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Member Since 26 Jan 2010
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Topics I've Started

Celiac Disease Foundation Survey For The Us Food & Drug Admin

14 April 2015 - 03:32 PM

"Celiac Disease Foundation Chief Executive Officer, Marilyn Geller, will present at the US Food and Drug Administration’s Patient-Focused Drug Development Conference (PFDD) on May 11, 2015 just outside of Washington, D.C. Marilyn accepted the invitation to speak on behalf of celiac patients and their caregivers. In anticipation of this meeting, we are asking that members of the celiac community complete the linked survey about living with celiac disease as soon as possible. We want to make sure that your voice is heard by the FDA as they make decisions on proposed therapeutic treatments for celiac disease. This is an urgent request, as our written comments are due to the FDA in a few days. Please complete the survey now."


Scholarships For Camp

06 April 2015 - 04:06 PM


Sour Dough Bread Not Safe For Celiacs

06 April 2015 - 05:43 AM

Some people are taking a small study and misinterpreting the results to say sour dough bread is safe for Celiacs. The study found people had intestinal damage from it, so it is not safe! Gluten Free Watchdog tested this companies bread and it does test over 20 ppm.


Cheddar & Pb Cracker Sandwiches

02 April 2015 - 05:13 AM

Another gluten-free junk food I didn't know I needed! Lol


Dean & Delucca Unsafe!

26 March 2015 - 12:26 PM

Dean and Deluca is a nice gourmet grocery store.  They also sell made to order salads and sandwiches.


I needed some fancy and expensive cheese for a party.  The wrapped cheese chunks should be safe.  Apparently not!  The guy behind the counter was cutting them with a knife he had used to make sandwiches!  I think they probably don't cut most of them that way, but if a customer wants a smaller piece, this is how he is doing it.  And then wrapping up the extra chunk for sale!  No warning of possible cc due to bad/dirty food prep practices.  I would think, even if gluten wasn't an issue, that getting a piece of cheese & unwrapping it to find crumbs, would be disgusting and worriesome.