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Member Since 26 Jan 2010
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#930928 Silent Celiac Disease With No Antibodies?

Posted by kareng on 17 September 2014 - 12:31 PM

My twin sister was diagnosed with a severe form of celiac disease so I got tested an year ago showing no symptoms at all!My antibodies were totally negative (contrary to my sis who showed highly elevated antibodies) but my endoscopy showed patchy villous atrophy!I was told to go gluten free so I did for 7 months, nothing changed in my health so now once in a while I eat gluten (even a beer) and I show no problem. Is it possible I was misdiagnosed?Can a silent celiac become more sensitive on a strict gluten free diet?







"Is it possible to have a negative blood test, but a positive biopsy?

While rare, it is possible to have a negative blood test and still have celiac disease. tTG sensitivity is approximately 98%, which means that 2% of all celiacs may have a normal tTG level. Sometimes tTG antibodies are not produced enough to show up in the blood stream and can only be detected in the intestinal mucosa by special means.

IgA deficiency is a reason why you might have a negative blood test, but a positive biopsy.

Further medical evaluation is important for anyone still experiencing symptoms in order to establish the diagnosis or to rule out celiac disease as a part of establishing another diagnosis. In some cases, celiac disease is the wrong diagnosis as such conditions as Crohn’s Disease and food protein allergy share many of the same symptoms."

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#930899 Lipstick/lip Gloss/balm

Posted by kareng on 17 September 2014 - 07:40 AM

Juice Beauty (Whole Foods, Ulta) has a line of decent enough lip glosses.  The entirety of Juice Beauty's product line is gluten free.


I use their gluten-free mascara also.  It's just ok, kinda expensive, but works till I find a better gluten-free brand.   I used to use Clinique mascara, and was sad to find it contains wheat.



I don't worry about mascara.  Not sure if there are any with gluten.  The main things to worry about are the things, like lip gloss, that will get into your mouth.  I worry about shampoo and lotions, too - that's because I am clutzy and get that stuff in my mouth!

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#930380 Is There A Program That Weeds Out The Bad Stuff

Posted by kareng on 11 September 2014 - 09:20 AM

Product ingredients can change from one week of manufacturing to the next.   Even if you use some sort of app for this, you would still need to read the labels.

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#930142 Hotel Waffle Makers With gluten-free Waffle Mix?

Posted by kareng on 09 September 2014 - 02:36 PM

If I were to get the staff to wipe down the waffle maker (self-serve breakfast), is that clean enough to use gluten-free waffle mix do you think???  I'm thinking not but maybe others have done that and are ok???



For a person who insists that she cannot eat a food that doesn't specifically say "gluten-free" on it - even if it should be gluten-free, I find this question surprising.  Have you looked at those things - even when clean?   :blink: 


I might eat the eggs or the bacon if I could talk to the people making it and get it before too many others have stuck a gravy spoon in them.  Hard boiled eggs keep a while.  You can scramble a bunch of eggs and freeze in muffin cups - then microwave.

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#930081 The What's For Dinner Tonight Chat

Posted by kareng on 09 September 2014 - 08:00 AM

I posted this a couple of weeks ago.  Its different things to cook in a waffle iron.  I think they used tator tots for convience.





I know I saw one with tator tots but this is the basic idea of using your own potatoes



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#930071 Low Gluten Meal (Really?)

Posted by kareng on 09 September 2014 - 06:09 AM

Might be a CYA statement?  

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#929870 The What's For Dinner Tonight Chat

Posted by kareng on 07 September 2014 - 03:21 PM

Just a quick pop- in. I want to go too! I think weight would limit the amount of flour we could bring. I would keep all the receipts, too. Might help explain it?

Last night we had some chili in the freezer and a bunch of partial bags of Ore- Ida fries, and some partial bags of shredded cheese. Guess what we had? :).

We are cleaning out all the food. When the boys were home, we would need about 2/3 of a bag of fries. The partial bags would get pushed to the back.

Tonight we are having burgers and cantaloupe and potato chips and toasted marshmallows for dessert!

Tomorrow we are having some pasta with marinara, a little arugula, pesto and Italian sausage added to it.

