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Member Since 12 Dec 2009
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#667018 Gluten Free Specific Food

Posted by on 10 January 2011 - 08:33 PM

Precious, what diet are you on? I am grain free too and I think I am finally starting to see a little progress in my health after being gluten-free for 15 months and not getting any better.

I started the SCD about 3 and a half months ago. How long have you been grain free?

Hi! I started on SCD but now I am just mostly on a paleo diet(primal). I've been grain-free since this past summer and I've noticed huge improvements, just gluten-free wasn't enough for me. I wasn't really getting much better til I went off grains and sugar. I still eat tubers though, so that's why I don't consider myself SCD.

I use nut flours and coconut flour for baking too. So delicious. I use buckwheat sometimes, it's not a grain. However I soak the flour before using it for baked goods.

Prior to going grain-free, aside from the horrible GI problems I continued to have, I had high blood pressure, borderline diabetic, fibromyalgia, asthma etc, etc. Things have calmed down a lot. I do miss rice though. I used to eat that all the time.
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#665980 How Are The Grain-Free Folks Doing?

Posted by on 06 January 2011 - 07:54 PM

Hey just thought I'd check with all the grain-free people! I know there's a few of us here, please let me know if you have any new food/stuff finds! I'm doing alright although I did land in the hospital for pneumonia last Friday(New Yrs Eve!). I'm doing much better now recuperating at home. The grain-free thing is going well, so far so good as far as tummy issues. I've even been able to tolerate small amounts of stuff with lactose now and the other day I ate 1/2 cup of rice and I was fine! Anyway I'll keep my paleo/primal diet.

I've been baking a lot with coconut flour right now. A few months ago I got to soaking almonds, drying them out and grinding them into flour to save money.

What's everyone eating now?

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#644734 Amy's Soups

Posted by on 07 October 2010 - 09:39 PM

I'm still feeling icky but I'm getting there. In response to Janet, I already threw the can so I don't have the batch number. Oh well. I learned my lesson.

I still feel like flu and feeling exhausted, no energy, swollen/achy joints, headache. My stomach's not so bad, thanks everyone for all your help!
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#640569 How Can We Have A Life?

Posted by on 18 September 2010 - 09:43 PM

You guys are advocating a very defensive position. After this last bout of sickness, I think I need to adapt that too.

I was despairing mostly about getting glutened, since I get so sick. Is getting so sick normal? It seems like other people on the board can get sick and feel miserable but still carry on with their lives.

If I do get sick I'm just going to have to suffer through it (like a flu)?

Sorry you're sick, hope you feel better soon. It feels flu-like too for me when I get glutened. I have a hard time getting out of bed, my joints all swell up, I get itchy rashes, headaches, brain fog, all sorts of pain in my body, plus the GI symptoms. I am terrified to be glutened and to eat anything with dairy. Soy too but the dairy reaction was pretty severe the last time.

I have not gone out to eat in about 2 months, it's pretty scary out there. I can't take any chances for me and my daughter. I make all our food from scratch. I have an extra freezer and stock up on food for later. I make large batches and freeze and take food with me for my DD and I wherever we go. I have 2 nice thermos and a big lunchbox, like PP mentioned, with a washable plastic liner.

HTH. I know it's hard. We've all been there. Take care. You know before I was diagnosed, I had a huge relapse of fibromyalgia a few years ago. I was in a lot of pain to the point I had to quit working, I was practically bedridden for 2 months. I attribute that to gluten. Since being gluten-free(and grain-free) I've been doing so much better.
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#636282 Anyone Keep A Gluten/celiac/food Blog?

Posted by on 01 September 2010 - 10:14 AM

I also have one but ditto on what PP said.
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#635599 Do You Pee A Lot?

Posted by on 29 August 2010 - 02:47 PM

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

I have a condition called Interstitial cystitis, one of the symptoms is frequent urination(without a UTI). The symptoms to UTI are similar so you might want to get checked. My GI dr said that Interstitial cystitis(IC) and celiac (and fibromyalgia) go together. I have all of them.

So to answer your question, if you have IC like me, yes it's related to celiac disease.

