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Member Since 16 Nov 2009
Offline Last Active Oct 11 2012 05:54 AM

#787340 Celiac Means No Coffee?

Posted by on 13 April 2012 - 07:45 AM

I had a friend who is on the paleo diet send me a link to this article. She seemed kind of offended that I didn't trust it. Honestly the terms "functional neurologist and functional endocrinologist" immediately raised a red flag.

I used to think I had some sort of reaction to coffee, not at all similar to my gluten reaction though. I would get tingly lips, tongue, and gums! I was drinking coffee with almond milk daily at this time. I ditched the almond milk and have had no issues. I drink coffee with milk or soy frequently!
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#777240 Peptide Based Immunotherapy

Posted by on 29 February 2012 - 06:04 AM

Celiac disease isn't an allergy, it's an autoimmune disease. I honestly don't think this idea would work and while you may not exhibit symptoms right away you would probably end up with damaging inflammation. The best way to have your cake and eat it to is to buy gluten free cake mix! Pamela's and Betty Crocker are both good! :)
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#769955 My Husband Doesn't Get It

Posted by on 01 February 2012 - 06:55 AM

You really need to sit down and have a talk with your husband about why he is acting this way. Celiac disease is a medical condition and it's not something to be embarrassed of. I can't understand why he doesn't want you to discuss it and gets upset when you do. Another factor is that it can be genetic so there is a chance your kids may inherit it and if so they too will need his understanding.

It sounds like his whole family needs educated on the illness. At the next party, I would insist on bringing my own food...that way people will see that you aren't dieting to lose weight. If someone is offended that you won't try their dish try asking if they'd treat someone allergic to nuts the same way for avoiding a dish? It's ridiculous to expect someone to harm their health to avoid hurt feelings. Tell your husband if he thinks just saying you have celiac is so bad just wait until you tell these food pushers EXACTLY what will happen to you if you eat gluten. Explain that if he won't let you tell them about your illness beforehand and he won't let you bring food you would have no choice but to explain in graphic detail why you are passing on a dish.
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#754630 An Update

Posted by on 07 December 2011 - 12:35 PM

It's a personal decision and only you know if the risk are worth the benefits. At least your doctor is aware so he can keep an eye on you and monitor for issues. I know how miserable you've been and I do wish you luck whatever you decide!
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#754628 Just Diagnosed And Feel Like Its The End Of The World!

Posted by on 07 December 2011 - 12:33 PM

Give it time and it will get easier. I've been on the diet for 2 years now and other than croissants and phyllo dough there is nothing I cannot find a suitable replacement for.

Udi's and Rudi's both have really good bread. Udi's makes a fantastic pizza crust. I made a bbq chicken pizza for dinner last night and it was delicious! There are so many good brands of gluten free pasta. I make spaghetti and lasagna regularly. I'm able to make wonderful cakes, cookies, and brownies. In fact the food is so good that my husband and daughter willing eat gluten free at home and seem to feel no deprivation!
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#753901 No Symptoms Suddenly?

Posted by on 05 December 2011 - 09:53 AM

In short no I would not keep experimenting with eating gluten. You are diagnosed celiac so you know it's harming you in some way whether you feel it or not. I would say that after being strict for a year and half you've had a lot of healing so your symptoms are naturally not as bad. However damage is being done and could be substantial by the time you exhibit symptoms! Don't play with fire! ;)
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#738192 If I Cheat On My Gluten Free Diet, Could I Be More Likely To Get Type 1 Diabe...

Posted by on 12 October 2011 - 12:54 PM

Good luck! Hope you have a great wedding and honeymoon.

