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Member Since 27 Dec 2009
Offline Last Active May 24 2015 10:24 PM

Posts I've Made

In Topic: Has Anyone Else's Young Child Only Had Chronic Stomach Ache?

20 May 2015 - 10:24 PM

So we put him gluten free after the negative bloods, we didn't want to push for a biopsy unless we had a bit more evidence. Belly pains stopped 100% . He has just gone back on gluten for a challenge and yep, belly pains are back with foul stools. I rang the coeliac society, and they said the new test they are working on that would only require 3 days of eating gluten could be 5 years away or more. I don't know if I can watch him in pain for 6 months (until he can get he biopsies done.)

In Topic: Has Anyone Else's Young Child Only Had Chronic Stomach Ache?

20 May 2015 - 10:21 PM

My daughter was diagnosed with "probable" Celiac when she was 15 months old.  She was too ill for the endoscopy with biopsy.  Her Celiac panel had some positives and the genetic test was positive for DQ2 and DQ8.
When she was 6 everything got worse again, same type of Celiac symptoms.  She was very good about the gluten free diet, but just getting sicker.  Her "whole" belly hurt, and she was vomiting up to 5 times a day.  (sometimes it was a burp of vomit in her mouth)  She went on to be diagnosed with Eosinophilic Esophagitis which is now being diagnosed more with Celiac.
(If the doctor does not order the test, the pathologist does not put the red dye on to the sample~ and the presence of the eosinphils is not detected.  Some damage should be seen in the esophagus such as furrowing, schatzi rings (spelling?), and creamy blotches, and other such damage.

I have EoE as well! Stupid disease, it really is horrid!

In Topic: Has Anyone Else's Young Child Only Had Chronic Stomach Ache?

16 December 2014 - 05:47 PM

Can't speak for any children except myself--


As a baby I would spit up a lot.  As a young child, this turned into throwing up more than was probably normal (I couldn't burp without throwing up until I was 6).


In elementary school I often had a stomachache after eating lunch.  I didn't eat breakfast before school because I never felt well when I ate breakfast either.  


Starting around middle school, I would get diarrhea after eating almost anything.  In high school it got worse.  In college I was diagnosed with ulcerative colitis.


I was 26 when I found out I couldn't have gluten.  There were a million signs before that, but it was never on anyone's radar.  (Except a friend who suggested it back when I was about 20 and suffering from some weird nutritional deficiencies that we blamed on the colitis.)  And don't even get me started on how my parents just ignored all my pains.  My mom worked in my school, and every day I would tell her I felt sick after lunch.  And every day she blamed it on recess, even when we had indoor recess.  Which doesn't even make sense.


So my advice is ... don't be like my parents.  Monitor it, keep track of what he's eating, and keep track of what kinds of symptoms he's having after he eats that.  It could be another food issue.  It could be something worse like colitis or crohn's that hasn't really, uh ... blossomed yet.  And I say that not to scare you, but just based on my own experience.  So I'm glad that you're taking his complaints seriously, and I hope you figure out what's going on.  


(By the way, I also have a family history of colitis and colon cancer on both sides, and I know what it's like when people don't think that's relevant.  Frustrating!)

You're story sounds like mine, expect my mother took me to specialist for years and they all thought she was "over involved". But yeah, symptoms as a child, always feeling ill, always vomiting, chronic nose bleeds, ulcers etc. I was only after she as diagnosed at 65 that we started looking at me. Hindsight is amazing isn't it? 

In Topic: What Is Your Reaction To Gluten?

16 December 2014 - 04:30 PM

If I eat a tiny bit of gluten - I get stomach acid that bubbles up in my throat and I can't swallow, then this kind of mucus thing where it just comes up and won't stop for hours. Its foul - and I have had it in cafes and stuff - so embarrassing.

If I eat lots of gluten (which I will never ever do ever again) I get intersussception. They explain it like the bowel telescopes on itself like it kind of eats a part of itself. It is the most painful and scary thin I have ever been through-I have been in labour and its very similar in pain and it lasts for hours except this can kill you and usually labour doesn't :rolleyes:

But basically if I eat gluten I know it instantly. I don't think I react to anything else whatsoever.

I've since found out that the stomach acid not being able to swallow thing is due to Eosiniphilic Esophagitis. They are co-morbid conditions, and there are a few people on this forum who also have both. 

In Topic: Safe Wines For Super- Sensitive People?

16 December 2014 - 04:27 PM

I'm not sure why, but red wine seems to be very bad for me. I can't work out why, I am fine with whites, champagne, cider, other spirits. But for some reason, if I have a couple of glasses of red I will puke all night long. I don't think it is gluten related, but I'd love to know why it happens!

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