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Member Since 26 Jan 2010
Offline Last Active Private

#950847 Dealing With Therapist?

Posted by on Yesterday, 02:16 PM

Maybe you could find a therapist that specializes in people with chronic illness?  Maybe call a hospital's psychiatric service and see if they could recommend someone?

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#950681 How To Help An Asymptomatic Celiac Stop Cheating On A Gluten Free Diet

Posted by on 30 August 2015 - 07:41 PM

Actually, his  other autoimmune disease is probably not "unrelated".  One untreated AI disease seems to lead to another.  He probably isn't really asymptomatic either.  If he really went gluten free, he might find a lot of things, including his other illness get better.  

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#949835 Medication And Wheat/gluten

Posted by on 08 August 2015 - 08:40 PM

Does YOUR pharmacist where gloves? Nope...None do.......Its not gross or unsanitary at all. In no pharmacy do you see pharacists or or the staff wearing gloves. For lots of reasons.

You are actually touching stuff that goes in our mouths with your bare hands? No food service, food prosessor, etc would be allowed to do that! We really need some laws and goverment oversight on that!

I have seen them count out pills, but they never touch them with thier hands. They have plastic funnel type thingies and push the pills with sticks. Not sure of the correct terms.
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#948949 Restaurant Won't Let Me Bring In My Own Food

Posted by on 16 July 2015 - 05:05 PM

I use to take my kids to those places. We just went early and left at lunch time. Sometimes we bought a drink. Or go for a few hours in the afternoon and leave. Kids can play for a few hours without eating. You could also bring a blanket and go outside and picnic and come back in?

ADA doesn't really apply for choices. You have a choice to go to a play place. It isn't necessary for life. You aren't stuck there like you might be in a school dorm or a prison. Yes it sort of applies to wheelchairs, etc. But a kid in a chair can't do all the things a Celiac kid can in these places. It's still limited for them.
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#948617 The Fight Against Omission Beer

Posted by on 11 July 2015 - 04:30 AM

I am it sure a out Omission, specifically but, some of these gluten removed beers were claiming gluten-free. Then the federal goverment told them they couldn't and they all seemed to have stopped saying exactly " gluten free". I still see individual liquor stores that will label the shelf " gluten free", but that isn't the brewery doing it.

I think the problem people have with these gluten removed beers is the testing method and if it is accurate for barley or alcoholic beverages. We have had links about it here many times.

Here is a good explanation of the issues with testing. Also explains that Omission is allowed to call itself gluten-free in its state of origin, Oregon.

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#948341 Wait For Diagnosis Or Not?

Posted by on 06 July 2015 - 12:08 PM

I gave them the entire list and had the dr add HLA DQ2 DQ8 but they only took 6 vials of blood. They must have left something out. So now I wait....


Often they do more than one test on a vial of blood.

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#947756 Cutting Out Corn

Posted by on 25 June 2015 - 09:48 AM

If I remember correctly, you do not have Celiac? Or weren't tested? I am getting dizzy jumping from one topic to another.   :o  Maybe keep some of these questions in one place with all the info we need to know?



Maybe it's not gluten but something else? You might need to go to a few basic foods and slowly add things back to see if any food is your real issue.

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#947382 Honesty Vs Glutening

Posted by on 19 June 2015 - 08:23 AM

As a fully diagnosed Celiac (off the chart blood tests, every biopsy completely "flattened" and enough Celiac genes for several people) I have 2 things to say about this -


1.  I don't want you to think NCGI when it might be something else.  So keep a look out for patterns or other things that might be your problem.  


2.  As long as you are as strict as a Celiac needs to be, call yourself Celiac for the purposes of eating out or with others.  Don't let me catch you crying "Celiac!  Give me gluten-free food" and then see you drinking a regular beer with it!  or having a bite of someone's birthday cake!   :D

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#946538 Cheating On The Diet

Posted by on 02 June 2015 - 03:54 PM

The reason why they did a test is I had my 10 year colonoscopy and they did a biopsy. I ask doctor why they did that and he said he does t with every patient. Then after I have had 2 blood test and very high

So you have intestinal damage - whether you directly feel it or not. Have you checked your bone density? Are you anemic? Low on B12, D, etc. those are all things that can be caused by Celiac disease.
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#946399 Talenti's New Stance On gluten-free Labeling

Posted by on 31 May 2015 - 05:28 PM

Same exact product - only difference is 2 words printed on the package?

Edit- ugh! Now you have me really wanting some Sea salt caramel Talenti right now! And I am all out! :(
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#946075 Test Results And Gluten Challenge (Failure) More Confused

Posted by on 22 May 2015 - 07:13 PM

Aha! Doorknob! That's the G rated word I was looking for! Lol :0
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#945846 Are Supplements Labled "gluten Free" Really Safe?

