Jump to content

Follow Us:  Twitter Facebook RSS Feed            



Celiac.com Sponsor:

 
   Get email alerts  Subscribe to FREE Celiac.com email alerts



  arrowShare this page:
   
Celiac.com Sponsor:

kareng

Member Since 26 Jan 2010
Offline Last Active Private
****-

#944473 Major <3 For Andalou Naturals

Posted by on 21 April 2015 - 03:28 PM

Andalou hair products claim to be "certified Gluten-Free". Andalou claims endorsement/verification by Celiac.com. However, their products variously contain hydrolyzed barley protein and wheat germ (Triticum vulgare). Does Celiac.com have documentation of Andalou's gluten-free status at < 20 ppm? I had a bad reaction from using Andalou Lavender and Biotin Shampoo and Argan and Sweet Orange Styling Cream. I strongly suspect the presence of gluten and doubt that hydrolysis is complete enough to remove reactivity (if it were it would likely eliminate the benefit of these ingredients). The Andalou Customer Service Dept. has repeatedly refused me access to their certification process, which they claim is through the University of Nebraska. They have also refused to share their certification with the manager of the Health Food Store where these products are sold. As a gluten sensitive MD physician and PhD biochemist, I have a hard time believing that Andalou products containing barley and wheat are Gluten Free. After I used these products, my eyes teared, and I got a red scaly rash in skin next to my hair. Has anyone else had a problem with Andalou products?

I looked that product up and it says " verified gluten free" but does not say who did that. Companies can send thier products to different universities to be tested for gluten. I usually just avoid things with obvious gluten ingredients.

Edit: found this on their site:

Q. Is this product Gluten Free?

A. Yes. All Andalou products have been tested by the Food Allergy Research & Resource Program (FARRP) on behalf of Celiac Sprue Association (CSA) and are verified to be gluten-free.

Q. Is this product Vegan?

A. Yes.
  • 1


#944470 Major <3 For Andalou Naturals

Posted by on 21 April 2015 - 03:19 PM

We are not a certifying agency. Could you link to those claims? I will let Scott know someone is illegally using our name. They could advertise on here, but I don't think they have to prove anything to advertise.
  • 2


#944329 Negative Results At 20 Months, Retesting At 4 Y/o?

Posted by on 20 April 2015 - 06:21 AM

My daughter who is now 9 was tested 3 times up to age 4 with negative results.....she now and has been eating gluten free for 5 years. There are 5 people including myself in our family who are gluten free with different reactions and symptoms. I did not want to give her an endoscopy as it is very invasive. Since many of my family members were tested many times themselves over their lives and many negatives before a positive and because the early years in a childs development is so important i just decided to quit the nonsense and put her on gluten free. If in the future she rebels at least i know that i gave her the chance to put as much calcium in her bones as possible, unlike me who was diagnosed with osteo at age 35.


And they are working on better tests that require less days of eating gluten or maybe no gluten consumption. So maybe in 10 years, when she might rebel, she could get tested easily.
  • 1


#944082 Prep For Endoscopy And Colonoscopy For 5 Yr Old

Posted by on 15 April 2015 - 09:29 AM

Read the prep directions. Usually there is a day of only liquids and the laxative part starts about 5 pm. You don't want someone with diarrhea swimming. That's a real health issue for all the other people who might use the pool.
  • 1


#943879 No!

Posted by on 12 April 2015 - 05:46 AM

I am not going to worry too much about this. The grains aren't what they want in the paper. They aren't crumbling all over my salad. Perhaps someone could ask how this paper is made before panicking? I don't think this is really a new thing. I have heard that various parts of wheat have been used in paper, paper plates, napkins, etc for a few years now.

Edited to, hopefully, clarify.
  • 2


#943129 How Do I Search My Old Posts And Topics

Posted by on 29 March 2015 - 06:13 AM

From the main forum page - use the search in the upper right corner. But don't use the box, click the little " gear". This gives you an advanced search. There is a place to put in your user name and then go down and check " as posts". I fidn it easier to see the individual posts rather than a list of topics a poster has replied to. That's how I would do it if I wanted to see your posts. :)

It isn't always perfect, sometimes I don't find really old things. I don't know why one day I get a different result than another. If you are looking for a particular post, using a key word and your name might help. Like - you know you posted a recipe for pumpkin cookies - use cookies or pumpkin with your name.
  • 2


#943070 Is There A Good Hamburger Bun Out There?

Posted by on 28 March 2015 - 08:34 AM

I did not know that Red Robin made gluten-free buns. Do you call them and order the buns?

 

Many of them use Udis buns.   Some use other, locally made buns.


  • 1


#942944 Coors Light

Posted by on 26 March 2015 - 02:55 PM

Hi, Just wanted to inform this post that Coors Light is NOW Gluten Free.  They just launched their first GL beer which is called "Coors Peak".  It was released in Jan. 2015 in the Seattle and Portland OR area only to test the market with it.  Im pretty excited about it myself and am looking forward to trying it out.


