It's not so strange to find negative blood test in an adult person...only a colonscopy often reveals this disease... My advice is to eat normally the food containing gluten because in this way there isn't the risk to distort the biopsy's result...
That is incorrect. A colonoscopy does not diagnose Celiac. You need an endoscopy with multiple biopsies to have any chance of finding Celiac damage. A doc might do a colonoscopy at the same time to check for other problems.
Apparently the celiac test results are not in and take 2-3 weeks. Regular bloods are all normal - no signs of anaemia, inflammation (chrones) etc. Colonoscopy brought forward to end of August. Can a colonoscopy confirm Celiac??
Colonoscopy looks at the wrong end. You need an endoscopy with small bowel biopsies to diagnose Celiac
Well I just got the latest on where they are. I did some figuring and I don't think they will be here until 7 or 8 at night. So my new plan is to just leave all the lights off and pretend to be asleep. All these boxes are bothering my allergies and I will need to take some Benedryl. I can sleep through pretty much anything when I take a couple benedryl.
Hub can tell them you aren't feeling well. He can meet them if he wants or tell them he has to get some stuff done quietly while you sleep. Maybe some stuff from his job since he has to take a day off & they are terribly busy right now?
Vegas is sooo hot right now. Is there somewhere else we could meet? Maybe Jess's house? WE could commune with the chickens.
I'm sorry you're still feeling sick. You are probably not getting CC if your TTG has dropped back to normal. What your Dr. probably didn't tell you is that a Marsh 3 biopsy typically takes a couple years to heal, and can take as long as five years if the damage is really bad. At three months with the TTG down, now your body can start to repair damage.
I also had to go casein-free/soy-free when I first got off gluten to be rid of the stomach trouble. I could only digest those foods after about a year gluten-free. You might try eliminating some of the common problem foods like dairy, soy, and corn to see if any of those are making you feel ill from non-celiac intolerances.
Okay, so my blood work came back negative for celiac, and because I respond so well to the gluten-free diet, my GI dr wants to diagnose me as gluten sensitive (just like he wanted to diagnose me with IBS before I requested the test ). I'm still firmly convinced that the test result is false because...
1. I had to request it myself so I have little faith in how often my dr. or his lab sees the test to have the experience to run it correctly.
2. My grandmother was positively diagnosed with celiac.
3. All my symptoms fit and are being relieved by a gluten-free diet.
So my question is, because I'm officially diagnosed gluten intolerant, do others (i.e. restaurants, family, friends) in general respond more seriously if you tell them your gluten intolerant, or that you have celiac disease?
Tell them Celiac Disease. And if they don't understand, tell them wheat allergy. I know Wendy's workers understand allergy. You really don't have to explain the whole medical history to anyone but us.
I think call the pediatrician. Just be aware that many of them don't want to be confrontational. Even though this could be considered neglect, many don't want to get involved. It's the law but a doctor could rationalize as its not diagnosed, etc.
Perhaps you could get your son alone and talk to him? You might let him know that if she continues with whatever may be wrong with her, when she is in school the teachers will notice. If he refuses to get her help then, they will have to call CPS, its the law.
I don't think you should threaten to call social services yet. But it is something to think of in the future. Are you prepared to take custody at some point? The fiance sounds like a problem.
Good luck! It is frustrating to see someone doing the wrong thing & you can't so much.
This is purely my opinion based on unscientific feelings. I met the Enterolab doc. I was excited to hear from him. Saw him speak. Left at the intermission. He was a bit too slick for my tastes. I never felt he gave us enough info to understand the way the tests work. I think there is something to testing poop. It is what our body is rejecting. I would take the results with a grain of salt as the saying goes. Use them as a starting or place to start a trial.