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kareng

Member Since 26 Jan 2010
Offline Last Active Private
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#717912 The What's For Dinner Tonight Chat

Posted by kareng on 21 July 2011 - 03:49 PM

Whatever I decide to put on the sidewalk to cook! 104 F at 6:30 pm.
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#717851 Help And Advice Deperatley Needed!

Posted by kareng on 21 July 2011 - 12:26 PM

Apparently the celiac test results are not in and take 2-3 weeks. Regular bloods are all normal - no signs of anaemia, inflammation (chrones) etc. Colonoscopy brought forward to end of August. Can a colonoscopy confirm Celiac??


Colonoscopy looks at the wrong end. You need an endoscopy with small bowel biopsies to diagnose Celiac
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#717803 The Funny Pages - Tickle Me Elbow - The Original

Posted by kareng on 21 July 2011 - 09:34 AM

Well I just got the latest on where they are. I did some figuring and I don't think they will be here until 7 or 8 at night. So my new plan is to just leave all the lights off and pretend to be asleep. All these boxes are bothering my allergies and I will need to take some Benedryl. I can sleep through pretty much anything when I take a couple benedryl. :D


Hub can tell them you aren't feeling well. He can meet them if he wants or tell them he has to get some stuff done quietly while you sleep. Maybe some stuff from his job since he has to take a day off & they are terribly busy right now?

Vegas is sooo hot right now. Is there somewhere else we could meet? Maybe Jess's house? WE could commune with the chickens.
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#717709 Glutino Lemon Wafer Cookies

Posted by kareng on 20 July 2011 - 05:59 PM

I can not have these! They are too dangerous! I can not stop eating them!

Seriously, if I had found these before going gluten-free, I would have eaten them.
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#716804 Trolling For Trolls

Posted by kareng on 16 July 2011 - 05:34 PM

My troll, Ima Ceelee Ackcure, says this is all a bunch of lies and she has dubious research from her uncle to prove it.
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#715933 Is Contamination Unlikely?

Posted by kareng on 12 July 2011 - 11:32 AM

I'm sorry you're still feeling sick. You are probably not getting CC if your TTG has dropped back to normal. What your Dr. probably didn't tell you is that a Marsh 3 biopsy typically takes a couple years to heal, and can take as long as five years if the damage is really bad. At three months with the TTG down, now your body can start to repair damage.

I also had to go casein-free/soy-free when I first got off gluten to be rid of the stomach trouble. I could only digest those foods after about a year gluten-free. You might try eliminating some of the common problem foods like dairy, soy, and corn to see if any of those are making you feel ill from non-celiac intolerances.



That's what I was going to say! :)
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#715621 Should I Still Call It Celiac Anyway?

Posted by kareng on 11 July 2011 - 08:38 AM

Okay, so my blood work came back negative for celiac, and because I respond so well to the gluten-free diet, my GI dr wants to diagnose me as gluten sensitive (just like he wanted to diagnose me with IBS before I requested the test :rolleyes: ). I'm still firmly convinced that the test result is false because...

1. I had to request it myself so I have little faith in how often my dr. or his lab sees the test to have the experience to run it correctly.

2. My grandmother was positively diagnosed with celiac. :D

3. All my symptoms fit and are being relieved by a gluten-free diet.

So my question is, because I'm officially diagnosed gluten intolerant, do others (i.e. restaurants, family, friends) in general respond more seriously if you tell them your gluten intolerant, or that you have celiac disease?



Tell them Celiac Disease. And if they don't understand, tell them wheat allergy. I know Wendy's workers understand allergy. You really don't have to explain the whole medical history to anyone but us.
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#715426 Tennessee Pride Country Sausage gluten-free?

Posted by kareng on 10 July 2011 - 05:37 AM

Thank you! I just had this question arise in my house and couldn't find the answer on their site either.


Please notice that this info is 5 years old. Products and maufacturing practices change. You need to read the ingredients, maybe check the current website or speak with the company.
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#715177 Advice Getting Our Granddaughter Tested

Posted by kareng on 08 July 2011 - 02:56 PM

I think call the pediatrician. Just be aware that many of them don't want to be confrontational. Even though this could be considered neglect, many don't want to get involved. It's the law but a doctor could rationalize as its not diagnosed, etc.

