Hi Jamie, I feel your pain. I am having a lot of the same problems you are and add to that acne. Not great when you are a teenager, even worse when you are 30! I stumbled on to info that said adult acne can be a symptom of gluten sensitivity.
I am concerned with the fact of being tested if on a gluten free diet. I started suspecting that I had a gluten sensitivity and began to change my diet. Unfortunately I can't tolerate dairy either. I realized that while I have been mostly off of gluten that I have been eating it hidden in stuff. I have been having the same digestive problems as before and made a doctor appointment to establish care and get this figured out. Thankfully I got a great doctor. He ordered a celiac panel along with various other allergy tests. Is there a possibility that my test can come back negative even if I have been being exposed to it in small doses? My son also just had the test done because he was having bad stomach pains regularly. We have to wait 10 days for the results. Waiting is a killer! I have to wait so long because I am in Alaska and they send it to a lab in Washington state.
From reading things on this message board I see that it is all highly varied and anything can happen! My doctor said that if the test comes back negative then he would have me come back in and we would talk about it. I do not want to have to do a gluten challenge! I am a full time student and mother of 3. I can only imagine what my face will look like if I have to eat it again!
I hate to hear that you are having some of the same problems as myself. I would never wish them on anyone as terrible as they are for me. From talking with my doctor he says that you should be on a normal diet for 2 weeks before the test. So if having gluten in small doses is normal to you then I think your test should come back accurately. I wish you the best!