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NE Mom

Member Since 18 Dec 2009
Offline Last Active Aug 14 2010 02:01 PM
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Topics I've Started

Help With Gene Testing Results

12 August 2010 - 12:01 PM

I had the gene testing done on my daughter but I'm not sure they did the right tests????? What do you think....

Results

HLA Class II, Locus DQB, Allele 1 Results:0303
HLA Class II, Locus DQB, Allele 2 Results: 0604
Serological Equivalent: DQ 6, 9

Explanation says "If less than 2 alleles are reported for a locus, the patient is likely homozygous"

I thought the gene testing was DQ 2 & 8?

What do you think the scores of 0303 & 0604 mean (greater than 2?)

Exhaustion Is Back

07 May 2010 - 01:38 PM

I've been gluten-free/CF for about five months. I've felt really great with the exception of when I've accidently glutened myself. However, the last two weeks I've noticed that the fatigue is starting to creep back. This is different then the extreme exhaustion I felt before. I'm wondering if I'm anemic or if my B12 is low. Has anyone had a similar experience after being gluten-free for awhile???

Help! Cupcakes & Muffins Are Gummy

05 March 2010 - 01:38 PM

For you experienced gluten-free cooks-every time I try to make a gluten-free, vegan cupcake I end up with a gumy, undercooked blob. The taste is good but the texture is way off. Any suggestions on what may be causing this and how to remedy it. I cook from scratch-no store bought mixes. I used Bette Hageman's gluten-free flour mix, xanathum gum, and egg replacer.

Mini Gluten Challenage

01 March 2010 - 01:19 PM

I've been gluten free for about 2 1/2 months. All tests were negative but I'm still waiting on the results from Enterolab. I reintroducted gluten this weekend (today is the third day) and I was expecting to be really sick by now but that isn't the case. I've noticed that I have a burning sensation in my legs and arms, feel more tired than a few days ago, today I have a slight headache, heart palpatations last night, and a little bit of brain fog. I feel like if I wasn't paying close attention I could easily miss these symptoms. I've never had GI symptoms.

If you reintroduced gluten did it take a while before you noticed major symptoms?

I'm feeling confused since I haven't been extremely sick the last few days. I did feel extremely better after removing the gluten two months and all my Fibro symptoms seemed to disappear.

I'd love to hear some of your experiences.....

No Gi Issues--What Where Your Symptoms?

28 February 2010 - 12:11 PM

Hi,

I was dx'd with Fibro a few years ago. Decided to try a gluten-free diet to see if I felt better. I noticed immediate improvements with the brain fog and exhaustion. The muscle pain took longer. I had the blood work done prior to going gluten-free and it was all negative. I believe I've been glutened a couple of times because the above symptoms returned.

I decided it was time to test the gluten-free diet and see if it was really the culprit. I ate two slices of bread yesterday and several real chocolate chip cookies. Today I again had bread and cookies. Last night I had an extremely foggy feeling and had a hard time staying awake but when I woke up this morning I felt really good--so I ate more gluten today. My typical symptoms have been consistent with those of Fibro except most Fibro patients feel at their worst in the morning and I have always felt good in the am and progressively worse as the day goes by. I was expecting to feel like I'd been hit by a truck by that really hasn't happened yet. Is two days too soon for some--should I continue to eat gluten for a few more days before I make any snap judgements?

I've never had GI issues caused by gluten (although I do from dairy). I'm wondering what symptoms others who are Gluten Intolerant and not full blown Celiac have experienced?

I've had the following:
brain fog
joint/muscle pain
extreme fatigue
depression
lack of motivation
burning sensation in legs and arms
extremely cold hands and feet
feeling like the inner core of my body is shivering and unable to get warm
Restless Legs
extremities falling asleep often
headaches