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kareng

Member Since 26 Jan 2010
Offline Last Active Private
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#719561 Toddler With Celiac?

Posted by on 29 July 2011 - 07:20 PM

Thanks for the input, we really appreciate it.

It's a little weird that my wife and I don't know anyone in either family that has celiac. But that doesn't mean she doesn't have it. I've read that it's recommended that the other three in our family be tested, and I'm sure we'll follow through (especially the four year old).

No question keeping the little one away from gluten will be a challenge. She's a food clepto right now, stealing anything she can get her hands on, and right into the mouth. But that will slow some in the future too.

I did stop by the grocery store with the girls this evening, and checked the gluten free aisle. Hy-Vee in KC has a very good organic and health food section, and they had a full aisle dedicated to specifically gluten free products. That was encouraging (although the prices weren't). At least we've got somewhere to start on the gluten free foods if we need to.

Thanks so much for your input. The appointment with the pediatric gastroenterologist isn't until early September, so it'll be a little bit before we know.


Not sure where you live, but the HyVee on 135 th & Antioch has a huge amount of gluten-free I've heard the one inLenexa and the one in Olathe on Ridge View have a big selection. The one on State Line & 123 and the one in PV are not as big but still good.

You will find things that are naturally gluten-free & cheaper - like a lot of fruit snacks. We like Welch's.

I live in the southern OP area if I can help. message
me if you want.
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#719534 The What's For Dinner Tonight Chat

Posted by on 29 July 2011 - 05:39 PM

Tonight I made white rice, steamed broccoli, fresh tomatos, garlic and chicken tossed together with a little worcheshitre sauce!! It was so simple 10 minutes and dinner was ready and there is enough for lunch tomorrow!!!!


Good job! You can make extra rice an freeze it in a baggie with your name on it. Then pop it out when you need some. I have found it stays good in the freezer for 3 months. Sometimes I cook little bits of carrot with the rice for a little added nutrition.
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#719479 2011 List Of Safe Alcoholic Drinks

Posted by on 29 July 2011 - 12:10 PM

What's up with Hornsby's?


Just spoke to Hornsbys. The Crisp Apple flavor is gluten-free. The Amber flavor has a trace amount of gluten. whew! I have been drinking the crisp apple flavor & enjoying it on a hot day!

I wish they had to list ingredients like food does.
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#719428 Let's Do Gluten Free Sugar Cones

Posted by on 29 July 2011 - 06:13 AM

yum yum yum! Now if I could only find gluten free pizzelles I would be in gluten free heaven!


Don't leave us in suspense! What are they called? Where did you find them? You look like that in a bikini & & expect us to believe you eat ice cream? :lol:
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#719326 Gluten-Free Myths

Posted by on 28 July 2011 - 12:58 PM

If the food has any dampness, wheat flour wouldn't work. Think about what happens to it when you try to wipe it off the counter with a wet sponge. It glumps up ( technical term :) ) & makes a sticky mess.

What companies have told you they did that? Or articles?
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#719126 Is Gin A (Gluten) Sin?

Posted by on 27 July 2011 - 03:35 PM

I think gin is made from juniper berries not anything resembling wheat. At least it used to be.
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#718976 Donating gluten-free Foods To A Food Cupboard

Posted by on 26 July 2011 - 07:15 PM

Thanks for all the good advice! I hadn't even thought about Amazon for bulk orders, I will definitely have to look into that (love their free shipping offers!). And great advice to go for items clearly labelled Gluten Free on the front of the package. That's a good thing to try to stick with especially in the beginning perhaps, as I don't think anyone there is particularly an expert on the subject, though their hearts are certainly in the right place and bless 'em for doing this. Awesome list for kids' food, thank you so much! I won't be able to get everything all at once, but we try to donate monthly, so I'll send some variety and then ask how it went and what was popular.

Yes, I agree food cupboards vary widely in what they can or will do. This one is wonderful in that instead of handing out pre-packed bags of food, the clients are actually allowed to 'shop' from the choices available with a volunteer guiding them, you can have one of these and two of that kind of thing. I always thought it was a blessing for people with special needs diets to be given choices, and I'm so delighted that they're taking this extra step for the gluten-free crowd.

