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Member Since 27 Dec 2009
Offline Last Active May 24 2015 10:24 PM

#821992 Being Celiac In America Is Unacceptable!

Posted by on 06 September 2012 - 02:28 PM

really don't see that is that big a deal changing the labels on food to include a statement about gluten "this food contains gluten", "this food may contain traces of gluten". I for one am very thankful that I live in a place that has labels like that on all food made in this country.
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#813402 Misdiagnosed?

Posted by on 24 July 2012 - 03:36 PM

Mystery diagnosis, I am with you, I am a very reluctant gluten free person, and I find it especially hard not having a diagnosis. If I had a proper one, then I may not be sitting thinking at least once a day "maybe it isn't gluten, maybe I am on the wrong track".

Unfortunately the testing is not 100% and lots of us are in the same boat.

I too hate the whole 'just go gluten free if it makes you feel better'- I understand the thought process behind it, but I really am a person who needs evidence -solid evidence numbers, facts and figures. I don't know why I am like that - I just am. I thrive on stats and graphs. Although - of course, sometimes that isn't possible and we just have to get on being gluten free. doh!
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#810137 Hot Enough For You?

Posted by on 10 July 2012 - 03:39 PM

haha, It is winter here so it is freezing, I have to scrape the ice off the car in the morning!
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#809434 Seriously?

Posted by on 08 July 2012 - 12:20 AM

My neighbor A NURSE said...Oh, I could never do that, I love bread too much. :rolleyes: :rolleyes: :rolleyes:

I said that to my mum, it has come back to bite me in the arse now though. Doh! Karma at it's best.
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#797660 Life Has A Way Of Playing Cruel Jokes On You...

Posted by on 22 May 2012 - 07:53 PM

Yeah, It does get better. I consider myself a total foodie, not just cooking but eating out ALL the time, new cafes and restaurants and never a care in the world. It is hard, and I still have that horrible feeling about it. But it gets better. And now if I stumble on a great cafe etc that has a gluten free menu I just have the best time. You start to appreciate the little things more. You will get back into your cooking and eventually you won't even notice it anymore.
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#787116 Complicated Case With Previous Autoimmune Dx - Could It Be Celiac? Help!

Posted by on 12 April 2012 - 02:01 PM

Oh yes, you need to be forceful, ask for the tests and make sure you read up as much as you can on here. There is a high rate of false negs - so if it is neg you need to know what you are talking about. Also - undiagnosed Celiac disease can trigger other autoimmune diseases, so its possible that those other symptoms you have are another autoimmune disease entirely (I have 3). Good luck!
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#785609 Autism Rising

Posted by on 05 April 2012 - 09:10 PM

Labels, I can see what you mean about labels, but lots of high functioning autistic people still need help, they need the label in order to access that help. I personally don't think labels are bad.
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#785564 If You Have Celiac Disease, Would You Keep Your Children Gluten Free For Life...

Posted by on 05 April 2012 - 05:05 PM

PS - isn't it generally acknowledged that the label 'IBS' is Dr speak for "I don't know, you have stomach issues, but I just don't know what they are". That is what I am getting the more reading I do on the subject.
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#770684 Australians And New Zealanders Hellooooooo :)

Posted by on 03 February 2012 - 03:13 PM

Have you thought of soap nuts diandliam? I am just about to put an order in myself. No chemicals, completely enviro friendly and cheap too! works out about 12 c a wash. Have a google.
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#766662 Mom Wants Me To End It Over His Celiac

Posted by on 20 January 2012 - 05:32 PM

Wow - I had never even considered someone would end a relationship over something like coeliac - just seems such a non issue. Shame on your mum - if he is the man you love and coeliac is the worst thing you guys ever have to go through then I think you'd be having a brilliant life!
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#764458 Why Do I Now Get Sick From Gluten When I Didn't Before Going Gluten Free

Posted by on 12 January 2012 - 06:31 PM

But anyhow -back to your original post - your reaction to gluten will likely become more and more severe. Its the way of the world - mine are far worse now than when I was eating it every day. Doh!
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#761275 How Do You Mentally Cope With Celiac?

Posted by on 31 December 2011 - 08:27 PM

You know, after what you have been though, being gluten free would be a walk in the park compared!
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#758511 Mother Drives Me Nuts Cooking Gluten Laden Foods

Posted by on 21 December 2011 - 12:26 AM

Oh dear - we all make mistakes. I was accidentally glutening the whole family for months because I forgot to check one bottle of sauce. We live and learn etc etc. I personally would NOT feel thankful to receive gluten as a gift. But I have also learnt the hard way - that even when someone non gluten free goes to so much trouble to make a lovely gluten-free meal - that cross contamination can happen.

But it is okay of course to feel bad. That is what we are all here for!! So we can all vent to each other!
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#754057 Why Do Some People Feel They *must* Have An Endoscopy?

Posted by on 05 December 2011 - 07:14 PM

But we know that it's not true that a neg biopsy doesn't mean you aren't celiac:)
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#753015 Barrett's Esophagus - Gluten Related?

Posted by on 02 December 2011 - 04:35 PM

Yes- I've had two neg for H.Pylori, haven't had one since going gluten free - my last one was just before I went gluten free took nexium for it and then haven't needed anything since.
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