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Member Since 28 Oct 2009
Offline Last Active Nov 04 2014 03:16 PM

Posts I've Made

In Topic: Follow Up To T.h.: Mastocytosis

29 August 2014 - 07:44 AM

I am suspecting I may have MCAD.  I had a bone marrow biopsy done in January and the doctors said my mast cells looked normal (although at the time I had quite low platelets, WBC and RBC) so I guess that would probably rule out mastocytosis.  But I haven't had tryptase tested or anything else like that.  I'm not sure the allergist I'm seeing knows much about it :/ the hematologist hasn't been much help either.  I have improved on the low histamine diet.  I encourage everyone who thinks they may suffer from some sort of mast cell disease to look into that.  I am also trying to find a medication, either an antihistamine or a mast cell stabilizer, to help deal with symptoms.

In Topic: Worst Episode Ever

03 February 2014 - 08:58 AM

The pain radiation to your back and chest is concering and makes me think the gallbladder might be involved.  I definitely think a visit to the doctor is necessary.

In Topic: That Moment When You Find The Answers To It All

12 October 2013 - 09:12 PM

That's very interesting information.  What kind of doctor would I see to talk about mast cell diseases?  I haven't been to a doctor in 1.5 years.