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Member Since 27 Dec 2009
Offline Last Active Apr 12 2015 05:52 AM

Posts I've Made

In Topic: Has Anyone Else's Young Child Only Had Chronic Stomach Ache?

16 December 2014 - 05:47 PM

Can't speak for any children except myself--


As a baby I would spit up a lot.  As a young child, this turned into throwing up more than was probably normal (I couldn't burp without throwing up until I was 6).


In elementary school I often had a stomachache after eating lunch.  I didn't eat breakfast before school because I never felt well when I ate breakfast either.  


Starting around middle school, I would get diarrhea after eating almost anything.  In high school it got worse.  In college I was diagnosed with ulcerative colitis.


I was 26 when I found out I couldn't have gluten.  There were a million signs before that, but it was never on anyone's radar.  (Except a friend who suggested it back when I was about 20 and suffering from some weird nutritional deficiencies that we blamed on the colitis.)  And don't even get me started on how my parents just ignored all my pains.  My mom worked in my school, and every day I would tell her I felt sick after lunch.  And every day she blamed it on recess, even when we had indoor recess.  Which doesn't even make sense.


So my advice is ... don't be like my parents.  Monitor it, keep track of what he's eating, and keep track of what kinds of symptoms he's having after he eats that.  It could be another food issue.  It could be something worse like colitis or crohn's that hasn't really, uh ... blossomed yet.  And I say that not to scare you, but just based on my own experience.  So I'm glad that you're taking his complaints seriously, and I hope you figure out what's going on.  


(By the way, I also have a family history of colitis and colon cancer on both sides, and I know what it's like when people don't think that's relevant.  Frustrating!)

You're story sounds like mine, expect my mother took me to specialist for years and they all thought she was "over involved". But yeah, symptoms as a child, always feeling ill, always vomiting, chronic nose bleeds, ulcers etc. I was only after she as diagnosed at 65 that we started looking at me. Hindsight is amazing isn't it? 

In Topic: What Is Your Reaction To Gluten?

16 December 2014 - 04:30 PM

If I eat a tiny bit of gluten - I get stomach acid that bubbles up in my throat and I can't swallow, then this kind of mucus thing where it just comes up and won't stop for hours. Its foul - and I have had it in cafes and stuff - so embarrassing.

If I eat lots of gluten (which I will never ever do ever again) I get intersussception. They explain it like the bowel telescopes on itself like it kind of eats a part of itself. It is the most painful and scary thin I have ever been through-I have been in labour and its very similar in pain and it lasts for hours except this can kill you and usually labour doesn't :rolleyes:

But basically if I eat gluten I know it instantly. I don't think I react to anything else whatsoever.

I've since found out that the stomach acid not being able to swallow thing is due to Eosiniphilic Esophagitis. They are co-morbid conditions, and there are a few people on this forum who also have both. 

In Topic: Safe Wines For Super- Sensitive People?

16 December 2014 - 04:27 PM

I'm not sure why, but red wine seems to be very bad for me. I can't work out why, I am fine with whites, champagne, cider, other spirits. But for some reason, if I have a couple of glasses of red I will puke all night long. I don't think it is gluten related, but I'd love to know why it happens!

In Topic: Reactions That Hospitalize Treatment

16 December 2014 - 04:25 PM

Yes, I started getting episodes of small bowel intussusception (which is a life threatening emergency) the last time I had it was after going gluten free for 6 weeks and then going out to dinner with friends to a Vietnamese and deciding I didn't want to be "one of those people", so I shared the same food as everyone else, and within 45 minutes I was projectile vomiting was in agonising pain and was rushed to hospital with intussusception again. I have never eaten gluten again (4 years) and never had intussusception since that night. 

In Topic: Anyone Else With Eosinophilic Esophagitis?

16 December 2014 - 04:18 PM

I know this is an old topic, but i have both EoE and Celiac as well. No food allergies at all though, my specialists (who are doing clinical trials with EoE) also say they see a lot of people that don't have allergies, but that it may also be caused by intolerances.The weird thing is one of my main triggers for EoE is gluten/wheat.