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Member Since 26 Jan 2010
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#927767 Cost Of Celiac Genetic Test?

Posted by kareng on 17 August 2014 - 04:45 PM

The gene just means you can get it. But, about 30% of people have a Celiac gene.... And they think about 1% have celiac. So, all it would do is rule it out.


"Genetics don’t diagnose celiac disease. They do, however, clarify whether an individual is “at-risk” for it. If this is the case, you should closely monitor your symptoms and submit to blood tests every 2-3 years or immediately upon the sight of symptoms. ..."
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#927758 2.5 Years After My First Episode, Dh Returns With A Vengence . . .

Posted by kareng on 17 August 2014 - 02:33 PM

Though I appreciate your input Yum!, please do not insult either my intelligence or perceptive capacity via pointless suggestions. I went to emergency for Edema, not DH. The emergency team confirmed my Edema was Celiac related as they have experience with those like me. Thank you and peace,


Wow! Alrighty then.....

You said you were self-diagnosed with Celiac. I thought, since you were eating or drinking gluten, it would be a good time to get a definitive diagnosis. Sorry. I can see you do not want any suggestions.

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#927701 The What's For Dinner Tonight Chat

Posted by kareng on 16 August 2014 - 04:34 PM

This is my new favorite drink! The first one I made didn't have much strawberry flavor. So I muddled the strawberries ( that means squish them a little) in the bottom of a glass and added the wine and let it sit in the fridge while I drank the first one . That was even better! Raspberries, watermelon, peaches, oranges, really lots of fruits would be good this way.
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#927416 A1 And Why I Can Not Trust Kraft

Posted by kareng on 14 August 2014 - 09:28 AM

If you believe that Kraft is mislabeling ingredients, you should report them to the FDA. What you are alleging is against the law and should be reported and there should be a recall.  There is a way to do that on the FDA website.

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#926786 Low Ferritin

Posted by kareng on 08 August 2014 - 04:21 AM

If you are supplementing with iron/ferritin - even in an undiagnosed Celiac, levels may not go down.  It may go up or remain the same.  The fact is, even with a damaged small intestine, some of the small intestine is not damaged.  It is "patchy" damage.  So, if 50% is damaged, that means that 50% is still working.  If you take a supplement of iron, you have a better chance that that good 50% has some iron to absorb.  

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#925893 The What's For Dinner Tonight Chat

Posted by kareng on 31 July 2014 - 09:42 AM

Crock 'lasagna' up mañana ... Have you used reg noodles in the crock...was thinking of using Sam mills mini lasagna noodles layered instead of lasagna noodle...they should get done in three hours too I'd guess.

I have only used lasagna noodles this way. Haven't seen mini lasagna noodles. I have made minestrone in the crockpot. Then I add the noodles the last half hour.
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#925819 The What's For Dinner Tonight Chat

Posted by kareng on 30 July 2014 - 05:01 PM

Pizza!  If I could make it in the KFG I would  :P   Was awesome anyway... :D

The lasagna is very pizza like. No crispy crust, but the same flavors - cheese, marinara, sausage, etc.
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#925302 Pelvic Pain And Discomfort And Peeing All The Time

Posted by kareng on 25 July 2014 - 01:53 PM

Hey Beth and Dee...do either of you drink coffee? If so...what do you use for creamer that's dairy, soy and gluten free?

I know you didn't ask me but.... I LOVE the so delicious vanilla coconut milk creamer. I don't even need dairy free!
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#925091 Meal Planning For The Newly Diagnosed- Challenge

Posted by kareng on 24 July 2014 - 05:16 AM

There are foods that are harder to digest or harsh on the gut for anyone - Celiac or not. So when a newly diagnosed person, like you,  comes on and says  they are still having gut issues and they had coffee, hot peppers, dairy, broccoli, etc - we often tell them to eat easier to digest foods or cook the veggies.  Its not because these foods keep your gut from healing, its just to make you feel better until you have healed.  If you are no longer having issues with the foods you are eating - eat or drink whatever you want.


Its the same common sense approach everyone uses after a stomach virus - you don't stop vomiting and jump right to a taco salad with extra spicy sauce and lots of cheese.   You start with a little apple sauce or a Gatorade and a little rice and work your way up the dinner food chain.  

