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ciavyn

Member Since 21 Nov 2009
Offline Last Active Aug 16 2012 05:15 PM
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#682042 Toaster Oven With gluten-free Cooking?

Posted by ciavyn on 09 March 2011 - 06:56 PM

Fish, chicken, pizza, oh my! You can do all sorts of things, and it can save on energy and cook faster because they are so small. I have one that I love, and wouldn't be without it. You can also find them with a toasting slot in the top, just for traditional toasting. I've had those as well. But you can bake cookies, main dishes, side dishes, french fries, etc.
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#681751 I Can't Stop Weeping...

Posted by ciavyn on 09 March 2011 - 05:53 AM

Y'all are breakin' my heart! I know how frustrating it is. I swear. I'm sensitive enough that I can't even have a crumb (though I don't believe I've had issues with airborne gluten...yet, anyway). But please remember something: folks everywhere have something. I feel like some days: do I need one more thing to complicate my life?! Really?! But then I see someone with severe arthritis or cancer or some other godawful disease, and I think, you know what? This is easier. Yes, it stinks. No doubt. But if you let it, it will force you to try other foods. You'll discover the joys of ethnic foods. You'll try vegetables and fruits you'd never consider, and you'll no longer zone out on eating too much bread before the appetizer even arrives (raise your hand if you done that a time or two...) You can grab a bag of chips at the convenience store, and no one can make you feel bad for not buying the bag of pretzels, instead...;) This is your frustration and annoyance...no doubt. But part of what helped me accept it was trying other foods that I wouldn't usually try, and discovered that I love Thai food and sushi, and as I find local places that know me, they'll cook things just for me. And I've talked my local health store into carrying other brands of gluten free items, as the call for them is even greater than before.

I'm not trying to sound all sunshine and roses -- you are right to be angry and frustrated. Feel it and get it out. You need to. But when you can, find the reasons to embrace this as part of your life. It will open doors you never considered, and it will make you so much more sensitive to people who struggle with other maladies and diseases. My compassion level, which I always thought was high, has gone through the roof since I've discovered I have celiac's.

Any way....(((((BIG HUG))))) to those of you who are really struggling through this. You are not alone, and you will get through it. You found a family here -- and more information and help than you can shake a stick at. Use it and be well.
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#681529 I Can't Stop Weeping...

Posted by ciavyn on 08 March 2011 - 12:28 PM

It's interesting -- I saw your title, and I thought, oh, come on! It's not that bad. But then I reviewed the last year and a half that I've been gluten free, and I remember the days when I cried because I didn't know what to order at the restaurant I was driving to in order to meet some friends. And when I wasn't sure what to make for dinner because I'd tired of my tiny repertoire of food choices. And when I got (get) sick and feel like crap for three weeks in a row, with a few days of torturing relief, all because I wasn't careful -- or maybe I was, and it still screwed me up. All this to say: I promise, it gets better. It seems impossible now. Grief is a normal process of giving something up. It's easy for me to sound blase about it, because...well, I feel great most of the time, so it's worth it. But when you are still new, and aren't always feeling fabulous (I felt like crap my first six months and wondered what the point of all of this was), it's hard to see the light at the end of the proverbial tunnel. You have a great support group here, and look to those around you who struggle with similar issues -- perhaps not food issues, but others in your life struggle with illness. My BF has clinical depression. Another friend has ongoing mental and physical issues. I have several gluten-free folks I know now. And you'll find your recipes that rock your world, the restaurants who will be thrilled to be careful just for you, and the people in your life who will want to cook for you (carefully...very carefully) because they love you. Don't give up hope -- it's so worth it on the backside. :)
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#681157 Need To Hear A Success Story!

Posted by ciavyn on 07 March 2011 - 12:43 PM

1.5 years gluten free. Took about 6-8 months to really feel "good." Then I wondered what on earth people were talking about when they talked about feeling like crap when they ate wheat. Then I got glutened royally. And I realized just how "good" good felt. Now I can't imagine purposely eating anything with gluten. If I want it that badly, I'll make it myself! But I feel fantastic, my bowels (I have GI symptoms) are happy cohabitators in my body, and we all get along really well. :) Hang in there. I know it's hard. I have several friends trying to transition from either diagnosis or IBS-confusion to see if it will work, and they are really struggling. Look forward folks around you who can encourage you. And don't lose hope. It's worth the wait and inconvenience. I feel fantastic, and I have lots of local restaurants who are willing to meet my needs.
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#611892 Always Hungry Cant Lose Weight!

