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Member Since 26 Jan 2010
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#708847 Need Ideas For Summer

Posted by kareng on 15 June 2011 - 05:58 AM

Y'know, there are lots of good suggestions here. I agree with what someone else said: If she's unwilling to try anything, then maybe she should sit home by herself, hot and bored. You can't always cater to what she wants.

Perfect Pals is the animal shelter? Did you even explain your situation to them. Maybe they would have something for her. I think you are shooting down ideas before really finding out what is possible. The only reason I keep trying is I worry about your daughter & this negative attitude.

The animal shelter here has a thing called "cat socializer". I knew a kid who did that. They gave him the cats that were very shy. He sat quietly in an empty office & waited for the cat to come to him or get used to people. Sometimes they do that for dogs, too. They have a guinea pig right now they need someone to sit with it & cuddle & 2 rats that like to be read to (childrens books are OK) and petted.

I have offered my boys options but if they choose nothing, then they have to deal with it. When they get bored enough, they find other things to do. They even go back to kid stuff like legos or Dr Suess books (one is not a good reader).

If she really is this negative about everything - maybe she should have a workup for depression.

My kids have had friends that have had injuries and couldn't do much but they do what they can. They watch there friends games, play cards or board games, sit at the pool & put thier feet in, go to the mall & let a friend push them around in a wheelchair, drive the electric chair & grocery shop with mom, etc. A normal 12 year old would find things to do.

Remember when she starts whining that she is bored - The bedroom door closes and you can turn the TV volume up. ;)
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#708841 Incomplete Testing, Stupid Nurse!

Posted by kareng on 15 June 2011 - 05:36 AM

Whoops! We were posting at the same time. Didn't mean to repeat what you said. :D

Great minds think alike!
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#708829 Incomplete Testing, Stupid Nurse!

Posted by kareng on 15 June 2011 - 05:03 AM

Try printing the sheet about what tests are neccessary to show the doctors. I have found that this has helped with our docs. They like to have info from another doc not some stupid patient. :angry: Highlight the exact test names and ask for those by name. "Celiac panel" sometimes has some extra stuff thats not neccesary.

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#708826 The Gluten Was "fermented" Out Of The Sauce

Posted by kareng on 15 June 2011 - 04:54 AM

I just feel like a fool... I always assumed :rolleyes: that if a company labels a product gluten free (or sugar free, caffeine free, soy free, dairy free, whatEVER) that they must have the testing to back it up before they market it as such? And if they had this testing in place, shouldn't it be available to people like you and I to view to reassure our Celiac selves that we are safe when we consume it? I guess I just have an awful lot to learn!

In the US there is no law about what gluten-free means. We have some great companies that make things and put gluten-free on them because they don't put anything gluten in them. But they don't test. If they had to test, it would be too expensive. For example - a grocery store chain labels canned fruits & vegs gluten-free. The only gluten was someone's lunch in the lunch room.

There is still the problem of companies that label wheat or barley on the ingredients but insist its gluten-free. Just shows we must read the labels.
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#708637 The Gluten Was "fermented" Out Of The Sauce

Posted by kareng on 14 June 2011 - 01:56 PM

I have family members with celiac
disease that use this product without problems and have done so for many
years.....as do many of our customers. "

I want to get in touch with these celiacs. I have swamp land. the Brooklyn Bridge and a cure for Celiac I want to sell them. ;)
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#708261 Hi, I'm New. Few Questions.

Posted by kareng on 13 June 2011 - 07:58 AM

Check this thread out if you haven't.

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#708239 Need Ideas For Summer

Posted by kareng on 13 June 2011 - 06:11 AM

Sounds like she is just going to be bored. She will have to find a way to amuse herself if she refuses everything you offer. If she starts whining, she can whine in her room with the door closed. Yes she has some medical problems but so do alot of other kids her age.

You really should go to the library & check for what is available in computers, DVDs, music, etc before you shoot that idea down.
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#708009 Your Top Two Pieces Of Advice

Posted by kareng on 12 June 2011 - 08:51 AM

Korwyn, maybe if we ask nicely one of the moderators will "sticky" it and weed out our friendly back-and-forth so it's all suggestions. I don't think anyone would mind this thread being cleaned up and if it's "sticky" new folks can find it easily.

