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kareng

Member Since 26 Jan 2010
Offline Last Active Private
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#714033 Is Dr. Pepper Gluten Free?

Posted by on 03 July 2011 - 01:50 PM

Dr Pepper and Pepsi may be listed as gluten free on their websites but everyone's reactions are different with this disease. Whenever I drink a dark colored soda, I have a reaction like I have eaten gluten.



That doesn't mean they are not gluten free. You react to something in them. Sometimes it is hard to figure out what.
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#713510 Change In Alexia Frozen Potato And Sweet Potato Products

Posted by on 01 July 2011 - 12:13 PM

Alexia brand frozen potato and sweet potato products (except for potato bites) had gluten free on the label and were made in a gluten-free facility up until now. Due to expansion, they are going to be made in a facility that also processes wheat (possibly also shared equipment. Their printed statement to their employees is somewhat vague on this, so the lovely gal I spoke to was having difficulty finding out information about the equipment line). They now say that they can no longer guarantee there won't be trace amounts of gluten cc.

New potato products made in this shared facility will no longer carry the gluten free label, however, so you can spot them that way. Per the Alexia rep, if a product still has 'gluten free' printed on it, it was made in the gluten free facility.


Isn't that a shame?

How did you find out? Just curious! The rest of us might have just gone along assuming they were still OK.
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#713410 Severely Glutened...

Posted by on 01 July 2011 - 06:30 AM

I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.



Have 2 jellies, butter tubs, PB, etc. Put some bright colored tape on the gluten-free one & put your name on it. Anyone who misses hot pick tape with Jen on it is just inconsiderate or mean. Probably shouldn't be in your house. :blink:
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#713406 For Goodness Sake

Posted by on 01 July 2011 - 06:15 AM

Rang drs surgery yesterday for coeliac results and was told they were 'normal'. I rang back today to find out exactly what was tested (didn't think to ask yesterday) and was told they weren't back! We'd had other blood tests done at same time, which I mentioned and they were normal, which I was told on Monday/Tues. I was confused for a normal result as I have the symptoms and my daughter has it too. Think gluten is affecting me now as my head is everywhere and I'm struggling to type (had some crisps). I'm so sure I have it..


Sounds like they just gave you the results of the other tests, twice.

Write down what you want to say when they call or you call for the results. Ask if they can send them to you, or email, or you can pick up a copy - whatever works for you. Write this down so you don't forget. Get a Copy even if they are positive.

Ask them to read you the name of the test, the test result (number) & the range it falls into. Like Test ABC is 220 the range for positive is >150. Write on your paper ahead of time - Test name: ____ Result: ______ Range: ____________
Do at least 5 of these lines.

Ask if any other tests were ordered but not back yet. Sometimes one page is still sitting on the doctor's desk to be read.

No matter what the results, ask what you should do next. Even if negative, insist that you are still "sick" and what is our next step.

Get a big piece of paper & write all these things down & leave a space to put the answer. IF its results from 2 of you, 2 pages. Tell the nurse to slow down (nicely) you are a bit confused with all the numbers & letters.

Good luck. The Celiac tests can take longer because not every lab can run them & some only run them once a week on Tuesday.
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#713262 On The Topic Of Buying Fruit/veggies

Posted by on 30 June 2011 - 01:28 PM

I think germs or bacteria are more of a worry than a stray cookie crumb. The cookie crumb should rinse off. Bacteria tend to grab on & need a bit of slippery soap and wiping or scrubbing.
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#713165 Coping With Uninformed People

Posted by on 30 June 2011 - 09:00 AM

Some people know what Celiac is but for those that don't I say that wheat makes a hole in my intestines.

I have found that the teenagers are better accepting or have more understanding of the basics. They have all had kids in school allergic to foods so they just take it in stride. When someone asks how I can eat my bread, I just say that its made with rice flour.

My oldest is not gluten-free. For his 18th birthday, he wanted the gluten-free chocolate cupcakes I make. His friends eat them up. My 15 year old said that teenagers don't care if its made with rice flour or dirt, as long as it tastes good.
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#712824 Does Anyone Carry Allergy Or Gluten Cards?

Posted by on 29 June 2011 - 04:58 AM

I have a note from my doctor. I call places ahead & find out if they need any proof. One place sent me an email to show the security guards at the stadium door. Someplace like the indoor play place, I would just play for my 2 -3 hours & then go somewhere else to eat (a park, home, even the car).
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#712691 How Do You Clean Gluten

Posted by on 28 June 2011 - 03:22 PM

dammit, I just got more insane about that and now my xbox controller :'o how will I ever know if it's really clean o.O *crazy eyes


Maybe take a sharpie pen & write " Glutinator" on the current XBox controller. Then get a nice new one, maybe in a different color for gluten-free people only.
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#712481 Homemade Pudding Pops

Posted by on 27 June 2011 - 07:20 PM

The lazy way is to take the pre-made Jello pudding cups & stick a stick thru the top foil "lid". Then freeze.

I don't think I have Popsicle molds anymore. May have to get some.
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#712149 Need Help Reading Results Please

Posted by on 26 June 2011 - 07:36 PM

Perhaps you can be diagnosed based on the blood results being positive and a good response to the diet. That is, if the biopsies are negative.
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#711220 Celiac Haiku

Posted by on 23 June 2011 - 07:07 AM

:lol: Haikus don't have to rhyme, but that was cute! :P

This rhyme's getting worse
getting glutened is my bane.
It will clear up soon.


Poor little Goober
Hit head on evil table
Lungs are working great!
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#711200 If Both Your Kids Have Celiac, Does That Mean A Parent Has It?

Posted by on 23 June 2011 - 06:01 AM

Thanks to all of you for your responses. I guess I'm the lucky winner of celiac. I appreciate your time and wisdom.


Congratulations! Welcome to the club!


:ph34r: Too bad it doesn't come with the Prize Patrol & a big check!
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#711112 Celiac Haiku

Posted by on 22 June 2011 - 06:41 PM

Me too! Mine was not
a Haiku confuses me
brain fog in a verse



Once again, Thank you
For writing my own Haiku
I can't get it right
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#711068 Celiac Haiku

Posted by on 22 June 2011 - 04:33 PM

I'm not doing well, here! I tend more to Dr. Suess!

Gluten

I do not like it in a bread
I do not like it in a bed,
I do not like it on my threads,
I do not like it, it will make me dead!
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#711067 My First Trip To The Mil's Since Diagnosis

Posted by on 22 June 2011 - 04:27 PM

Honestly, I think you are mad at the wrong person! It's your husbands mother, not yours. He should have told her before you came about food issues. He should be the one to talk to her well before the next visit about what you want to do about food. I think she was blindsided and probably a bit hurt that she wasn't told about your illness.

You should not expect her to cook gluten-free for you or understand the complexities of cc. Just have a plan that your husband can explain weeks or months before you visit. He should probably call her and apologize . She made a lot of plans, probably put a lot of thought into food for her guests. Then was told you wouldn't eat it. For some of us of a certain age, planning the food is a big deal & a way to show love.
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