddaughter(my niece) at age 9 months. Subsequently my brother was diagnosed (in his 40s). Both are healthy and doing fine on gluten-free diets.
I have many of the celiac symptoms (particularly the chronic bloating/distention). I finally got my internist to test me, but I don't understand the results. My"TTG Antibody, IGA" is negative, but my "Gliadin Antibody (IGA)" has come back positive in 2 different tests, a year apart. My internist says this means I don't have it, but I am still worried.
Could someone please direct me towards a definitive test, if there is such a thing?
Thank you very much.