Yeah, maybe the moderators can add the list to the top and make it sticky.

I started to pour maple syrup in the celiac disease drawer to make this sticky, but my son stopped me & said I didn't understand. :)

I sent a note to the "Boss" that you all are asking about this. I don't know if its doable or desired. It has been a fun post. We could do it every couple of months and get different people but I imagine most of the advice would stay the same. I'm quite partial to the advice about beating people with a stick like a pinata. :ph34r:
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#707976 New Link To Heinz Gluten Free List

Posted by kareng on 12 June 2011 - 06:24 AM

That's a great list.

For the brain fogged or child distracted - the countries that product is gluten-free in are listed. A product might be gluten-free in the US but not in Australia (for example).
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#707427 Kicking In My Sleep

Posted by kareng on 10 June 2011 - 04:49 AM

I don't know what causes this. My hub has it occcasionally so he has read about it a little. Seems it could be a vitamin deficiency (potassium?) or a lack of exercise or s sypmtom of mental illness. For him, exercise seems to help.
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#706830 New Celiac With Two Questions- Corn And Oatmeal

Posted by kareng on 08 June 2011 - 07:22 AM

Should have added: Most gluten-free foods do not say gluten-free on them. Meat, fruit, beans, veggies, most ice cream, dairy products, etc. Just bread, cookies, pasta, etc. Try sone of the things you put on pasta on brown rice or quinoa.
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#706829 New Celiac With Two Questions- Corn And Oatmeal

Posted by kareng on 08 June 2011 - 07:19 AM

Take the oatmeal back or give it to the food pantry. Quaker will tell you it is not gluten-free. Oats are harvested, transported & processed on the same equipment as wheat and usually contains some wheat. You have to get certified gluten-free oats.

That said, it is usually not recommended that you eat oast until you have healed. About 10% of Celiacs react to the gluten in the oats just like the gluten in wheat.

All grains have gluten. Its not all the same. Corn is not the same and can be a part of a gluten-free diet. Some people do find corn hard to digest or react to it. It isn't part of the Celiac.

Most doctors don't really know much about Celiac or nutrition in general. The fact that he got the corn & the oats reversed just shows that you have to research for yourself.

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#706041 Omg What Did I Do ...i Took A Chance Ugh

Posted by kareng on 05 June 2011 - 04:20 PM

Why are you gluten free? Diagnosed or just experimenting? I think you found your answer.

There were so many things wrong with that meal & dessert from a gluten free perspective (not just the fries). Never eat anything that has touched gluteny bread. Not sure how the chicken or ribs were cooked but lots of places put soy sauce (usually contains wheat) in the marinade or BBQ sauce. Of course the dessert bar was made with wheat flour.

The safest thing you had was the lemonade.
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#705814 Need A Little Help With Shopping

Posted by kareng on 04 June 2011 - 06:48 PM

I know people do make breads in the bread maker. Just be careful if you have made gluten breads in it. It's hard to get the flour out of every little space.

Also, about 10% of Celiacs react to oats. It's usually recommended you don't try them until you are healed.
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#705602 Dealing With My Son Working In A Restaurant

Posted by kareng on 04 June 2011 - 04:37 AM

. If your son is a big enough to work at a restaurant, he should be able to wash his own clothes.

Either have him wash those himself, or at least get him to put them in the washer, and once they have gone through the washer they should be fine.
As someone else mentioned if your son is old enough to work he is old enough to learn how to do his own laundry. He may balk a bit if he is used to having you do them for him but it is something he should learn to do before he moves into his own home.

Heard that anywhere before Lo? ;)

Tell Tony we said to shake his clothes off before he gets in the car. As soon as he get in the house, do not get a gatorade, do not grab a cookie, do not check the ball game on TV, go straight to the shower. Take the clothes off inside out. Leave on the bathroom floor. Brief shower to get the crumbs out of the hair. Put clothes in the wash machine. Good boy!

You could have him strip in garage if that works better. (Close the door first)
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