I am trying to get into a GI asap for testing of my little boy, who has had issues for years and years. He had a biopsy when he was 18 months which was borderline and not enough for a diagnosis because he had projectile vomitting, bad poos an severe reflux his whole life. Fast forward to now and he has been having chronic belly pains for the last 6 months. bad poos (his whole life) and low iron (his whole life). Belly pains are getting in the way of every day life and have been so severe I have taken him to ER over it He had coeliac bloods done a few months ago and they came back negative. Mine are also always negative, and I am coeliac so I don't trust them anyway.
I took him off gluten last week and an instant improvement.
I gave him gluten twice in the last week - once ended up bad belly pains and vomiting the other time ended up lying and writhing in pain for 7 hours with a "sore belly".
I spoke to the coeliac society today - they told me to get him tested again - it is an 8-10 week wait just to see the paed GIs at the hospital.
How did you get through your child being so sick and in pain for that long? Can I give him anything to make him feel better?
I hate this - I hate having to watch him get ill for so long. I'm not sure if I can do it to be honest.