To catch up, some of our meals lately - brats & fruit , ate at Waldo pizza, ate at PF Chang's, salads with stuff from the farmers market.
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#929273 Aldi's

Posted by kareng on 02 September 2014 - 03:02 PM

I just posted on another thread about Aldi today :D.Their gluten-free products, the ones I bought are all certified gluten-free, From what I'm reading on the packages, they do not process on shared equipment. Someone got an email back from Aldi on the other tread on this topic.


It doesn't address the labels but they did get a response. With the holiday weekend, it might take a while for them to catch up. It also appears that these products are reboxed gluten-free products from other companies that do have info. Check out the other thread.

Just want to address the " re- boxed" thing. Companies don't usually buy a packaged item and take it out of the package and put it into their packaging. That would be expensive and have many health code issues. The most common thing is - a factory makes a product and puts it in different boxes, wrappers, etc depending on which company is buying it. Sometimes, a factory might sell large lots of something - like a tanker truck full of processed milk - to be packaged at the companies factory.

I don't know a lot about Aldi, but I believe they are a large, international chain. It is possible they have their own factories and large contracts with other manufacturers.

To further explain- there is a margarine factory here. They make the same margarine but it gets put into different wrappers and then boxes depending on the retailer that is buying them. They make a brand name and a several store brands.

Looks like one branch of Aldi owns Trader Joes, too.


"Aldi mainly sells exclusively produced, custom-branded products (often identical to and produced by major brands[30]"
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#928387 The What's For Dinner Tonight Chat

Posted by kareng on 25 August 2014 - 08:10 AM





A slow cooker

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#928311 Safe Wines For Super- Sensitive People?

Posted by kareng on 24 August 2014 - 06:01 AM

When I was looking at wines yesterday I noticed some stating that they were unoaked. I also heard someone asking about a wine and being asked if she preferred unoaked. Is that a gluten thing referencing the use of barrels?

No. Some people don't like the flavor oak imparts to a wine.

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#927767 Cost Of Celiac Genetic Test?

Posted by kareng on 17 August 2014 - 04:45 PM

The gene just means you can get it. But, about 30% of people have a Celiac gene.... And they think about 1% have celiac. So, all it would do is rule it out.


"Genetics don’t diagnose celiac disease. They do, however, clarify whether an individual is “at-risk” for it. If this is the case, you should closely monitor your symptoms and submit to blood tests every 2-3 years or immediately upon the sight of symptoms. ..."
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#927758 2.5 Years After My First Episode, Dh Returns With A Vengence . . .

Posted by kareng on 17 August 2014 - 02:33 PM

Though I appreciate your input Yum!, please do not insult either my intelligence or perceptive capacity via pointless suggestions. I went to emergency for Edema, not DH. The emergency team confirmed my Edema was Celiac related as they have experience with those like me. Thank you and peace,


Wow! Alrighty then.....

You said you were self-diagnosed with Celiac. I thought, since you were eating or drinking gluten, it would be a good time to get a definitive diagnosis. Sorry. I can see you do not want any suggestions.

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#927701 The What's For Dinner Tonight Chat

Posted by kareng on 16 August 2014 - 04:34 PM

This is my new favorite drink! The first one I made didn't have much strawberry flavor. So I muddled the strawberries ( that means squish them a little) in the bottom of a glass and added the wine and let it sit in the fridge while I drank the first one . That was even better! Raspberries, watermelon, peaches, oranges, really lots of fruits would be good this way.
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#927671 First Time Posting And Desperately Seeking Answers And Support

Posted by kareng on 16 August 2014 - 09:31 AM

I would suggest you not go out to dinner for a while (a few months).  Make sure you are really gluten-free.  A little gluten will keep you from healing.  Also, are you eating dairy?  Lactose can be very hard to digest until you are healed.  Some adults, Celiac or otherwise, cannot digest it at all.  


With your previous issues, it could be something else.  But I really think you should give the gluten-free diet a very very careful effort.

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#927416 A1 And Why I Can Not Trust Kraft

Posted by kareng on 14 August 2014 - 09:28 AM

If you believe that Kraft is mislabeling ingredients, you should report them to the FDA. What you are alleging is against the law and should be reported and there should be a recall.  There is a way to do that on the FDA website.

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