My symptoms were much more severe(extreme bladder pain and back pain, etc) than yours and the tests does cost a lot. My symptoms got better after being gluten and dairy-free.

Anyway there's so much info about IC, let me know if you need help, I'll be happy to point you to the right direction. If you do have it, there's a lot of things you can do to help, for me I was on the alkaline diet and that helped. But most of all being gluten-free helped me tremendously with the IC.
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#635236 Guess What Guess What!

Posted by on 27 August 2010 - 09:50 PM

That's great, I'm glad for you! I'm mostly grain-free(I'm getting there). I still eat white rice maybe once or twice a week. I use a lot of non-grain(buckwheat and quinoa are okay on the grain-free diet, they're not grains). I do feel better too.
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#633763 Where Do I Find Gluten Free Toothpaste?

Posted by on 22 August 2010 - 09:27 AM

I forgot to mention I also use Savonnerie, they have gluten-free (and top 8 free) lotions, soaps, lipbalms and shampoos. Sometimes they have sales, you can purchase this online. It's quite pricey but works really well. For DD I use California Baby, also pricey.

I also like Bare Minerals makeup.
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#633589 Where Do I Find Gluten Free Toothpaste?

Posted by on 21 August 2010 - 12:15 PM

I use Suave and Dove products and for toothpaste I use Tom's too. Right now I also have Kiss my Face toothpaste, does anyone know off the top of their head if they're gluten-free?

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#633396 *sigh* Went To The Gi, More Confused Than Ever

Posted by on 20 August 2010 - 02:16 PM

Why isn't she doing an endoscopy at the same time as the colonoscopy? Sounds like she doesn't even want to consider celiac in my opinion.

I had endoscopy and the colonoscopy done at the same time.
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#632991 "gluten Free Is All The Rage Now"

Posted by on 19 August 2010 - 06:37 AM

I have mixed feelings about this. Oh and it really irritates me when people think it's just a fad diet. I explain to people this is not a "fad diet"(because they say I'm skinny) for me. I do this to survive.
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#631888 Gluten Free Cooking...what Kind Of Cookware?

Posted by on 15 August 2010 - 12:40 PM

I am wanting to invest in some good...new wookware for just myself to use for gluten free cooking. Just wondering what the best kind of cookware to use is. Which is less porous and wont absorb and gluten if somebody accidently cooks with me cookware. Should I get stainless steel, cast iron? Any ideas? Thanks

You know my GI told me to change everything. He didn't seem to have problem with teflon but he advised stainless steel instead. Fine with me and so I splurged with a few items. I have a Saladmaster stainless steel set. Cast iron and Teflon will absorb gluten, also stoneware.

I also got a new toaster oven for me. DH has his own gluten toaster. However since me going gluten-free he's not been eating hardly anything w/ gluten at all and he said he feels better and even calls gluten "poison." LOL Probably because he's seen how sick I get from it. Both my DD and I are gluten and dairy-free.
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#631887 Gas On My Date...why? ;)

Posted by on 15 August 2010 - 12:31 PM

I have problems with Coke, so I'm thinking that's what gave you gas. I pretty much give up anything that has caramel and HFCS now, it makes me so gassy.
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#631746 What Is Your Response When People Say.....

Posted by on 14 August 2010 - 05:16 PM

Uggh I get the "eating disorder" comments too. They see I'm skinny and think how lucky I am! Whatever right? If they only knew. One girl thought I only eat one meal a day and that was it. I corrected her, told her I eat 3 meals a day and snack all day long! I am seriously hungry all the time. LOL For real!
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#631290 Uggh Now D And Cramping Again!

Posted by on 12 August 2010 - 09:00 PM

it might just be that it's just too much fiber for someone with a compromised digestive system to handle... not a big deal. when my little brother was a toddler- whenever he had "C", he would scream for my mom to get him apple juice to help him go.
maybe u could try mixing it with water- or waiting till he's more stable... or just picking a different juice from now on... (and not Pear juice- even more fructose AND fiber than apple)

I didn't have any today, I had some grape juice, not apple :).
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