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Member Since 26 Jan 2010
Offline Last Active Private

#919959 Minimisation By Family/friends.

Posted by kareng on 11 June 2014 - 06:47 PM

Next time they ask, just ask, "Why, how do you, a non celiac patient, think you know so much about my disease?"  Have them name the major 4 or 5 additives you have to avoid but they have NO CLUE what they are (modified food starch, yeast extract/malt extract, caramel coloring, MSG) and they'll quickly be quiet.

Fortunately, in the US, modified food starch, yeast extract, caramel color & MSG do not contain gluten. On the rare occasion MFS is made from wheat, it will say something like MFS ( wheat) or modified wheat food starch. Of course, malt contains gluten.
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#919791 Really? Another Curveball?

Posted by kareng on 10 June 2014 - 06:27 PM

If another doctor ordered the tests, they would accept them. It's because I went outside of the system and did it that they won't take them. The results were electronically sent from the lab to the doc, and I brought them a sealed copy from the lab with a tamper evident seal.

THen that is just them being being pissy. Tell them there is no reason to re- do and charge you or insurance for the tests. Or get another doctor.

Adding - do you have insurance now? This might be something to make them aware of. It's being done to make money, not for patient care.
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#919542 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by kareng on 09 June 2014 - 05:19 AM

When I went to feed the cat my hub said "Gracie needs her astronaut food."   :D

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#919520 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by kareng on 08 June 2014 - 07:32 PM


Great video about a cat talking to the new kitten
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#919363 Ads On This Site

Posted by kareng on 06 June 2014 - 11:13 AM

now I want a taco.



Make some and tell us about them on the What's for Dinner thread!  Tacos.... yum....

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#919014 The Fresh Market Gluten-Free Food List

Posted by kareng on 04 June 2014 - 10:33 AM

The best thing to do is to read the ingredients.  There are lots of gluten-free foods at Fresh Market or any other market. Many many foods are gluten-free but don't mark that on the packaging.

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#918937 Painful Glands - So Over It

Posted by kareng on 03 June 2014 - 01:15 PM

I wish you would have gotten tested before going gluten free to see is you have Celiac disease. If it's only been a week, you could start eating a little gluten each day and get tested. Then you would know if you have an actual disease or not.
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#918821 The What's For Dinner Tonight Chat

Posted by kareng on 02 June 2014 - 03:43 PM

Well then you need to come visit me, hahaha!
Tonight I am going to go simple and make up for calories yesterday... just grilled pork chops with green beans and carrots.  
Last night I was outside hosing something off around dusk, and got bit up UNDER MY UNDIES by something.  I am so itchy.  That is what I get for not using bug spray!

Looks like Laura was on the menu last night!

Last night burgers, oven fries and cantelope.

Tonight - KFG lasagna
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#918427 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by kareng on 30 May 2014 - 08:44 AM

One summer evening during a violent thunderstorm a mother was tucking 
her son into bed. She was about to turn off the light when he asked with a tremor in his voice, "Mommy, will you sleep with me tonight?" The mother smiled and gave him a reassuring hug. "I can't dear," she said. "I have to sleep in daddy's room." A long silence was broken at last by his shaky little voice: "The big sissy."


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#918282 Did Your Vitamin D Levels Go Up?

Posted by kareng on 29 May 2014 - 07:07 AM

I asked my nurse if vitamin D needs to be absorbed by the small intestine. She didn't think so, it went right to the blood stream. Maybe one needs more vitamin D when they have celiac untreated? Any other ideas? Why would levels go up when one isn't supplemented?

If you had Celiac, Levels would go up as you heal and can absorb it better from foods. It's spring/ summer - so you would get more from the sun. In the winter, the angle of the earth makes the sun very weak up where you live and harder to get any D through your skin.

Here is an explanation of how that works. It has to do with the skin and the liver.

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#918095 Igg Against Ttg 18 Month Old Babies Results....

Posted by kareng on 28 May 2014 - 05:55 AM


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#918006 Dr Won't Test Me For Celiac Because I Don't Have "classic" Sy...

Posted by kareng on 27 May 2014 - 01:50 PM


Common symptoms of celiac disease may include one or more of the following:
Frequent abdominal bloating and pain
Chronic diarrhea or constipation
Weight loss
Pale, foul-smelling stool
Iron-deficiency anemia that does not respond to iron therapy
Failure to thrive or short stature
Delayed puberty
Pain in the joints
Tingling numbness in the legs
Pale sores inside the mouth
A skin rash called dermatitis herpetiformis
Tooth discoloration or loss of enamel
Unexplained infertility or recurrent miscarriage
Osteopenia (mild) or osteoporosis (more serious bone density problem)
Peripheral neuropathy
Psychiatric disorders such as anxiety or depression
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#917955 The Funny Pages - Tickle Me Elbow - The Sequel

Posted by kareng on 27 May 2014 - 06:35 AM


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#917941 Letter From Dentist To Dental Patient With Ai Suspicions What Should It Say?

Posted by kareng on 27 May 2014 - 05:14 AM

I doubt a dentist would give out that letter.  I hope they wouldn't without verifying the info.  In fact, they should probably have it written by the Celiac Center if they are going to go any further than saying  "We see teeth problems like these, sometimes in Celiac patients.  You might want to check with your doctor".   A dentist should not be giving out medical advice or info except about teeth/mouth issues.


But - let us know what he says.  At least he is looking for this and will mention it as something they should look into.

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#917938 What's In Your Kitchen Kit?

Posted by kareng on 27 May 2014 - 05:05 AM

I invested in some backpacking pans.  They are lighter weight and all fit inside each other so I could take them on an airplane in a suitcase.  About $75 or up to get the bigger size and good ones.  They have little holes in the lid so you can drain pasta without the colander.




I also got these foil grill pans at Walmart in the summer.  They work well on  a grill.  My hub will turn down a few of the slits to let the grease out and hold them in place.  Some grills are so gross, who would want to use them anyway?


this isnt the exact one:




Dish Sponge and a dish towel in odd color so they stand out from the stuff that is there (I get a pink or purple sponge) 


Some plastic/silicone utensils for the pans.


Depends where you are going - some things you may not have to drag along - foil to cover cookie sheets, dish soap, paper towels

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