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Member Since 26 Jan 2010
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#947756 Cutting Out Corn

Posted by on 25 June 2015 - 09:48 AM

If I remember correctly, you do not have Celiac? Or weren't tested? I am getting dizzy jumping from one topic to another.   :o  Maybe keep some of these questions in one place with all the info we need to know?



Maybe it's not gluten but something else? You might need to go to a few basic foods and slowly add things back to see if any food is your real issue.

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#947382 Honesty Vs Glutening

Posted by on 19 June 2015 - 08:23 AM

As a fully diagnosed Celiac (off the chart blood tests, every biopsy completely "flattened" and enough Celiac genes for several people) I have 2 things to say about this -


1.  I don't want you to think NCGI when it might be something else.  So keep a look out for patterns or other things that might be your problem.  


2.  As long as you are as strict as a Celiac needs to be, call yourself Celiac for the purposes of eating out or with others.  Don't let me catch you crying "Celiac!  Give me gluten-free food" and then see you drinking a regular beer with it!  or having a bite of someone's birthday cake!   :D

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#946538 Cheating On The Diet

Posted by on 02 June 2015 - 03:54 PM

The reason why they did a test is I had my 10 year colonoscopy and they did a biopsy. I ask doctor why they did that and he said he does t with every patient. Then after I have had 2 blood test and very high

So you have intestinal damage - whether you directly feel it or not. Have you checked your bone density? Are you anemic? Low on B12, D, etc. those are all things that can be caused by Celiac disease.
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#946399 Talenti's New Stance On gluten-free Labeling

Posted by on 31 May 2015 - 05:28 PM

Same exact product - only difference is 2 words printed on the package?

Edit- ugh! Now you have me really wanting some Sea salt caramel Talenti right now! And I am all out! :(
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#946075 Test Results And Gluten Challenge (Failure) More Confused

Posted by on 22 May 2015 - 07:13 PM

Aha! Doorknob! That's the G rated word I was looking for! Lol :0
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#945764 More, Worse Symptoms,.... Depression Taking Hold.

Posted by on 17 May 2015 - 12:09 PM

If you want some suggestions for things that require little or no refrigeration -

go Picnic boxes - you can check the contents on line for the gluten-free ones and use them as suggestions to make your own boxes http://www.gopicnic....et#.VVj1mHA8KrU

Hummus and crackers - there are a couple of kinds in tubes that are shelf stable. http://www.wildgardenhummus.com

Carrots and many fruits don't require much - a cooler with a Tupperware of ice and a towel over the cooler should be fine all day.
There are some individual serving cheeses that don't need refrigeration - I have found them at World Market.
Nut & protein bars - can get Kind bars at .target in a 6 pack for a good price. Or Nature Valley has a gluten-free almond one and many many others
cereal like Chex - get milk off the breakfast buffet at the hotel or get a flavor like cinnamon and eat it dry ( yummy)
Homemade Chex mix with nuts, M & Ms, gluten-free pretzels, etc.
PB or almond butter and crackers or some bread for the first day or two
Toast it bags so you can use the gluteny toaster http://www.ebay.com/...%3D832268947613
Freeze some scrambled eggs in a muffin pan - cooler and the first breakfast could be those
Freeze a chunk of soup or chili to eat the first night, frozen food will keep the cooler colder
Freeze a sandwich & put in the cooler for the next day's lunch
Noodle cups ( with a microwave). https://www.rightfoo...category_id=160

(And several other brands)

Potatoes- http://idahoan.com/c...ts/gluten-free/

If you can get to a grocery -
Microwave bake a potato or sweet potato
Cold cuts
Freezer meals like Lean Cuisine ( assumes you have access to a microwave). http://www.celiac.co...0-lean-cuisine/
Other gluten-free freezer things like .annies, Evol, etc - more expensive but probably about the same or cheaper than a $6 meal at McDonalds
All kinds of things really with a microwave - soups ( Progresso is the cheapest), canned baked beans, Dinty Moore is gluten-free I think, retired beans and chips, instant mashed potato cups gluten-free?, microwave rice, etc


Edit to add links
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#945597 Other Ways To Determine Celiac Diagnosis For Those Who Have Been Gluten-Free?

Posted by on 13 May 2015 - 01:38 PM

You should be eating gluten to be tested for Celiac - blood tests or endoscopy. Stool tests cannot tell you if you have Celiac.

The only mention of stool testing is the ones for non- Celiac gluten sensitivity because there aren't any for Celiac at this time.


"Why don’t you recognize tests (stool tests or otherwise) for non-celiac gluten sensitivity that are currently available through companies like Enterolab or Cyrex?
We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support."


"A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.
Prior to blood testing we recommend 12 weeks of eating gluten.
Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten."
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#945519 Also Intolerant To Casein (Dairy), Soy And/or Corn?