Posted by ciavyn on 20 May 2010 - 09:15 AM

have you checked in with your doctor to rule out any thyroid or other issues? that would be my first suggestion. SOMETHING isn't right, and I am sure that is very frustrating. I can't think of anything to recommend until you can rule out some other illness or allergy.
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#611366 My Husband...

Posted by ciavyn on 18 May 2010 - 07:45 AM

I have struggled with similar feelings of stress and strain as our family has learned to live our gluten free lives. I have often thought that counseling would be very helpful, and I have used some counseling to work through some of the issues that have come up. But I do get frustrated that *experienced* counseling is not readily available. I have counseled with several people about our condition over the last four years (more so in the last year). And I am simply astonished how little the *professionals* seem to understand our situation. The most understanding and insight that I have found has been in support groups, and the online ones have been more beneficial for us than the real life ones. I think that discovering celiac and gluten intolerance is such an individual experience on top of it all!

So can anyone help me understand ways to find good counseling? Or are we better off continuing to seek counseling here, amongst a larger population of people that can understand the many facets that are very hard to recognize for an outside presence?

In the book, Fast Facts: Celiac Disease, page 21 states, "Furthermore, the negative impact of the gluten-free diet on the long-term psychosocial quality of life should be considered when measuring the cost/benefit of mass screening." I have yet to find more information and understanding into these issues, but they often seem to be the ones that we continue to struggle with. I wonder, is the negative impact on the psychosocial quality of life because we cannot freely eat with gluten eaters? Or is it that we feel unable to explain just how drastically sick gluten exposure makes us? Is it having to struggle with those feelings of impending doom that often accompanies getting glutened? Or is it the inability for others to identify with how we are feeling during our times of vulnerability, pain and suffering?

BTW - I still do not understand what "psychosocial quality of life" means, but the above statement seems like it would indicate that a celiac diagnosis would warrant counseling as a matter of course. I would love to better understand it all!


Okay, here's my best pop psychology -- keep in mind I have a degree in it, but that's not saying much, some days!

IMHO, this change in lifestyle is not drastically different from any other change demanded by another illness. Yes, it is a bit more difficult in some ways than others. But change is change. You are asking your entire family to understand something that, for now anyway, is considered a rare diagnosis at best. Think about a gay person, years ago, coming out to their families. It was embarrassing, humiliating, and caused massive rifts in families. to some degree, it is still like that today, depending on the family. Celiacs disease and gluten intolerance can cause a similar resentment and rift. People like myself, who were given the IBS BS, are self-diagnosed, because no one else is willing or able to do anything about it. Our families really think we're nuts! :) So counseling: I'd be for it!

To find the right counseling, I'd look for a therapist who is willing to read up and be educated about celiacs disease and gluten intolerance. Interview several before making a decision. See who fits best with your needs. Don't take the first name off your HMO chart or helpline suggestion. Ask for several and then call around.

More than anything, remember that it is a change for everybody, and you are asking them embrace something far outside the norm. It's hard being the person who gets sick when it feels like we are doing everything right...but imagine how difficult it is for those for whom it DOESN'T affect, and yet have to alter their lifestyles? I am NOT suggesting that bad behavior and purposeful glutening (AGH!) is ever appropriate...but that some counseling as everyone makes these adjustments may be helpful.
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#611352 Everyone Eats While I Watch: Your Honesty Needed, Please

Posted by ciavyn on 18 May 2010 - 06:59 AM

Wow. This is a tough situation, but I wonder if perhaps your husband might be a bit frustrated? Seems odd to me that a good man who's a good husband and father would prepare you ALL this time in advance that, oh by the way, me and the darling daughter will be eating at this amazing restaurant for a super special time, but they can't accommodate you and we want you to go along and eat nothing. That to me sounds like a man who's frustrated that his wife can't join them, and might be passive aggressively lashing out in his frustration. And I'm not blaming him one iota. This whole thing stinks! :)

Let us know what you decide. I do agree that contacting the restaurant before you make your decision is worthwhile. If they can NOT accommodate you, I leave you with this thought. How would you like your daughter to view this situation? Would you want her to sit there, simply to please others and be miserable, when this is certainly not that important of an event (it's a meal, for pity's sake! We have several a day!) or would you want her to take care of herself and her emotional health first, and stand up for herself?
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#609075 I Can't Commit To Gluten Free Without Some Sweets!

Posted by ciavyn on 05 May 2010 - 10:53 AM

I read the ingredients for Reese's Peanut Butter cups and found nothing bad in them but had a reaction to them. Since going gluten free 4 months now I don't crave the sweets like I used to. Still have set backs once in a while but doing ok.


