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Member Since 26 Jan 2010
Offline Last Active Private

Posts I've Made

In Topic: Questions: Skin Biopsy Of Dh

Today, 04:26 AM

ooops...one last thing i wanted to ask...before my week is out....have any of you done Entero labs? and what do you think....i know its not the same....but it would be SOMETHING i could have on paper....shoud a fecal test show ANYTHING related.....


i think my primary should have OFFERED that to me as well.....but he doesnt seem too keen on offering anything.....not a regular blood panel, not thryoid....i mean i AM 51....so you would think.....esp. since he knows im concerned....


its too late for me to change medical groups i think for this year....unfortunately.



A MD will not offer things like Enterolab stool testing as they are not considered legitimate medical testing.  I doubt any insurance would pay for it either.





"Why don’t you recognize tests (stool tests or otherwise) for non-celiac gluten sensitivity that are currently available through companies like Enterolab or Cyrex?

We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support.

Enterolab has never successfully published anything on the accuracy of stool tests (nor have any other stool test manufacturers, to our knowledge) making it difficult to confirm the research results. Because of this, we must make our decisions based on what has been published; Harvard, UCSD, and the American College of Gastroenterology all agree that stool tests are simply not sensitive or specific enough methods in screening for celiac disease......"

In Topic: Dq8

20 December 2014 - 02:36 PM

I now having the gene does not necessarily mean you have celiac but this person had been told having DQ8 only means you can never get celiac disease.  My understanding was this gene is rarer but you can still become celiac with it.


I would go with the Celiac experts on this one.

From my link- 


"Two genes are responsible for celiac disease (HLA-DQ2 & HLA-DQ8). If you have either of them, then you have the potential for the disease to activate at any age. "

In Topic: Dq8

20 December 2014 - 02:19 PM



it is a Celiac gene.  Having the gene alone, does not make a Celiac diagnosis. About 30 % of people have one of the genes for Celiac.  But only 1% have Celiac.

In Topic: What About The Gluten In Rice, Corn And Other Grains Than Wheat, Barley &...

20 December 2014 - 10:29 AM

Dear cyclinlady, thanks for your comments but I would like this thread to be about answering the specific question above.





I think she was trying to help you figure out what is making you feel bad by asking about the more common issues we see on this forum.


I did answer your question about other grains. Look at the link, too.  I guess that is the end of this discussion?  :)

In Topic: Am I Or Aren't I

20 December 2014 - 07:29 AM

Just a reminder - if you are expecting the GI to do an endoscopy to diagnose .celiac, you have to be eating a normal gluten diet.