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Emsstacey

Member Since 10 Jan 2010
Offline Last Active Apr 28 2012 09:41 AM
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Posts I've Made

In Topic: How To Proceed

13 April 2012 - 06:58 PM

We actually sound very similar! I had (and still do have some minor) neuro issues... tingling hands, leg, etc... and lots of joint pain as well as GI issues. My only positive test was the DGP but my hip showed osteopenia (at 30 years old), and my bloodwork also showed extremely low vit. d and positive for Lyme.

I have gone back and forth because I had an EGD a long time ago looking and it was negative, but my GI/Celiac-ish symptoms have worsened and I am now going gluten-free. I have tried to get my doctors to test further but they always discourage it. THey are very uninformed.

Just fyi... someone going through similar testing and symptoms.

In Topic: Dgp/iga Results Positive

29 September 2011 - 07:41 AM

Wow. It sounds like a lot more people with only the positive DGP. I guess that I need to go retest and find a GI. I would be very grateful if you update after your scope!

In Topic: Dgp/iga Results Positive

27 September 2011 - 04:59 AM

gfcolorado, are you saying that only your deamidated gliadin was positive and your biopsy was positive, too?

I ask because my only antibody that came back positive was the deamidated gliadin at a 31. I did not get the scope because I had one done about 10 years ago looking for the same thing. I never did get the results, though, just told it was ok. I'm actually going to go pick them up this week to see for myself what they say.

Just curious! Thanks!

In Topic: "blisters" In Mouth?

27 September 2011 - 04:55 AM

I get something similar. It often happens after eating but I never narrowed it down to one thing in particular... pizza is especially bad, though.

I will get a clear bump on the back/top of my mouth, on my palette. It doesn't hurt, I can just feel it sticking out. It is really weird because I get mouth sores and have as long as I can remember but this is totally different. It seems to pop up in response to something specific.

Just for the record, I am still eating gluten but still noticed it when Gluten-Free as well.

In Topic: 6 Year Old With Upcoming Gi Appt.

23 April 2011 - 03:14 PM

Oddly, my daughter has worsened since we made the appointment. She is going to the bathroom an average of 5 times/day and often within 30 minutes of eating. There is also undigested food visible most of the time as well as being loose and floaty.

Does this still sound celiac? I am thinking she is sounding more celiac each passing day. She is also so easily upset and her eyes just look pitiful... dark circles and puffy.

I am going to call Monday morning to see if they can put us on a cancellation list to see her sooner.