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Member Since 24 Dec 2009
Offline Last Active Feb 07 2012 02:22 PM

#642396 What To Do When People Dont Listen?

Posted by on 27 September 2010 - 09:51 AM

i just don't eat over sparing their feelings (moms included). moms generally want the best for you but if they don't fully understand the disease they don't *know* what the best is for you. so you just gotta be tough and more insistent then they are. EVENTUALLY they'll get it. :) oh and give them information overload.
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#638571 I Feel Like A Hypochondriac

Posted by on 10 September 2010 - 02:56 PM

i was told by my doctor that "perhaps i had a little IBS and a case of hypochondria". that was several years ago ... and i never went back to him. it took me over 13 years to get diagnosed properly. and that was the beginning of this year with enterolab testing and then confirmed with endo in may. for many it takes so much time to get diagnosed you can't help but feel like a hypochondriac. don't give up. find someone to talk to about your ptsd and hang in there doing all you can to stay gluten free. in time, you will heal. best wises. :)
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#637854 What's Your Favorite gluten-free "mainstream" Meal?

Posted by on 08 September 2010 - 03:57 AM

yesterday i made a big pot of soup beans (used pintos) and threw ham in it. usually i keep the bone of a ham from another supper for flavor but didn't have one so i got some boar's head ham and shredded it. i made a salad and some bob mill's gluten free corn bread to go with it and OH MAN i wanted to eat the whole pan. it was sooooooooooo good. no one believed it was gluten free bread. taste awesome. i got the cornbread mix from target ... i am gonna be stocking up on it! it wasn't expensive and so quick and easy to make.

another meal we like to eat is steak, brocoli and these smashed potatoes-

5 to 6 med scrubbed red or idaho potatoes
salt (to taste)
3 to 4 slices of cooked bacon chopped into small pieces(i use the already cooked bacon)
2 green onions chopped up (the dark part) save the other for something else
2 to 3 T butter (or more to taste)
1/2 c sour cream

cut and boil potatoes until fork tender(i leave the skin on because i'm too lazy but you could peel it if you don't like potato skin).
drain and dump back in the pot and smash with potato masher (leave as "chunky" as you desire)
add the rest of the ingredients and combine. serve it up and dig in!
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#635923 Dear Pf Changs,

Posted by on 31 August 2010 - 03:36 AM


We went to PF Changs post dxn and had a super yummy dinner, I got really sick the next day and I thought it was gluten but everyone said they are SUPER careful. Well a few months later found out I was allergic to soy, so I am sure that was what it was.

I am very very very sad I probably can't eat there anymore :(. I miss soy sauce and chinese type food.

there are others here allergic to soy and they said they can still eat there as long as you let them know gluten AND soy. :)
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#634607 Is Cancer Inevitable For Me?

Posted by on 25 August 2010 - 11:50 AM

unfortunately the "c" word can strike anyone. i battle with that thought daily. i hope it doesn't. harder to do than say but being positive and optimistic can help your physical health tremendously. prayer, meditation, faith and hope are important too. just keep staying away from what you *know* makes you sick. try to sleep, exercise and find people/things/hobbies that make you happy regularly. that's all anyone can do really. best wishes. :)
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#632774 This Is All So Totally New To Me..

Posted by on 18 August 2010 - 12:11 PM

i had to change my beauty products. i got cc from hydro. wheat in my hand lotion. i bet you anything keeping gluten out of your kiddos diets will help tremendously. my friend's son has done a complete turn around (age 7). its crazy how it effects your body physically, emotionally and mentally.

starbucks is safe ... make sure you tell them you are allergic to wheat. i haven't had any problems with my coffee drinks there.

on the go ... larabars, nuts, homemade trail mix with nuts, raisins, m&m's so you don't get any wheat or oats, apples or other fruit. i always take an insulated lunch bag (target has cute ones!). i fill it with a small container of natural peanut butter for caramel rice cakes, carrot sticks, sargento's low fat cheese sticks, the above mentioned. just depends on where i'm heading.

you will slowly figure it all out. (this site is filled with support and tips!) avoiding all traces of gluten (ingested or applied outward) will truly be life changing. different stages of relief will begin and you (and your hubs) will find all of the "craziness" will be worth it. i'm the only one in our family (for now) but they see the difference in me and at all costs do their best to help keep me gluten free. even as young as they are they try really hard to be careful. and my husband rocks. he's the best. :)

best wishes and welcome! :)

p.s. chocolate chex. OMG. its the best. udi bread is fantastic for sandwiches too.
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#629610 For Those With Hypothyroidism

Posted by on 06 August 2010 - 04:57 AM

i take levothyroxine. i've tried several other brands but for the past 2 years i've been on this. i've taken thyroid meds for 18 years and i've never heard of people taking some in the a.m. and some in the p.m. i always thought it was 1 pill a day in the a.m. i just get it checked once a year now. we'll see if being gluten free helps this condition (for me) next time i'm tested.
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#616689 Enterolab Testing & Validity?

Posted by on 14 June 2010 - 03:46 AM

i'm healing because of the decision to use enterolab. it got the ball rolling so to speak. if you get the negative blood work you get discouraged again especially when you *know* gluten is the problem. not everyone gets the positive biopsy via endoscopy either. in one book/research site it will say 1 test is not conclusive. in another, endoscopy is golden. yet another you are told to combine them along with dietary response and you get your diagnosis.
enterolab is out there to help. i had a great experience with them. they answered questions for me without weeks of waiting and leaving messages. celiac is very misunderstood by many doctors out there. mine included ... just didn't know much about it. as with any illness, you have to be proactive and work with the doctors to find out what's going on ... unless you are comfortable putting your health into their hands.
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#593379 Anyone Recover From Chronic Insomnia After Going gluten-free?

Posted by on 17 February 2010 - 03:53 PM

@Jackay, Char and Bluebonnet – wow, it’s really fascinating that so many of us “gluten intolerants” have sleep issues. My insomnia has been so bad that it prevented me from going to grad school and I could only hold a part-time job, so needless to say, I feel for all of you! Thanks so much for your comments and suggestions. Around the same time I went off gluten, I also discovered I’m hypothyroid, as well as melatonin, vitamin d, zinc and b12 deficient, so this might be contributing to the insomnia as well… Just out of curiosity, do any of you have thyroid issues?

Thanks to all of you and sweet dreams!

i have hypothyroid. i am now 6 weeks gluten free and haven't had much change in the sleep dept. still hoping for some good zzzz's.
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#587966 Withdrawal Wars

Posted by on 22 January 2010 - 04:55 AM

i am 12 days into gluten free while still waiting for labs to come back and i am feeling some of the symptoms you are. yesterday seemed particularly difficult and i thought maybe i accidentally ate gluten because i was feeling anxious and a little irritable the whole day. i got bloated and my joints were hurting pretty bad too. i still haven't slept good so i'm hoping that continuing on will benefit me there soon!!! no doubt i'm feeling better but i too am curious if this is "withdrawl" or accidental glutening. sorry i can't offer advice but can tell you, you aren't alone! hope you get to feeling better!
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