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beebs

Member Since 27 Dec 2009
Offline Last Active Jul 09 2014 12:24 AM
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Posts I've Made

In Topic: While Tests Say No I Think Ds Has Celiac.

06 July 2014 - 07:38 PM

Wow, he had a very bloated tummy didn't he. Sounds so much like what my son went/is going through - over the last 4 years. 


In Topic: What Would You Do?

02 July 2014 - 10:32 PM

Thansk for your responses, and thanks nvsmom for the info on the marsh scores. Well, I think we are on the right track, the kids have only been gluten free for a week, went to a cafe today and we let DS have a burger, didn't even think about gluten to be honest. I forgot all about it. Within an hour he was white as a sheet and complaining of belly pains which led to vomiting. 

 

It makes me so annoyed that they basically want your child to be eating gluten for months on a challenge, getting sick all the time to have a biopsy that may not come back positive anyway when it is clearly gluten. He gets sick from gluten and has done his whole life and no one will call it because his biopsy was marsh 2 and not marsh 3 gah! 


In Topic: What Would You Do?

01 July 2014 - 10:46 PM

He is one of the best GIs in the country, so I am reluctant to leave him.  But they redid his bloods recently before he was gluten free and they showed up negative again. Which really, my bloods have always shown up negative and I am deffo coeliac - so I don't really trust the bloods anyway. 

 

What does Marsh 2 changes mean in terms of coeliac? Can it mean other things too is that why they can't diagnose unless it is 3 or 4?


In Topic: Not Diagnosed Yet

30 June 2014 - 09:09 PM

Yes. The biopsy came back positive for increase in intraepithelial lymphocytes.


quote name="notme!" post="922124" timestamp="1404179706"]sorry you are sick :(  but if you want the test to be accurate, you need to keep eating the gluten - i think a few slices of bread per day should do it, though.  celiac walks hand in hand with thyroid, but thyroid problems also benefit from gluten free diet.  get tested - hang in there!  did they do biopsies when they did your endoscopy?
[/quote]

I didn't realise that could be an early indication of coeliac, that is exactly what it said on my sons biopsy report...