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kareng

Member Since 26 Jan 2010
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#932512 Is There Medication For Celiac That Allows You To Consume Gluten?

Posted by kareng on 11 October 2014 - 01:06 PM

We are trying to get our hands on her medical records, so we can make sure everything checks out. Supposedly she was diagnosed with Crohn's and Celiac, but now her mother has said that it might just be Crohn's. I really do not know what to believe. I guess we will just have to get in touch with the doctors to get all of her records, so we can find out what is really wrong. It is really hard for us to get her records without causing issue with her mother, so we are trying to find a way to get them.


You might want to read up on Chrohns . That is very serious. I still think the father should go to the doctor appointments with a list of questions.
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#932497 Is There Medication For Celiac That Allows You To Consume Gluten?

Posted by kareng on 11 October 2014 - 11:41 AM

There are no such pills. There are lots of rip off products you can buy.  If the child has really been diagnosed with Celiac disease, the mother, by failing to treat a chronic disease,  may be guilty of medical negligence.  Your husband may want to consult a lawyer.  

 

 

http://www.curecelia...guide/treatment

 

"The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine."

 

 

 

http://www.curecelia...y-eating-gluten

 

 

"Do supplements like GlutenEase (or Gluten Cutter, Digest Gluten Plus, Glutenase) offer protection against accidentally eating gluten?

We put no validity in these supplements. In fact, they may offer a false sense of protection when they provide no protection at all."


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#932024 Reactions From Breathing In Gluten?

Posted by kareng on 04 October 2014 - 05:56 AM

Allergies are different than Celiac.  Celiacs shouldn't be eating foods that are likely contaminated with wheat -for example,  fries from a shared fryer.  However, Celiacs should be able to smell gluten bread baking or get some gluten on their skin and be fine.  For a Celiac, if there is a lot of flour in the air, then you may ingest some by breathing it  - it goes down your throat into your stomach, etc.


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#931894 Kraft Products ... I'm Shocked!

Posted by kareng on 02 October 2014 - 05:51 PM

You seem to be twisting things we are saying around. For example - wheat flour is sticky when moist - making it incapable of keeping cheese from sticking. This goes back to my suggestion to use some common sense. And there are a very very few cheeses with beer in them - but they aren't the regular old Kraft cheese and they proudly and legally list beer as an ingredient.
The law does not say they must test before labelling gluten-free - so if they are sure something would make the gluten-free standard, they can label it gluten-free without testing. They could be called on it at some point and have to prove they are less than 20 ppm.
The safest way to eat would be to grow your own food, which is, of course next to impossible for most people. Please, eat products you feel safe eating. Please don't assume or accuse me of purposefully glutening myself. I feel great, my tests are always negative for Celiac antibodies. Gluten does not hide. It is not evil or sneaky. Companies aren't trying to poison Celiacs.

What you don't understand about CHEESE is that some of the enzymes used to PRODUCE cheese come from Wheat. I thought everybody knew that, thus I didn't mention it.

I am not sure where you are getting this info from? If these " wheat enzymes" are actually used to produce cheese and contained gluten, wouldn't the Celic Associations warn us of this? I would think you can't eat any cheese then because enzymes aren't a listed ingredient and you wouldn't know where they came from.
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#931886 Kraft Products ... I'm Shocked!

Posted by kareng on 02 October 2014 - 05:07 PM

again--back to my comment of contradictory information by the "old timers" that you all love so much...according to the FDA's new laws, gluten-free means gluten-free....so, if the product says gluten-free, it has to test under 20 PPM....or naturally be gluten-free---but then some naturally gluten-free items like frozen veges have gluten in them too...sooooooo, back to my statement, for those of us that are still new at this....if it doesn't say gluten-free, it's not really safe to buy.....and if one company is going to test and label gluten-free, then I will buy that product.  I guess I don't understand why everyone is ok with companies sidestepping this....but ok.
 
as for cheese---many packaged cheeses have some kind of corn starch or flour to prevent clumping (shredded cheese).  There are some "flavored" cheeses that are NOT gluten-free so you can't make a blanket statement that cheese is gluten-free....
 
looking at labels for some General Mills, Nestle and Hormel foods in my cupboard, they all have the gluten-free label on them....so, under the new labeling laws, they are gluten-free....
http://www.fda.gov/F...s/ucm367654.htm


You seem to be twisting things we are saying around. For example - wheat flour is sticky when moist - making it incapable of keeping cheese from sticking. This goes back to my suggestion to use some common sense. And there are a very very few cheeses with beer in them - but they aren't the regular old Kraft cheese and they proudly and legally list beer as an ingredient.

The law does not say they must test before labelling gluten-free - so if they are sure something would make the gluten-free standard, they can label it gluten-free without testing. They could be called on it at some point and have to prove they are less than 20 ppm.