Posted by on 12 May 2015 - 07:12 AM

I don't think i have celiacs? as i now include organic rye bread, in small amounts, 6 slices a week. And have no noticable problems. Wouldn't a celiac, as opposed to a gluten intolerant, have an immediate reaction to any type of wheat?


Not necessarily.  Many don't get an "immediate" reaction.  It can take hours or even a day to react.  Sometimes, people don't even get a reaction every time.  Probably has to do with amounts of gluten, stomach contents, a reaction that you don't realize is from gluten (like a headache, for example), probably other reasons.  


I can see you are really sure you don't want to be diagnosed with Celiac disease.  I think we all were. :unsure:   Good luck to you.

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#944701 Cross Contamination In Food Processes

Posted by on 26 April 2015 - 01:45 PM

If you are really that sensitive, I am surprised you needed to ask! :). Even for the majority of Celiacs that are not sensitive to " undetectable pms", a real kiss ( if you know what I mean ;) ) could transfer gluten from one mouth to another.
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#944699 Headaches

Posted by on 26 April 2015 - 01:39 PM

Are you anemic? That's common for a new Celiac. That would explain the headaches upon exercise. and explain why they are getting better as you heal.
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#944641 I Want To Tell You All Thank You

Posted by on 25 April 2015 - 03:35 PM

Bah! All this mushy stuff!

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#944639 Major <3 For Andalou Naturals

Posted by on 25 April 2015 - 03:26 PM

I never meant to post something that would cause a problem. I do not use their hair care after seeing that they run out so quick after the first time. As for the face cleaner I use triple checked that one and it's clear that I can see but I'm no chemist. Again if I caused a problem I apologize. I double checked my post and did not see any links I posted in regards of claims.
Edit just double checked my bathroom toiletries none of mine contained scary items. But after hearing this I am going to scrutinize more so than before. I am seriously disturbed by this.

You are fine. It's the Dr. That said that C. Com was endorsing a product. I thought maybe this company was using the name without permission. I asked her to link us to where she saw it. She didn't reply. So she was told to not confuse us with some other company. Not sure what that was all about.....
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#944473 Major <3 For Andalou Naturals

Posted by on 21 April 2015 - 03:28 PM

Andalou hair products claim to be "certified Gluten-Free". Andalou claims endorsement/verification by Celiac.com. However, their products variously contain hydrolyzed barley protein and wheat germ (Triticum vulgare). Does Celiac.com have documentation of Andalou's gluten-free status at < 20 ppm? I had a bad reaction from using Andalou Lavender and Biotin Shampoo and Argan and Sweet Orange Styling Cream. I strongly suspect the presence of gluten and doubt that hydrolysis is complete enough to remove reactivity (if it were it would likely eliminate the benefit of these ingredients). The Andalou Customer Service Dept. has repeatedly refused me access to their certification process, which they claim is through the University of Nebraska. They have also refused to share their certification with the manager of the Health Food Store where these products are sold. As a gluten sensitive MD physician and PhD biochemist, I have a hard time believing that Andalou products containing barley and wheat are Gluten Free. After I used these products, my eyes teared, and I got a red scaly rash in skin next to my hair. Has anyone else had a problem with Andalou products?

I looked that product up and it says " verified gluten free" but does not say who did that. Companies can send thier products to different universities to be tested for gluten. I usually just avoid things with obvious gluten ingredients.

Edit: found this on their site:

Q. Is this product Gluten Free?

A. Yes. All Andalou products have been tested by the Food Allergy Research & Resource Program (FARRP) on behalf of Celiac Sprue Association (CSA) and are verified to be gluten-free.

Q. Is this product Vegan?

A. Yes.
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#944470 Major <3 For Andalou Naturals

Posted by on 21 April 2015 - 03:19 PM

We are not a certifying agency. Could you link to those claims? I will let Scott know someone is illegally using our name. They could advertise on here, but I don't think they have to prove anything to advertise.
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#944329 Negative Results At 20 Months, Retesting At 4 Y/o?

Posted by on 20 April 2015 - 06:21 AM

My daughter who is now 9 was tested 3 times up to age 4 with negative results.....she now and has been eating gluten free for 5 years. There are 5 people including myself in our family who are gluten free with different reactions and symptoms. I did not want to give her an endoscopy as it is very invasive. Since many of my family members were tested many times themselves over their lives and many negatives before a positive and because the early years in a childs development is so important i just decided to quit the nonsense and put her on gluten free. If in the future she rebels at least i know that i gave her the chance to put as much calcium in her bones as possible, unlike me who was diagnosed with osteo at age 35.

And they are working on better tests that require less days of eating gluten or maybe no gluten consumption. So maybe in 10 years, when she might rebel, she could get tested easily.
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