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#924825 Newly Diagnosed, Questions

Posted by kareng on 22 July 2014 - 06:49 PM

Hello everyone,
Glad to have found the forum.
I am 27 years old and have been having stomache pain since April 2014. I was diagnosed with Celiac from blood test on July 3rd, 2014.  I realize I might still need to get a intestinal biopsy but my doctor said first that I needed to go completely gluten-free and take probiotics... (florastor)
So the very first week going gluten-free was like heaven. 2 days after going gluten-free I felt great. Stomach felt normal, etc... But after that first week my symptoms seem to come back full force and even worse. It is now July 22 and I am having very few good days. From reading other posts on here I realize this probably isn't a long enough time to determine anything if my gut is healing (I think I am one of the lucky ones because I never had stomach pain or any digestive issues prior to April 2014. I am hoping that means my gut isn't too badly damaged).
Did anyone else have a period of "amazing" right after going gluten-free and then it actually get worse?
The Big D and stomach pain are my two biggest things I am dealing with right now.
Does sugar/soda effect anyone else? I am really trying to determine what causes me to feel bad, but then again maybe it is too soon and I will just have good and bad days.
I have cut out soda for right now which is very hard since I work late into the night. But maybe that isn't the problem.
I have been eating some gluten-free products and a lot salads... I have been 100% gluten-free since July 4th. I am trying to go completely organic but baby steps.
I am starting a food journal to try and see if I can determine what causes worse days.
Any other advice?
Thanks everyone.

Oh..wait...if you are still testing ( endoscopy) you need to continue to eat gluten. Would be horrible to be gluten-free for 3 months, get an endoscopy and have a lot of healed areas that they biopsy and tell you " no celiac"!

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#924552 Isn't Baking Soda And Powder Gluten Free?

Posted by kareng on 20 July 2014 - 06:16 PM

All grains have glutens in them - not just wheat which has a particular type of gluten (gliadin) - it's just that wheat is particularly troublesome for people with gluten intolerances.
However, my understanding is that after wheat, corn gluten is the next biggest problem for many people with gluten sensitivities, especially if you have poor digestion or leaky gut syndrome. In fact, many people with gluten allergies, intolerance or celiac continue to have problems after they remove all wheat from their diets - and it's possible for some that it's because of corn gluten. I personally react as strongly to corn as I do to wheat (perhaps more so). As a result, I seek out gluten-free baking powder which does not have cornstarch in it. Baking soda (as stated previously) does not have either wheat or corn gluten. 
So, there is in fact a reason for gluten-free baking powder. 

The "Gluten free" on a baking powder label has nothing to do with corn. It could still have corn starch. For labeling purposes and Celiac Disease - corn " gluten" is not called gluten.
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#924502 Item Flagged As Gluten, Website Says No?

Posted by kareng on 20 July 2014 - 06:59 AM

I have seen " modified wheat starch" a couple of times. It's that stuff that tests at less than 5 ppm. They use it a lot in
Europe. It's very expensive and wouldn't be used very often from what I hear. And it still lists the word " wheat" in the ingredients.

Back to these apps - I have seen people believe the app over their own eyes on products that should never have gluten - like plain canned or frozen fruit. It is probably impossible for the app to have or check every single product and they seem to just say - not gluten-free if its not on their list or not one they have checked on.

I think these apps play on the myth that gluten " hides" in food. In most countries, that is not true. Wheat must be labelled. Rye is rarely in anything besides bread or crackers and they will list it because they are required to list ingredients - allergens or not. Barley will be listed as barley or malt or brewer's yeast ( by product of barley) The only tricky bit might be some of these odd wheat strains - tricale, spelt, etc. But, those aren't in " normal" food. They are a specialty thing meaning you would have to go looking for them.

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#924309 Maltodextrin?

Posted by kareng on 18 July 2014 - 03:19 AM

Hi Everyone. I have been having Purity Rice Cereal for breakfast but i have been batteling with inflammation. I read the label again this morning and it contains maltodextrin from an unspecified source. Could it maybe be that i am consuming gluten while the packaging states clearly it is gluten free! I can not eat maize or brown rice it also makes me sick. I have been avoiding that as well. Help please! Thanks Renee.



Just a head's up - this whole thread is from 2004-2005.  


If you have a problem eating rice - I would think that is why you can't eat a rice based cereal.

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#924207 Feel Like It's Always Something...so Frustrated!

Posted by kareng on 17 July 2014 - 01:54 PM

Sometimes the standard dose doesn't get rid of the UTI. It's good that they are culturing it. That way you can take what you need to wipe it out and not have to do this again in a month! Hope you feel better soon.
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#924196 Uncle Bens Recall

Posted by kareng on 17 July 2014 - 12:59 PM


FOR IMMEDIATE RELEASE - July 16, 2014 - Mars Food North America is voluntarily recalling two Lot Codes of UNCLE BEN’S® READY RICE® Garden Vegetable with Peas, Carrots & Corn pouch product, representing less than 2,000 cases. Some pouches in these lot codes were filled with a different product that contains barley, a non-wheat source of gluten, which is not declared on the product packaging.
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