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kareng

Member Since 26 Jan 2010
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#941184 Duodenoscopes Spreading Super Bugs In The News

Posted by on 28 February 2015 - 06:55 PM

Check out the type of endoscope your doctor wants to use. They can't be cleaned well enough to prevent antibiotic resistant bacteria surviving and several people ahve been made sick or died.

Check out this article before you go so you can check to be safe:
http://www.usatoday....enter/23663747/

Those are not what is used for regular endoscopies to look for Celiac disease.

 

 

The scopes in the news story are for - "The scopes are used for a procedure called ERCP, or Endoscopic Retrograde Cholangiopancreatography, in which the devices are used with contrast dyes and X-rays to help doctors locate and treat blockages in the bile and pancreatic ducts."  

 

This is NOT for regular endoscopies to diagnose Celiac disease. 


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#941136 Ucsb Student In Fall

Posted by on 28 February 2015 - 05:22 AM

Find out what they do to feed the gluten-free students.  You may be able to meet people in the dining hall.  For example, at my boys' college, the sandwich station pulls out a purple box with the gluten-free bread, cutting board, etc for a gluten-free person.  My son met girls this way.   ;)


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#940656 Cross Reactive Foods

Posted by on 19 February 2015 - 03:51 PM

No need to worry.  With Celiac disease, there is no such thing as "cross-reactive".  

 

 

http://www.curecelia...ross-reactivity

 

What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue.

 

 

 

Edit to add - I don't know what "polish wheat" is - if its a form of wheat - Celiacs should not eat it.  


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#940589 Could This Neuropathy Caused By Celiacs Disease, Or Gluten Sensitivity?

Posted by on 18 February 2015 - 12:01 PM

This sounds like something you should speak to a doctor about immediately.  It does not sound like Celiac to me.  The sudden onset of these symptoms makes this seem like a very serious issue.


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#939907 Fibromyalgia Or Celiac?

Posted by on 06 February 2015 - 04:01 PM

Some info from the Celiac Center at the University of Chicago to show your doctor.

 

 

Is there an association between celiac disease and fibromyalgia?

There is no known link, but the two conditions present with similar symptoms. We recommend that those who are diagnosed with fibromyalgia also be screened for celiac disease.

 

http://www.curecelia...nd-fibromyalgia

 

 

http://www.curecelia...ropathy-present

 

How does celiac disease neuropathy present?

The most common manifestation of celiac disease neuropathy is pain, tingling and numbness in the feet. Some patients present with asymmetrical sensory symptoms, or even pain in the face. Muscle weakness and autonomic symptoms are less common in celiac disease neuropathy. It is important to objectively prove the presence of neuropathy in patients with neuropathy symptoms, as these symptoms can be caused by diseases other than neuropathy. These include diseases of the central nervous system, primary pain syndromes like fibromyalgia, and psychogenic diseases.


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#939842 The What's For Dinner Tonight Chat

Posted by on 05 February 2015 - 06:42 PM

I just put the recipe in my blog on the side there. :D DO IT DO IT!!! (it took me about an hour to get it from start to fridge, including dishes. My family will never leave me mouhahahahah)

Here:

http://www.celiac.co...tto-cheesecake/



The blogs sort of fall off the first page and a few weeks from now, this link will be easier
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#939631 How To Encourage A Friend

Posted by on 03 February 2015 - 07:06 AM

I'm with Mamaw - drop a loaf at my house!   :D

 

I have a few thoughts on this & you can see what you think applies.

 

She isn't diagnosed with Celiac and may not have it.  Going gluten-free may help for a few non-Celiac reasons (one example FODMAP as gluten is high in FODMAPs).  If she doesn't have Celiac, then a small amount, like in oats or even a small cheat, won't hurt.  Just encourage her to stay mostly gluten-free in this case - gluten-free bread, crackers, cereal, the things with lots of gluten.

 

People who are new to eating gluten-free sometimes need some time to get used to it.  They start with the obvious things - bread - and as they go along, get more strict.  Maybe just giving her some basic info now and gradually add to it?  Explain about obvious wheat things now and soy sauce having wheat in a few weeks?  

 

I know lots of people feel a lot better when first removing gluten.  The difference between feeling really really awful and just awful seems like a miracle.  As we go along, we realize that we are still feeling "awful"  just not as bad as before.  When she gets to that point, maybe that is the time to offer to help her find all the gluten she is missing and see if she feels even better.


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#939306 Are 4C Gluten Free Bread Crumbs Really gluten-free?

Posted by on 28 January 2015 - 07:34 PM

They know that their bread crumbs are a possible source of cross contamination due to being processed on shared equipment. They are purposely misrepresenting their product without that information. That makes it false advertising which is not allowed.
 They are in fact targeting the portion of public who can be made extremely ill with this falsified information. It is a crime in the US to bait consumers into purchasing a product with falsified information.
 
I reported a company for such behavior. The government forced them to stop endangering people using the above argument . The law is flexible enough to protect people.


I thought they said shared facility not shared equipment. That is different, but still does not have to be labelled. Once again, if it is certified gluten-free, it has been tested for the presence of gluten.
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#939288 Are 4C Gluten Free Bread Crumbs Really gluten-free?