I'm unsure from what you've written as to whether you have eaten gluten within the past few weeks and had little reaction or whether you've been 100% gluten free since diagnoses and are judging your gluten reaction on what you felt before going gluten free. If so I'm going to have to add to the posts urging you not to eat the cake. The first time I was glutened (100% by accident) I was in the bathroom within an hour. Plus when the urge hit I had literally less than 2 minutes to get to the bathroom!!! Thank God I was so close! Then I got a terrible rash, bloating, fatigue, joint aches, and continued diarrhea for the next couple of weeks. I can assure you that that reaction was nothing like what I felt before going gluten free.
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#738087 Making Fun Of Gluten Issues On New Cbs Show

Posted by on 12 October 2011 - 07:30 AM

The point is not so much that the joke was offensive, the point is that the joke makes people watching the show, some of who work in restaurants and prepare food think that this isn't a real medical issue. I don't care if a particular show offends me but if I go out to eat and someone disregards my gluten free order because they think I'm just being picky well that is a problem.
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#736943 Struggling To Cope With Boyfriend's Mother

Posted by on 07 October 2011 - 12:44 PM

No offense but it sounds like this lady really does not like you and this is her passive-aggressive attempt to get rid of you.

I would no go to the woman's house. It's dangerous and you are clearly not welcome. I wouldn't want to be where I wasn't welcome.

Hopefully your boyfriend can come up with a solution to see you outside of his mom's home.
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#736454 Making Fun Of Gluten Issues On New Cbs Show

Posted by on 05 October 2011 - 08:17 AM

I started to post about this yesterday but didn't have time! It made me mad too! I was liking the show and I understand the character is supposed to be abrasive and offensive but it's not cool to make fun of a medical condition! Two medical conditions in this case! As if we don't have enough trouble being taken seriously while dining out!
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#736143 Spouse Is Nonsupportive

Posted by on 04 October 2011 - 08:35 AM

In your situation I would start making meals that are naturally gluten free but are also completely normal. Chili, tacos, shepherd's pie, stir-fry (with gluten free soy sauce, there are cheap brands), roasted chicken w/ potatoes and veggies, ect... Don't even tell your husband for a week or so. Then announce that you've been on a gluten-free diet all week and he didn't even notice nor did it significantly raise your food bills. He will be left with little to argue about!
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#728599 I'm Miffed - Need Advice

Posted by on 08 September 2011 - 07:18 AM

I don't think anyone is against you. It's just that you are in the anger phase and most people responding are in the acceptance phase. Yes it 100% sucks to eat rice cakes when everyone else is eating pizza. That's why you should consider finding a good safe restaurant before the dinner and get take out! Honestly I've never had a particularly good meal at any wedding so you may find you aren't missing much. Plus even if they had gone with a restaurant that had a gluten-free menu you really don't want to eat during a rush time and a huge event like a wedding party could throw off some of their safety procedures. You may be better off not eating anyhow, especially since you have a bus and train ride and aren't sure of your reaction!

Honestly I will say the fact that they checked on a few gluten-free restaurants is more than most people would do. My inlaws can't even make one side dish without gluten so I can eat Thanksgiving dinner! If my sister in law even offered to find a gluten-free restaurant for a big event I'd probably die of shock!
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#726782 Should I Go For A Physical?

Posted by on 31 August 2011 - 09:53 AM

I agree with the above. Get the physical. It's really best to get a baseline reading on things when you are behaving normally. If things turn out well then you will know you can continue enjoying a variety of meals out. Otherwise you will know you need to be stricter about where you dine. Plus your new lady will likely be more understanding if you can say my bloodwork wasn't as good as the doctor expected and he says I need to be more careful.
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#726781 Eating Out

Posted by on 31 August 2011 - 09:44 AM

I usually ask if they can cook the burger on foil. Sometimes it helps to say you have an allergy because that is more easily understood than intolerance. Also be careful with chicken. I find it is usually has soy sauce. :(
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#724651 Celiac Cost Me Everything

Posted by on 22 August 2011 - 05:59 AM

I'm so sorry to hear about your dog! It's so hard to lose a close companion and my heart breaks for you!

I am also sorry to hear your relationship with your children was strained due to illness. Sadly it seems a lot of young people seem to blame their parents for every little thing these days. I'm 33 and it seems like my friends are just now at the age where they are starting to realize their parents did their best! Some people never realize and will continue a cycle to blame everyone else for their problems. You couldn't help being sick and they should be able to realize that! Resenting you for something beyond your control isn't fair!

You have tons of people here who care for you and love to talk to you! You've helped me and everyone on this board too many times to count! Hang in there! We're all here if you need to talk!
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