Posted by on 18 May 2015 - 05:52 PM

While there may be "no test that can say 0," the fact and question remains: there is and why is there gluten in foods and supplements that are supposed to be gluten free? How is it getting there? Cross-contamination from processing facilities that also run wheat products in their facility? Carelessness? The attitude that 10-20ppm is good enough?
I too doubted whether my sustained reaction to gluten was caused solely by several helping over the course of a week of suspect turkey, but if trace amounts of gluten was in the supplements that I was taking certainly couldn't have helped.
While I am better now, I have, without knowledge of the Fusano diet, put myself on a no-processed food diet. And no grains except brown rice. I will gradually add them back in and wait to see how I react.

But , testing for under 20 or 10 ppm doesn't mean there is any gluten, it's just the limits of the tests we currently have. If you used these same tests on the inside of an apple or potato, it would be the same result < 10 ppm or < 20 ppm ( depending on the test).
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#945801 Are Supplements Labled "gluten Free" Really Safe?

Posted by on 18 May 2015 - 09:25 AM

Once again, I think you don't understand the concept of gluten testing. There is no test that can say 0. Less than 10 ppm could mean 9 ppm ( an incredibly small number) or 0 ppm.

If your Celiac blood antibodies are very high, that is not likely from 1 or 2 servings of turkey with gluten.

You might want to check out the Fasano diet for people who are not responding to the regular gluten-free diet. This means little to no processed foods at all. I'll look for the link and post it here.

Here is a good explanation

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#945764 More, Worse Symptoms,.... Depression Taking Hold.

Posted by on 17 May 2015 - 12:09 PM

If you want some suggestions for things that require little or no refrigeration -

go Picnic boxes - you can check the contents on line for the gluten-free ones and use them as suggestions to make your own boxes http://www.gopicnic....et#.VVj1mHA8KrU

Hummus and crackers - there are a couple of kinds in tubes that are shelf stable. http://www.wildgardenhummus.com

Carrots and many fruits don't require much - a cooler with a Tupperware of ice and a towel over the cooler should be fine all day.
There are some individual serving cheeses that don't need refrigeration - I have found them at World Market.
Nut & protein bars - can get Kind bars at .target in a 6 pack for a good price. Or Nature Valley has a gluten-free almond one and many many others
cereal like Chex - get milk off the breakfast buffet at the hotel or get a flavor like cinnamon and eat it dry ( yummy)
Homemade Chex mix with nuts, M & Ms, gluten-free pretzels, etc.
PB or almond butter and crackers or some bread for the first day or two
Toast it bags so you can use the gluteny toaster http://www.ebay.com/...%3D832268947613
Freeze some scrambled eggs in a muffin pan - cooler and the first breakfast could be those
Freeze a chunk of soup or chili to eat the first night, frozen food will keep the cooler colder
Freeze a sandwich & put in the cooler for the next day's lunch
Noodle cups ( with a microwave). https://www.rightfoo...category_id=160

(And several other brands)

Potatoes- http://idahoan.com/c...ts/gluten-free/

If you can get to a grocery -
Microwave bake a potato or sweet potato
Cold cuts
Freezer meals like Lean Cuisine ( assumes you have access to a microwave). http://www.celiac.co...0-lean-cuisine/
Other gluten-free freezer things like .annies, Evol, etc - more expensive but probably about the same or cheaper than a $6 meal at McDonalds
All kinds of things really with a microwave - soups ( Progresso is the cheapest), canned baked beans, Dinty Moore is gluten-free I think, retired beans and chips, instant mashed potato cups gluten-free?, microwave rice, etc


Edit to add links
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#945597 Other Ways To Determine Celiac Diagnosis For Those Who Have Been Gluten-Free?

Posted by on 13 May 2015 - 01:38 PM

You should be eating gluten to be tested for Celiac - blood tests or endoscopy. Stool tests cannot tell you if you have Celiac.

The only mention of stool testing is the ones for non- Celiac gluten sensitivity because there aren't any for Celiac at this time.


"Why don’t you recognize tests (stool tests or otherwise) for non-celiac gluten sensitivity that are currently available through companies like Enterolab or Cyrex?
We only embrace tests that have endured rigorous scientific evaluations. So far, these tests have received no evidence-based support."


"A gluten challenge is the period of time when gluten is added back into a person’s diet to assist in the diagnosis of celiac disease. Antibodies take time to build into the blood stream before they can be detected through blood analysis. For a gluten challenge we recommend eating 1/2 slice of bread or a cracker each day for the duration of the challenge.
Prior to blood testing we recommend 12 weeks of eating gluten.
Prior to an endoscopic biopsy we recommend 2 weeks of eating gluten."
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