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Member Since 10 Oct 2009
Offline Last Active Oct 26 2011 01:06 PM

Posts I've Made

In Topic: Hair Thinning/not Growing Anymore

17 December 2009 - 08:11 PM

Another thing it could be from is your thyroid, problems with the thyroid can come up in association with celiac. So when you go to your doctor next insist for them to test the Free T4, Free T3, AB and TPO levels, that displays if you have enough thyroid hormone circulating through your body, since that can be a cause of hair loss as well. The first two are the Free hormones through your body, the other two are to see if your antibodies are attacking the thyroid preventing it from producing the proper amounts of hormones.

Maybe you can be extra safe and buy gluten free shampoos, surprisingly the gluten in some hair products can react to the scalp, I use dessert essence organics which clearly labels their products gluten free.

I'm also a college student and understand how you feel, my hair has considerably thinned and falls out daily which is so unnerving and annoying.
I hope you can figure it out! Have a happy holidays and nice break.

In Topic: College Life

17 December 2009 - 04:30 PM

Hey everyone,

it's cool that a thread like this was started. I actually switched to gluten free a month and a half ago about half way through college. The convient thing for me has been Art Institute's use of apartments as dorms. It's such a handy thing to have a nice kitchen. I'm still new to what's good and quick, but usually I'll just make instant rice and Steamfresh veggies, or baked chicken with a potatoe. Stirfry's also something I experiment with a lot. When I was rushing with finals recently I ate gluten free cereals and fruit, with tea, definitely wasnt getting enough to eat this past week because of it but at least finals are about done. I'm planning on being able to finally go shopping at a Trader Joes soon to see what they offer.

I was really pleased that my work is highly supportive of my gluten free diet. I work as a resident adviser in the dorms and we usually have an end of the quarter dinner, where this time it was Greek food with pizza and gyros, but they ordered a gluten free meal for me! :D

I dont use make up so I cant help with that but I do know of a nice brand of shampoos that you can use, its dessert essence organics and clearly labeled gluten free. Its about 8 dollars a bottle but its well worth it especially if you get reactions on your skin from gluten. I would get such an itchy scalp. Think of it this way, although it is expensive, its saving you the pain and bother of a reaction. ^_^

Happy holidays!

In Topic: Hairloss, Headaches, Fatigue--your Advice Is Needed!

16 December 2009 - 08:33 PM

I understand totally where you are coming from, you sound quite similar to me and a few other people on here I'm sure. It's always a cluster of odd symptoms similar to these that point towards it.

There are a few options you have, I'll explain as best as possible but more seasoned people on here can assist more! ;)
The first is to get the Celiac blood tests done:
after that some peoples levels are high but many have lower so its hard to get a real diagnosis. False positives are so common its crazy. From there your doctor might:
have an endoscopy done with a biopsy of the upper part of the small intestine.

If both come back negative all hope is not lost, you have the ability to go on a gluten free diet yourself. Its tricky but so worth it if it is the cause. I know for me I had negatives on both tests but ended up feeling way better within a week and a half. It may take longer for you to feel better but everyone is different.

In the mean time make sure to have these other tests:
thyroid levels: Free T4 and Free T3 (my hairloss is due to lower FT4 levels) which many thyroid problems come up with celiac
Iron, Ferratin, Calcium, potassium, and a few others can someone help with that?

If you have any other questions feel free to email me at brittanydrew (at) yahoo.com
Hope for the best, and happy holidays!

In Topic: 'normal' Thyroid Levels

05 December 2009 - 09:06 PM

Thanks, yeah I really don't trust my doctors opinion that its fine as per what my TSH levels are, I've already read a ton of things and I'm worried as to what is causing it. I've come to be really skeptical with most doctors, they do know a lot but they cant know everything. One needs to be their own advocate! Many have just pushed me under the rug because I'm a busy 19yr old college student.

I did not realize my T3 levels were lower either, huh. But no I'm not on any medication at this point, my doctor did not see the need to prescribe anything yet, I suppose he's waiting to make his call three months from now... ugh I don't want to wait that long. I'll be in touch with an endocrinologist soon so I'll see what they say and if I cant make an appointment.

What I'm really worried about is the fact that auto immune diseases run in my family it could be Hash's.

I just want all of my issues gone! They almost all are, save for some tired feelings (luckily a great portion of my energy has come back), hair loss and dry skin.

In Topic: Why Is This Such A Popular Condition For People To Self Diagnose With?

03 December 2009 - 05:41 PM

I've been sick since my early twenties.

First, it was because of college.

I graduated.

Next, it was because of my stressful job.

I quit.

Then, it was because I had kids.

I put them out for adoption---just kidding!

Times passes. I'm still sick with more of my body systems failing me.

Finally, in my late thirties, they decided that all these problems over the last two decades was because I was peri menopausal.


I started researching myself and, lo and behold, celiac came up over and over. I am blood and biopsy diagnosed, but I wish I had been smart enough to self diagnose earlier.

Women are hysterical. All our problems, including the ever popular IBS, are because of our periods.

That's what a good portion of the medical community believes in my experience.

Interesting thing to ask, but its self diagnosed only because many doctors either don't know about it or think its that real of a problem. Many believe its in ones head, or only a thing of childhood.

Many times when symptoms are shown early the doctors tests come up as false negatives, so the final choice to make them feel better is to try the gluten free diet. I know many like myself have had extremely positive results from doing this. I'm only 19 and yes female, but when you figure out the thing that has been making you feel horrible for no reason its a wondrous feeling. I had the same issue as TrillumHunter, my symptoms were thought to have been because of college and a stressful job, but I found out about Celiac through the internet before it became serious.

Going out to a restaurant is a daunting thing for a celiac or gluten intolerant. I know I've been accidentally glutened when I've gone once since starting the diet a month ago. Please be understanding and really compliant to our wishes at the restaurant you'll make lives much easier.

Luckily awareness is increasing.

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