Perhaps you could get your son alone and talk to him? You might let him know that if she continues with whatever may be wrong with her, when she is in school the teachers will notice. If he refuses to get her help then, they will have to call CPS, its the law.

I don't think you should threaten to call social services yet. But it is something to think of in the future. Are you prepared to take custody at some point? The fiance sounds like a problem.

Good luck! It is frustrating to see someone doing the wrong thing & you can't so much.
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#715020 Just Got Fecal Test Report Back, I'm Allergic To Everything?

Posted by kareng on 07 July 2011 - 07:10 PM

This is purely my opinion based on unscientific feelings. I met the Enterolab doc. I was excited to hear from him. Saw him speak. Left at the intermission. He was a bit too slick for my tastes. I never felt he gave us enough info to understand the way the tests work. I think there is something to testing poop. It is what our body is rejecting. I would take the results with a grain of salt as the saying goes. Use them as a starting or place to start a trial.
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#714733 I Missed The Fourth Of July

Posted by kareng on 06 July 2011 - 05:31 PM

Sorry you are feeling yucky! I think some people have a similar to gluten reaction to corn.

Please! Don't loose faith in chocolate! It isn't evil. Some of the companies that mix it with unnatural additives are the evil ones.

Trying to come up with some jokes but they all seem corny and not very funny. I'm afraid the corn intolerant population would give me an earful or cob me over the head!
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#714651 Anyone Use Penzey's Spices?

Posted by kareng on 06 July 2011 - 11:42 AM

If they don't use any products that have gluten, & most wouldn't even be near a wheat field or wheat harvester or wheat silo or wheat truck, why would they go to the expense to test for gluten? Even then all they could say is it tests for less than 20 or 10 or 5. The tests can't say 0 even if it is 0.
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#714479 Need Help Badly!

Posted by kareng on 05 July 2011 - 08:40 PM

This is just making me mad that you would even consider this!

Depending on the state you live in, sending your child to stay in an environment that you know is unsafe, is child neglect, medical neglect and or child abuse!
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#714473 My Mother In Law Is Making Me Nuts

Posted by kareng on 05 July 2011 - 08:12 PM

So i'm fairly newbie.. and have been doing pretty good. I know that my eating habits were poor for years.. I never thought about it. Now I'm thinking about EVERYTHING I put in my mouth (see other post about thinking about food all the time) This is a huge change for me and its hard. MANY of my favorite food (i.e. french dip sandwiches) are not basically off limits as i've known them.

So my own mom is being great. She lives 6 hours from me and is always sending me recipes and things... my MIL however is being nuts. She thinks is "ridiculous" and how could I be 37 and have this just come up... like i'm making this up. She is like "you can eat this" I"m like "i cannot.. it has croutons in it" She rolls her eyes and scoffs off like i'm purposely cutting out HER food. I tried nicely explaining to her about how I get really ill and its just not worth it. She said "well.. just wait a few weeks and try again" I think she doesnt believe me.

vent over.



Because you are new to this, limit your exposure to her. Let hub do things with her. When you have figured this out, then you can be around her. Then state it once then ignore her. Or don't respond at all.
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#714199 Accidentally Ate Gluten/wheat But No Reaction?

Posted by kareng on 04 July 2011 - 02:28 PM

I've been on the gluten/wheat free diet for 12 days, although I did go gluten/wheat free a couple of days before my blood test (which was negative) before going back on it since I was told to in case I screw up the results.



I just re-read this. You have only been "gluten/wheat free" for 12 days. Going to a bar that can't tell you what is in the food & then actually eating it, tells me you haven't really been gluten free for the whole 12 days. When you are ready, really try the gluten free diet for a few weeks and see if you feel better.

The problem with this gluten light approach is, if you are Celiac, you are producing the antibodies from the gluten so you haven't healed anything. I would think that gluten intolerants wouldn't really heal & feel thier best either.
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