Posted by on 28 January 2015 - 03:57 PM

In the US, these are the stipulations that manufactures must follow:
 
"

  • What does gluten cross-contact mean in the context of the final rule?
    The term “cross-contact” is not defined in the final rule, but gluten cross-contact generally refers to the unavoidable presence of gluten in a food due to contact with a gluten-containing food (wheat, rye, barley, or their crossbred hybrids like triticale). The U.S. Grain Standards allow commodity grains, legumes, and seeds to contain a small percentage of another commodity grain as a result of commingling during production. The presence of gluten in a grain, legume, or seed that is naturally free of gluten from this type of commingling is an example of cross-contact. The typical practice of crop rotation, as well as the shared use of harvesting and transport equipment and storage silos, often results in gluten-containing grains coming into contact with other grains, legumes, and seeds that are naturally free of gluten. Furthermore, manufacturing facilities that use shared production equipment to produce foods both with and without gluten could result in gluten cross-contact. Any grain other than the gluten-containing grains of wheat, rye, barley, or their crossbred hybrids like triticale can be labeled gluten-free, if it meets the definition, including that the presence of any unavoidable gluten due to cross-contact situations is less than 20 ppm."
  • "
  • If a person sensitive to gluten eats a product labeled gluten-free and becomes ill or otherwise experiences adverse health effects, can they report this to FDA?
    Yes, the agency has two ways that consumers can report such concerns:
  • Contact FDA’s Center for Food Safety and Applied Nutrition’s Adverse Event Reporting System called “CAERS” by phone, 240-402-2405 or email, CAERS@cfsan.fda.gov
  • Consumers and manufacturers can also report any complaint they may have about an FDA-regulated food (e.g., potential misuse of gluten-free claims on food labels) to an FDA Consumer Complaint Coordinator for the state where the food was purchased. A list of FDA Consumer Complaint Coordinators is posted at FDA’s website. Reports should include: the name, addresses and phone numbers of persons affected and the person reporting the incident.
  • the doctor or hospital if emergency treatment was provided.
  • a clear description of the problem. Describe the product as completely as possible, including any codes or identifying marks on the label or container.
  • give the name and address of the store where the product was purchased and the date of purchase."
[/*]
[/*]
[/LIST]

There is no law that they must say its a shared facility or that a shared facility would keep a food from meeting the <20 PPP standard. And like I mentioned, if it's " certified" as gluten-free , many of those certifying agencies have a standard of <10 ppm. I don't know which one certified the food she is talking about.
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#938912 Phlegm And Coughing After Eating

Posted by on 23 January 2015 - 04:54 PM

What I don't understand is why I cough immediately after eating wheat, but yet, I have no allergy that has shown up. Will gluten sensitivity do that?


It appears that food allergy tested is not very accurate, so you could have an allergy. You might want to read about food allergy testing from reliable MEDICAL sites ( not some site by someone who is not an MD).
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#938583 Gluten Free Bakery

Posted by on 17 January 2015 - 06:24 PM

.Most businesses get loans or have the money first. If I remember right from my classes, you should have enough money for a year of operating expenses...not including start up costs. Then, if you are lucky, you will at least break even in a year

Maybe look in your area for new business excellorators or entrepreneur/ business mentors? Maybe take some new business start up classes before you get too far in? It seems that many people try to start a business and have no real idea about how much it will cost just on a day to day basis. Remodeling and buying equipment are just the start of your expenses.

And of course you will need a year or more worth of your personal expenses - rent, food, car, etc as you probably won't be making a salary for the first year or two.
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#938478 Cookie Recipes

Posted by on 15 January 2015 - 05:09 AM

Jack "bumped" this back to the top and it was fun to look at this thread.  I think I will add a recipe.  

 

These are sort of a chocolate meringue cookie.  More cookie than meringue.  You could add anything that wouldn't melt.  Drizzle melted caramel or white chocolate or white chocolate with a little peppermint over the top.  I use peanuts and one of my boys likes to microwave them before eating.

 

Flourless chocolate cookies
 
 
Mix 2 cups powdered sugar, 1/2 cup cocoa, 2 tsp. cornstarch, 1/4 tsp. salt, 2 egg whites (not beaten). 
Should be thick enough to form balls; if not, add more sugar. Should be sticky and form a imperfect ball. 
Stir in 1 cup nuts (unsalted
Or salted peanuts, pecans, or walnuts or chocolate/white chips or pieces of candy cane.) Form into 15 balls, place on parchment paper, and bake 16-19 minutes in a 300 oven until crackly and shiny. Cool completely. . They have a sort of crisp-meringue outside, and a soft, chewy inside, 

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#938449 What Is Super Sensitive?

Posted by on 14 January 2015 - 11:54 AM

Are you saying I could of been mis diagnosed though? Because I've had 2 different endoscopys by 2 different doctors with the diagnosis of celiac sprue disease?

 

 

No.  I am not saying you don't have Celiac.  I am saying you may have something else, too and the doctors should be looking for it.


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#938310 Literally Unable To Gluten Challenge

Posted by on 12 January 2015 - 10:12 AM

I think your kids will just have to get tested before going gluten free and see? It's always easier to follow the gluten-free diet, and get others to respect it, with a diagnosis. For example, Many colleges won't accomadate gluten-free without a diagnosis.
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#938131 I Dont Really Follow The Diet Im Suposed To

Posted by on 09 January 2015 - 08:15 PM

As a mom, I have to ask - What is wrong with your parents? Why are they not helping and insisting you treat your medical condition? If you had diabetes, would they not be insisting on testing blood sugars and insulin injections? A peanut allergy - not having PB in The house? If you had strep throat, wouldn't they be getting you antibiotics? How will they feel when you cannot give them grandkids or cannot hold a job because you/they haven't treated your chronic disease? You are a teen ..... You can't be responsible for all of this! Child abuse/ neglect make me soooooo mad!
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