The safest way to eat would be to grow your own food, which is, of course next to impossible for most people. Please, eat products you feel safe eating. Please don't assume or accuse me of purposefully glutening myself. I feel great, my tests are always negative for Celiac antibodies. Gluten does not hide. It is not evil or sneaky. Companies aren't trying to poison Celiacs.
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#931767 Kraft Products ... I'm Shocked!

Posted by kareng on 01 October 2014 - 09:07 AM

There are a lot of scenarios like this in a celiac lifestyle. For example, drug companies don't test their medications for gluten either. 

 

I think that we just have to evaluate the level of risk based on what is known about the company. If 95% of a companies products contain gluten and they make one with no gluten containing ingredients, but that's made on shared equipment (even with GMP) and it isn't tested, I won't eat that product. Nor will I eat baked goods made in shared bakeries.

 

However, if most of a companies products are naturally gluten free and they disclose ingredients rather than hiding them, I would feel okay with their food.

 

In the end, it's a personal choice and we all have to choose the level of risk we're willing to live with.

 

 

You are so right.  A little common sense in these things is important.  For example, all they make on a cheese machine is cheese.  Cheese doesn't have gluten. They only make dairy type things in a cheese factory.     But a cereal with no gluten ingredients might be made with gluten containing cereals - that would be one I would want a gluten-free on.  


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#931745 The What's For Dinner Tonight Chat

Posted by kareng on 01 October 2014 - 04:22 AM

Had nachos with the left-over chicken from Sunday night while we watched the game.

 

 

GO ROYALS!


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#931694 Still Ill After 3 Years Gluten Free

Posted by kareng on 30 September 2014 - 01:14 PM

Are his blood tests coming back still high?  Has he had a repeat endoscopy to check if the damage has healed?  If all those are negative - it is possible it could be something besides Celiac.


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#931681 Would You Avoid Processed Gluten-Free Food?

Posted by kareng on 30 September 2014 - 09:23 AM

How are you with rice pasta? Rice or tapioca based flours?  Almond flour?  sounds like you think you have a problem with corn?   Chebe makes a nice pizza crust mix that is made with mannioc/tapioca.

 

http://www.chebe.com...-oz-per-package


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#931318 How To Convince My Mom I Need To Be Strictly Gluten Free

Posted by kareng on 25 September 2014 - 12:58 PM

Kareng thats a good idea!! i must definitely try that, i just dont know how to tell her. Its like she's called me crazy and stuff like that so many times that i now dont even wanna tell her anything about food or gluten! im kind of tired of evil comments, but if i dont do anything for myself, she wont either..

 

 

Tell her you appreciate her support - both financially and emotionally.  And you know you have some diet issues and you will do all the cooking and clean up from cooking.  You just want to pull your weight around the house.  Maybe offer to clean your bathroom every week or 2?

 

The fact is, we mom's like having our kids, even adult ones at home.  But we shouldn't have to do all the housework, cooking, etc.  WE also like to know we are appreciated.


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#931316 How To Convince My Mom I Need To Be Strictly Gluten Free

Posted by kareng on 25 September 2014 - 12:21 PM

If you don't have a job - why not do all the cooking?
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#931311 Dh Sometimes Look Like Poison Ivy?

Posted by kareng on 25 September 2014 - 10:50 AM

While both Celiac and DH are a bodies response to gluten, they are not the same. While it is easy to lump them together they are totally different from each other medically. DH is an auto immune disease that creates a systemic histaminic  reaction. Celiac doesn't. I am not a doctor but have had medical doctors explain the difference in medical terms that I do not fully understand, but that is the bottom line.


DH is considered currently considered a form or manifestation of Celiac Disease.

http://celiac.org/ce...-herpetiformis/
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#931183 The What's For Dinner Tonight Chat

Posted by kareng on 23 September 2014 - 06:59 AM

Last night we had "Impossible Cheeseburger Pie" and a spinach and apple salad with pecans and a little lemony salad dressing I made.  You could add things like taco seasonings and serve with salsa but ...for some reason, we always like it just like it is.

 

http://www.bettycroc...c3483710?src=SH


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#931006 Help - Sick At Work All The Time

Posted by kareng on 18 September 2014 - 03:40 PM

Maybe it has nothing to do with gluten? Maybe you have an issue with something in the air freshener? Or a cleaner they use? Or a mold in the air ducts? Or? sometimes it can be hard to know.
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#930930 Stadium Nachos..glutened?

Posted by kareng on 17 September 2014 - 12:34 PM

I think the cheese sauce might be your biggest issue.  Who knows what is in that stuff?  It could have wheat as a thickener.  


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