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Member Since 26 Jan 2010
Offline Last Active Private

Posts I've Made

In Topic: Please Help... Diagnostic Question...need More Information

Today, 06:08 AM

Assuming they actually ran the correct gene test, then they should be looking for other reasons you have intestinal damage. Have you actually seen the actual test results and pathology reports? Might be a good idea to get a copy of that and ask them to explain the damage they saw.


Other causes of villous atrophy:


In Topic: The What's For Dinner Tonight Chat

Today, 05:17 AM

Brown sugar I just opened to make the ribs and since opening is in a brand new storage container so that should be ok.  I forgot coffee and coffee creamer, N-joy brand fake creamer but it says gluten-free online so who knows.  The coffee is "Donut House" , not flavored, Keruig stuff.  It's also hard to know if it's a response right away to what I'm eating--so the rice chex or peaches, or from last night, ribs and potatoes.  I LOVE Ore-Ida french fries and hash browns :D.  Did you know they sell chopped frozen onions too :D.

I use that Keruig coffee! I have been using the frozen onions for .........my whole life!

Anyway..... I am back to - cut out the processed, multi- ingredient stuff for a couple of weeks and see if you feel better. Then add them in one at a time.

In Topic: The What's For Dinner Tonight Chat

Today, 05:07 AM

Something has been setting off my stomach the past couple days.  I don't know if it's gluten or just maybe a bug of some kind??  I haven't eaten out, house is gluten-free so no idea what it could be.  Only thing I can think of is maybe Rice Chex and maybe I just can't do rice for a while??  I've had rice chex with peaches the past couple days, Udi bread with peanut butter (that was new and not exposed to gluten stuff), Ore Ida hash browns--says gluten-free on the bag, BBQ ribs--BBQ sauce says gluten-free but I do a rub of a BBQ spice mix that is gluten-free and brown sugar.  Is brown sugar not gluten-free????



Yes.  Brown sugar is gluten-free.  Unless its left-over from gluten baking and might have had measuring cups traveling from the flour into the sugar?


There are a lot of ingredients in all those foods -Chex, Udi's, BBQ sauce, etc.  Hard to figure out what might be an issue.  Maybe try less processed foods for a few days?  I don't know what it is about gluten-free breads, gums maybe?  But I can't eat them everyday or my system gets "off".  Ore Ida potato products I could eat everyday......  and I have the thighs to prove it!   :lol:

In Topic: Muscle Pain

Today, 03:54 AM

I don't know if my muscle pain is related to my Celiac or if it is something completely different. For the last week or so I have been having extreme pain in my muscles in my right arm from my fingers to my elbow. It feels like when you have to crack you knuckles but there's nothing I can do to relieve the pain. I am starting to feel it a little bit on my left side too. I havent seen anyone else write about it so now I am worried that its something completely unrelated. 





For only a week?  And just one arm?  Sounds like you injured or strained it.

In Topic: Glucose Syrup From Poland

Today, 03:31 AM

So, where can I buy the glucose syrup?



I think they are talking about it as an ingredient in different products - not separately.