Coors light is still not gluten free. They have a new beer that is coming out that is gluten free.
  • 1


#942887 Grocery Store

Posted by on 26 March 2015 - 06:35 AM

That is a bit extreme.  Even if the lotion had gluten in it - it is a very teeny amount.  And an even teenyer amount would maybe rub onto a package.  I think the store should just say, thank you for the input and not bother.  I guess everyone coming in the store, including the employees, would not be allowed to eat gluten or touch the bread, flour, cookie packages, too?  I would think that would be a more likely way to get gluten on a package.  UGh!

 

Of course, you have been on here long enough, I think, to see how extreme people can be sometimes.  I think this woman just wants attention and to feel "special"  :wacko:


  • 1


#942861 How Do I Make My Family Realize The Severity Of Celiac?

Posted by on 25 March 2015 - 05:28 PM

Show them some info from doctors at a Celiac research medical  center?

 

http://www.curecelia...guide/treatment

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine"

 

Ask the grandparents if they feel good enjoying foods, in front of the kids, that the kids can't eat.  Not sure about the age of the kids, but leaving the gluten food/crumbs sitting around, they might be eaten by the kids and make them sick.  They wouldn't leave pills or alcohol where a kid can get it, I hope.   If they don't mind tormenting the kids with foods they can no longer eat or would leave pills within reach of small children, you might want to limit the kids exposure to these people.  

 

If they absolutely cannot live for a week without their McDonalds or pizza or whatever, they can go out (without the kids) and eat it.


  • 1


#942616 Heb Blendables

Posted by on 21 March 2015 - 06:03 PM

I don't have that brand, but I have eaten several varieties of plain frozen fruit. All they are is fruit - no sugar, no preservatives, etc. not sure why they wouldn't be safe. Can't really process wheat where you process fruit. Not even the same bins to take them to the processing plant.
  • 1


#942151 No Genetic History - Original Mutation?

Posted by on 14 March 2015 - 08:32 AM

Just curious because my husband and I both have brown eyes and ended up with a blue eyed child. I wondered if celiac worked the same way.

. But if they looked at your eye color genes- they would see that each of you had a brown and a blue gene. They could match up with 1 from each of you. The genetics of eye color is actually more complex than that, but that's the simple explanation.
  • 1


#941454 My Mother Has Been Diagnosed With Celiac And Diverticulosis

Posted by on 04 March 2015 - 01:37 PM

Hi everyone, I am new to this forum and would love to hear any feedback / experiences from you. My mother has recently been diagnosed with Celiac and Diverticulosis. She is on a strict gluten free diet. I have her on high quality food based multivitamins, Omega 3's, Tumeric (Anti Inflammatory) Probiotics, Aloe Vera juice, and a blend of digestive enzymes. We need to make her body more alkaline and we have been doing that through juicing dark green leafy vegetables. She is very concerned and scared at the same time. She needs to know what other foods and recipes she can make that will help with both conditions. I would love to hear your comments/advice on what she can do to make each day manageable and pain free. Thank you very much I appreciate it! 

 

I am not sure what foods trigger diverticulosis but I am sure there is a list on Mayo's website?  What did the doctor say?

 

As for the Celiac diet - she doesn't not need to go nuts with juicing and alternative diets.  Have her read the newbie thread for some basics.  she could look at the dinner thread and see what others are eating.

 

 

http://www.celiac.co...ewbie-info-101/

 

 

http://www.celiac.co...r-tonight-chat/


  • 1


#941209 Apparently More Celiacs Cancel Endoscopies Than Non-Celiacs

Posted by on 01 March 2015 - 06:39 AM

Thank you 

kareng
I am in TEARS as I type this.. I just watched the video and bawled for 30 minutes. I really hope I don't catch some uncurable infection. My baby is only 6 months old, I have to see him grow up. I'm so scared!!! :(


I am sorry about that. Unfortunately, that is part of these open forums.

I don't remember how positive your blood tests were, maybe you can skip the endo? Talk to your doctor about that and if there are other reasons he/ she wants to do one.

I actually think most people with a positive blood for Celiac that don't take the endo are because the blood test was enough proof for them. They are relieved and start the gluten-free diet right away and don't want to go back on gluten for the procedure. ( just my unscientific observations from here and my real life).
  • 1


#941184 Duodenoscopes Spreading Super Bugs In The News

Posted by on 28 February 2015 - 06:55 PM

Check out the type of endoscope your doctor wants to use. They can't be cleaned well enough to prevent antibiotic resistant bacteria surviving and several people ahve been made sick or died.

Check out this article before you go so you can check to be safe:
http://www.usatoday....enter/23663747/

Those are not what is used for regular endoscopies to look for Celiac disease.

 

 

The scopes in the news story are for - "The scopes are used for a procedure called ERCP, or Endoscopic Retrograde Cholangiopancreatography, in which the devices are used with contrast dyes and X-rays to help doctors locate and treat blockages in the bile and pancreatic ducts."  

 

This is NOT for regular endoscopies to diagnose Celiac disease. 


  • 1