It may be the peanut butter. I LOVE PB, and love Reese's, but I've learned to avoid it as my system canNOT tolerate PB. :(
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#609021 I Can't Commit To Gluten Free Without Some Sweets!

Posted by ciavyn on 05 May 2010 - 07:40 AM

Um chocolate?! Chocolate is gluten free baby! And gluten free brownies are super easy to make, and I guarantee I'm as busy if not busier than you! I make a batch, and freeze it. Then I take out a half a brownie -- remember, this is also about self-control -- and enjoy every morsel. I have chocolate at every meal, and ice cream several nights a week. :) If you love muffins, check out Udi's breads. Awesome muffins.

Listen, I'm addicted to sweets too -- I admit it. But I keep them a minimum and enjoy them when I have them. But you need to ask yourself why you would purposely hurt yourself for at least a day (for me, it's three weeks, so if you are getting away with only one day, I'm jealous!) just to have something that you could easily make yourself or buy at a convenience store? I know you didn't ask us for a psych analysis :) but we are worried about you. Think about why YOU and your well-being are not important enough to YOU -- and at your age, I would have done the same thing -- thank God I've learned more as I've gotten older. You deserve to feel good and healthy, and to enjoy some yummy sweets without paying for it with your health.

((hug))
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#608747 Question About 'cheese Puffs'

Posted by ciavyn on 04 May 2010 - 07:25 AM

Maltodextrin is considered gluten free. In the US it is derived from corn; in the Europe, they get it from wheat, but even then they claim it is gluten free after all the processing (gotta love the McD's argument). I've never had any problem with it.
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#606403 Your Significant Other

Posted by ciavyn on 23 April 2010 - 02:18 AM

It's going to depend on the person. My husband has no problem eating meals I make or letting me rule the kitchen, but he has his separate area where he has his gluten items, and he eats them regularly. It's not worth arguing over to me, as I can't blame him. So I just keep my stuff separate.
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#604754 Having A Hard Time W/ My Son And His Diagnosis

Posted by ciavyn on 15 April 2010 - 12:37 PM

Just another thought on this: maybe see if you can arrange for him to visit with some kids who are chronically ill in the hospital, or maybe help in a local food initiative for poor families. We support a little girl in Moldova (Eastern Europe), and I had to explain to my very spoiled kids what it means to not have food. Maybe get him involved in fundraising for a more serious illness. I'm running for Leukemia and Lymphoma Society. At my last fundraiser, my son wanted to know if he could have some of the money to buy a new bat. :sigh: I had to explain what the money was for and I asked him: which is more important? Your bat, or a life-saving treatment?

Help him to see that yes, this does suck, and those emotions are absolutely appropriate...but others have it much worse. He's got the good kind of sick that can be fixed. Also, maybe teach him how to make healthy snacks and fun treats for his friends. Help him be the cool kid who has awesome food at his house.

It is scary to eat when you have this. Even the good stuff sometimes makes you sick. I had a little pitty party fit the other day, I was so frustrated, and I'm way too old to act that way! But I had it out, and moved on. But I'm an adult, and I know how to channel my frustrations and emotions. He doesn't yet. Remind him it's okay to be mad, totally acceptable to be frustrated and angry at life...but he can't act on it all the time.

He's just scared...this is for life. It's not like a cold or poison ivy. That's a lot of weight for young kid.

Good luck, and let us know how things are going.
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#581789 How Do I Break The News?

Posted by ciavyn on 17 December 2009 - 04:18 AM

I gotta throw in here: how would it be any different if you had diabetes, or cancer? Trust me - been through the cancer scare...much, much worse than saying I have issues with gluten. At the end of the day, what matters is that you are healthier. If those around you don't appreciate your issues, well, who cares? You can love people who don't understand you, and still maintain your health and boundaries.

My point: you have to care about yourself MORE than you care about whether or not they accept you. I do NOT have a supportive family. They think I'm nuts, because I won't get an official diagnosis. Of course, no one's offering to pay for the tests, either. :P And I'm happy with the way my body has responded to the food trial I'm doing. So be it.

Take your own dishes of food to events, or eat before and just munch anything that is safe while you are someone's house. Take chips and dip, or hummus and celery, and fill up on that. No matter what, you will enjoy your time with others. We do too much around food, and not enough around those that matter.

You deserve to feel healthy, and to do what you need to to remain happy and feeling good. Perhaps of a few them need to see that lesson in action; maybe they will start doing them same for themselves.
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