kareng

OKAY, OKAY, I YIELD!!!!! ..... but I'm whispering to myself, if mild diabetics can cheat, why can't I ?

 

 

Its not the same thing.  A diabetic can have carbs or sugar if they adjust what they eat and thier insulin.  We can't adjust anything to make the body not attack our intestines from the presence of gluten. 

 

You might want to think of it more like rat poison - a small amount probably won't kill you.  Might make you feel sick for a day or 2.  Do you choose to eat rat poison?

 

Also, you may not heal if you keep eating gluten once a week or once a month.  It can take months to get the body to stop making the antibodies and then heal the intestines.  If your intestines are damaged, even if you don't feel them, you are not able to absorb the nutrients you need.  This leads to many things like bone loss, teeth/mouth issues, nerve damage/ataxia, a rare cancer or two, infertility (looks like new studies show this is in male & females), etc.

 

You don't seem to want to take it seriously, but I hope you will for your health.

Kareng, how do you ask for that?  Just request it from the doctor?  It's almost like screaming "hey buddy, I don't trust you for beans"....... wouldn't that seem so offensive?  I know I shouldn't give a crap about offending, but I do want to keep him as a doctor.  Even though he hasn't really supported the idea that it's celiac, I have to admit that he at least bothered to do the tests.  And I am maybe being paranoid in thinking that he isn't "really" checking the biopsies.
 
But of course you would have to interpret the results for me anyway because I have no clue what I'm looking for!

You can ask at your next appointment or call and ask for them.  You don't even talk to the doc if you call.  Lots of people keep them for their own records and will have them to give other doctors or enroll in a medical study or send insurance.  

Thanks seekingsarah.  My bloods were inconclusive because we discovered I'm IgA deficient.  I was low ferritin and so along with my other complaints/symptoms, the GI opted to just go in and take a look.  I had the colonoscopy and upper endoscopy this week as a result.  He just wanted to rule out some things.  The issue of celiac was brought up by me, not him.  He did the initial bloods because I asked, and then he said that since he was going in to look anyway, he would biopsy to check for celiac although he doesn't believe that it could be so.  He really says IBS. 
 
Before the procedure I asked how many samples he would be taking and he answered "enough for diagnosis".  I asked if it was between 5 -10 and he said yes.  So afterwards in the recovery room I asked the nurse how many samples were taken and she answered "2".  I know that he removed a couple of polyps during the colonoscopy so I'm not sure if the "2" was referring to the fact that he took samples for biopsy in "both" the colonoscopy and upper endoscopy. 
 
With all the pushing I've had to do to get this far, a lot of trust is necessary.  How can you really know if he asked the tech to check for celiac?  Maybe he'll just call me and say "everything's fine" because he doesn't think celiac is even possible.  Know what I mean?  I hope not.  I'm so tired of always feeling like I'm left with more questions than answers. 
 
What I need to do is relax and just wait, I guess.  I mean I've pinned my hopes to this diagnosis because everything seems to fit, but really, it's always possible that it's not celiac and just something else.  And that would mean being back at square one.  So fed up.

Get copies of the blood work, the procedure report and the pathology report.  That will tell you if he did the correct sampling.

That's horrible!  Glad you are OK!

Were you cleaning up as you cooked?  I think you should stop washing dishes and cleaning!

Yes Anna you scored 100%!   But...it a learning process.  We all make mistakes. 
 
One Thanksgiving, I brought my own cooked cornish hen.  Everyone else enjoyed the stuffed Turkey, but I had my own "mini-me".  The kids loved it!
 
We have all been in your shoes, but I hope you feel better soon. 

  

I have NEVER met an unstuffed Turkey that contained gluten.  What brand was it? What store was it?
 
Perhaps you were mistaken as to your husbands source of gluten.

Yep!  And Yep!  

Never eat a stuffed with gluten turkey and never saw a plain frozen  turkey with gluten.  A few of them have a gravy packet, I have heard, but it is sealed and you would just throw it out.

Here is a good place to start

 

http://www.celiac.co...ewbie-info-101/

 

 

Make as much of your food gluten-free and the accidental crumbs will be reduced. 

