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seven

Member Since 11 Jan 2010
Offline Last Active Jan 21 2010 10:44 PM
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Topics I've Started

Social Implications

14 January 2010 - 09:48 AM

I found out earlier this week that I have celiac disease. At first, removing gluten from my diet sounded difficult but doable. As I learn more, I'm realizing that pretty much everything that I come in contact with needs to be evaluated for gluten content or contamination. For someone who is 28 years old, who eats out with friends/family almost exclusively, it seems like becoming gluten-free is going to be nearly impossible without making significant changes to my social life.

If you were diagnosed as an adult, how did you handle the transition?

Thanks!

Unable To See Threads That I Start

12 January 2010 - 12:23 PM

Hello-

I am a new member and last night I posted a topic in the "Celiac Disease - Pre-Diagnosis, Testing & Symptoms" area. When I go to that area, my thread does not show up. The only way I can find it is by going to my profile and searching for my threads. Am I doing something wrong?

Less importantly, what does "pinned" mean in the topic list?

Thanks,

-Andrew

Newcomer In Michigan, Diagnosed Today

11 January 2010 - 05:11 PM

Hello, I’m a 28 male posting for the first time...

I had an appointment with my GI today where after a few years of office visits and tests I was given the official diagnosis of celiac disease. I had no real knowledge of celiac disease until about a week ago when I received the results of an endoscopy from a week earlier. The endoscopy showed “a blotchy type of erythema that was nonspecific in nature but somewhat abnormal”, along with a “slightly blunted villous architecture,” and concluded by saying that there were “changes suggestive of incipient celiac disease.” My GI ordered blood work to confirm, results follow:

_______________________________Result______Ref. Range
Gladin IgA Antibody_________________22________( - < 20 )
Gladin IgG Antibody_________________44________( - < 20 )
Tissue Transglutaminase IgG__________3________( - < 20 )

These results confirmed the suggested celiac disease findings in the endoscopy and led to the official diagnosis. It feels surreal to have a diagnosis that explains so many issues that I previously thought were unrelated and that I had grown to live with. In additional to abdominal pain and a frequent gurgling/gas/diarrhea, I have an almost constant dull headache that can get very severe at times, I have a hard time sleeping despite always feeling tired and run down, I suffer from depression/anxiety, my skin itches (especially my legs and arms), and I have patchy psoriasis in various places and over the majority of my scalp.

So here are my questions:

1. How do you interpret my blood work? Gladin IgA is only slightly high, Gladin IgG (seems) very high, and Tissue Transglutaminase IgG is normal. I could logically guess at what that means but I’d like input from someone with more knowledge than myself..

2. Do you feel that the information provided above from the endoscopy and blood work is enough to provide an official diagnosis of celiac disease?

I’m excited that so many things could be improved by a (major) diet modification, but since my gastro problems, let alone the other problems, have never responded significantly to any treatment (various PPI’s), my mind can’t seem to grasp the fact that so many things could be improved by removing one thing from my diet. I understand the differences between PPI’s and a gluten free diet, it just hasn’t has time to really sink in yet and it doesn’t feel real. Anyone else experience these thoughts? How did you feel when you were diagnosed?

This board has been a great resource for a newcomer. Thanks to the board members and admins for providing such a great wealth of information.

-Andrew