I like to get the mainstream stuff that's gluten-free, too. I would put them in boxes or paper grocery bags with full sized white sheets of paper that say gluten free. You might want to even label each box, jar, carton, with a piece of white paper. This helps with the mainstream items. I also think we are teaching the food pantry what main stream things are gluten-free. The point is to have stuff that we know is safe set aside. The pantry doesn't have to figure it out. The people may not realize something is good.
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#718906 Glutened At Costco

Posted by on 26 July 2011 - 02:21 PM

I never eat samples because I worry about all the other people putting thier hands on or around my sample. Sometimes they are demonstrating 2 diffferent products & one had gluten.

I shouldn't say never. When HyVee does the gluten-free sample day, I skip breakfast. ;)
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#718905 Donating gluten-free Foods To A Food Cupboard

Posted by on 26 July 2011 - 02:18 PM

I thought I should just mention, for those wishing to donate gluten-free food - make sure they know what it is & will keep it separate. I emailed a BIG pantry here & they couldn't be bothered. I found another that is smaller & works with the families to help with multiple issues.

You can always donate Chex cereals to any food pantry & not feel like you wasted money if non gluten-free eat it. & if someone gluten-free is there, they will appreciate it.
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#718866 Donating gluten-free Foods To A Food Cupboard

Posted by on 26 July 2011 - 10:40 AM

The one I take food for says the Crunchmasters crackers are very popular. They are on sale, big boxes, at Costco right now. - regular $7.50. Now $5. At Walmart I think they were about $7. You get 2 packages in the box, so some shelters will split them. I gave Chex & they put it with th gluten-free stuff. I also got jars of pasta sauce to go with the pasta. I got some fruit snacks like Welch's that say gluten-free. I got some Progresso soups that say gluten-free on them. I put the stuff in boxes labelled gluten free.
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#718602 Is There Something Called "contamination Celiac"?

Posted by on 25 July 2011 - 09:21 AM

Lookie! More! Copy them all off. Under line or circle the important parts.

http://www.celiacdis...nts/A02-FAQ.htm

Q: Is it ok if I ingest some gluten if I do not experience any symptoms?

No. The majority of patients with celiac disease experience no symptoms when they ingest gluten, either intentionally or unintentionally. This led to the concept that patients, especially children may grow out of the disease. In addition, patients also consider that it is doing no harm to them. However the ingestion of even small amounts of gluten results in damage to the small intestine--regardless of the presence or absence of symptoms--and puts the patient at risk for resulting complications including malignancies and osteoporosis.


http://www.bidmc.org...Diet.aspx#cheat

Can I cheat on my gluten-free diet?
Unfortunately, the answer to this question is no. Even when you are sticking to a gluten-free diet, it is impossible to eat gluten-free 100% of the time. This is because there is always some level of contamination of foods, whether it is when the food is processed, when dining out, or in your own kitchen at home. Intentional or unintentional ingestion of gluten will prevent your villi from healing well. Therefore, it is very important to follow the gluten-free diet as carefully as you can to benefit from it.

What are the consequences of not following a strict gluten-free diet?
There are serious consequences of not following a gluten-free diet when advised to do so by your physician. There will be continued changes in the lining of your intestines. These changes will lead to decreased absorption of nutrients, possibly leading to other conditions such as osteoporosis and anemia. You will also be at increased risk for gastrointestinal cancers, as well as non-Hodgkins lymphoma.

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#718597 Is There Something Called "contamination Celiac"?

Posted by on 25 July 2011 - 09:14 AM

There is no degrees of Celiac. Whoever fed them that bull is either trying to sell them something or her daughter lied because she doesn't want to do the diet completely. Her daughter is an adult.

Might give her a copy of this info. You canbably find something similiear on the Columbia or Mayo or Maryland websites to bombard her with.

http://www.celiacdis...sTreatment6.pdf

The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage the intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms.
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#718595 Being Human Is Tough

Posted by on 25 July 2011 - 09:06 AM

I am trying really hard not to kick myself. There is a part of me that wants to scream, in fear, & in frustration.


Kick & scream at the boyfriend! Might make you feel better. :angry:

Because you caught it right at the beginning, maybe you will be OK.
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#718434 Alexia Foods

Posted by on 24 July 2011 - 12:13 PM

You might want to check this recent discussion:

http://www.celiac.co...otato-products/
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#718388 Some Questions About Gluten Reactions...

Posted by on 24 July 2011 - 05:55 AM

I think you have answered your question. Don't eat food prepared by others. You may find a place to eat that is safe, one day.... :)

Bring food to other houses just for hub or eat before you go.
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