Apparently the celiac test results are not in and take 2-3 weeks. Regular bloods are all normal - no signs of anaemia, inflammation (chrones) etc. Colonoscopy brought forward to end of August. Can a colonoscopy confirm Celiac??
Colonoscopy looks at the wrong end. You need an endoscopy with small bowel biopsies to diagnose Celiac
Well I just got the latest on where they are. I did some figuring and I don't think they will be here until 7 or 8 at night. So my new plan is to just leave all the lights off and pretend to be asleep. All these boxes are bothering my allergies and I will need to take some Benedryl. I can sleep through pretty much anything when I take a couple benedryl.
Hub can tell them you aren't feeling well. He can meet them if he wants or tell them he has to get some stuff done quietly while you sleep. Maybe some stuff from his job since he has to take a day off & they are terribly busy right now?
Vegas is sooo hot right now. Is there somewhere else we could meet? Maybe Jess's house? WE could commune with the chickens.
I'm sorry you're still feeling sick. You are probably not getting CC if your TTG has dropped back to normal. What your Dr. probably didn't tell you is that a Marsh 3 biopsy typically takes a couple years to heal, and can take as long as five years if the damage is really bad. At three months with the TTG down, now your body can start to repair damage.
I also had to go casein-free/soy-free when I first got off gluten to be rid of the stomach trouble. I could only digest those foods after about a year gluten-free. You might try eliminating some of the common problem foods like dairy, soy, and corn to see if any of those are making you feel ill from non-celiac intolerances.
Okay, so my blood work came back negative for celiac, and because I respond so well to the gluten-free diet, my GI dr wants to diagnose me as gluten sensitive (just like he wanted to diagnose me with IBS before I requested the test ). I'm still firmly convinced that the test result is false because...
1. I had to request it myself so I have little faith in how often my dr. or his lab sees the test to have the experience to run it correctly.
2. My grandmother was positively diagnosed with celiac.
3. All my symptoms fit and are being relieved by a gluten-free diet.
So my question is, because I'm officially diagnosed gluten intolerant, do others (i.e. restaurants, family, friends) in general respond more seriously if you tell them your gluten intolerant, or that you have celiac disease?
Tell them Celiac Disease. And if they don't understand, tell them wheat allergy. I know Wendy's workers understand allergy. You really don't have to explain the whole medical history to anyone but us.
I think call the pediatrician. Just be aware that many of them don't want to be confrontational. Even though this could be considered neglect, many don't want to get involved. It's the law but a doctor could rationalize as its not diagnosed, etc.
Perhaps you could get your son alone and talk to him? You might let him know that if she continues with whatever may be wrong with her, when she is in school the teachers will notice. If he refuses to get her help then, they will have to call CPS, its the law.
I don't think you should threaten to call social services yet. But it is something to think of in the future. Are you prepared to take custody at some point? The fiance sounds like a problem.
Good luck! It is frustrating to see someone doing the wrong thing & you can't so much.
This is purely my opinion based on unscientific feelings. I met the Enterolab doc. I was excited to hear from him. Saw him speak. Left at the intermission. He was a bit too slick for my tastes. I never felt he gave us enough info to understand the way the tests work. I think there is something to testing poop. It is what our body is rejecting. I would take the results with a grain of salt as the saying goes. Use them as a starting or place to start a trial.
If they don't use any products that have gluten, & most wouldn't even be near a wheat field or wheat harvester or wheat silo or wheat truck, why would they go to the expense to test for gluten? Even then all they could say is it tests for less than 20 or 10 or 5. The tests can't say 0 even if it is 0.
So i'm fairly newbie.. and have been doing pretty good. I know that my eating habits were poor for years.. I never thought about it. Now I'm thinking about EVERYTHING I put in my mouth (see other post about thinking about food all the time) This is a huge change for me and its hard. MANY of my favorite food (i.e. french dip sandwiches) are not basically off limits as i've known them.
So my own mom is being great. She lives 6 hours from me and is always sending me recipes and things... my MIL however is being nuts. She thinks is "ridiculous" and how could I be 37 and have this just come up... like i'm making this up. She is like "you can eat this" I"m like "i cannot.. it has croutons in it" She rolls her eyes and scoffs off like i'm purposely cutting out HER food. I tried nicely explaining to her about how I get really ill and its just not worth it. She said "well.. just wait a few weeks and try again" I think she doesnt believe me.
Because you are new to this, limit your exposure to her. Let hub do things with her. When you have figured this out, then you can be around her. Then state it once then ignore her. Or don't respond at all.