 
I threw cheese through a window once.  I had a sudden surge of irritability for no reason.  Well, I found out later that I was highly intolerant of cheese.  I therefore conclude avoiding foods that cause these problems is best.
 
Diana

That's one way to avoid a food!  .  Hope the window was open.

So the other night I( a ncgi) and my friend(celiac) decide to eat fried chicken. We cooked it the usual manner. The flour was rice flour and sorgum flour and we thought we were safe. Mere moments after eating we both start feeling horrible. We narrowed it down and discovered that the corn nor the rice were the suspects. We took a look at purdue's frozen chicken and made a shocking discovery. The chicken had been frozen in a broth that contained barley. We wee dumbfounded. So please be careful. The bag did not continue any allergy info and sadly there customer service was non-existing.

  

Kareng you have to give time for proof to exist. I spoke with customer service with purdue chicken. The rep advised me that they only list wheat, eggs and nuts on their allergy labels. The rep went on to explain that without the r and d dept she couldn't confirm any other allergins. She also said that is a "proprietary" blend of ingredients. They barley part comes from my friend(a chef) who helped cooked the meal and he explained that most seasoned broths are seasoned with barley. I will further contact r and d to get further answers. I didn't post this to cause falsly startle everyone, but everyone should know what occured. We are all on the same team here Afterall.

You came on and stated as a fact that the chicken was "frozen in a broth that contained barley".  When you were asked why you say that, you have no response other than your friend thinks that is the case.  I am on the team that does not want to spread rumors or scare people about gluten in products that do not have gluten.

Forgive me, this post was never intended to spin off into a discussion Reguarding ethical treatment of animals or company standards. This was meant to be a warning, so what happened to me doesn't happen to you. Also the flour used has been tried and true by my celiac friend. She has never had an issue with it until that night and keeps her pantry completely gluten free. I have attempted to contact purdue reguarding the issue but to no avail I haven't gotten them. I will post a further update when I speak with them.

You still haven't explained your accusation that Perdue coated your chicken in barley. I'm assuming that is something you just decided for some reason and have no proof of it. Please do not make statements meant to scare people about a product if you have no facts to back it up.

IrishHeart, Where do I start? Deceptive marketing practices, grossly inhumane conditions, environmental pollution, restrictive contracts on local growers, feed that includes arsenic, antibiotics, and god knows what else, and so forth.  These issues are not limited to Perdue (we've been spelling it wrong). These are the same issues that most industrialized meat producers are guilty of. Perdue has just always had a reputation of being the one of the worst offenders. This is getting slightly off-topic, but I just took a course on US Food Systems and saw this great video on the future of farming with a focus on meat production. If you're interested in this sort of thing here it is (about 30 minutes long): 

That is all fine but it still doesn't explain why the OP is accusing the company of poisoning him and his friend with barley.

I have never seen chicken frozen IN a broth that you would want to dry off and fry. Nor have I seen barley injected into chicken.  Some chicken is injected with salt water.  You can tell by looking at the sodium content.  Plain chicken has about 40 units of sodium naturally.  Please provide some evidence of this fact.

Hmm, interesting, I'll take a look at it. Good news: My thyroid levels came back normal, so no Hypothyroidism for me  Bad news: This migraine I had for 3 days finally made me break down and go to the hospital last night.

Did it help?  I feel so bad for you.  I wish I lived closer so I could drive you or walk your dog or do your laundry or make you chicken soup.  

Yea there's usually at least one person present who knows I can only eat at certain places. But people are rude to me about the food I do bring along, like chopped up chicken and protein bars. Either they refuse to try my food or take one tiny bite and kind of gag

Wy would you let them eat your food?  They can eat the gluteny food at the restaurant they wanted to go to.

I eat Planters honey roasted peanuts.  Sounds like you might have an issue with processed corn like corn starch?

.This is her post:"Day one of my 1,000 calorie no gluten, less sugar diet. Side affects....grumpy--check, hungry--check, upping my caffeine addiction--check, ready to eat my own arm--check!"

This is getting silly.  Look at her post.  She doesn't say she is doing it because she has stomach issues or anything else.  It's pretty obvious it's just for weight loss!