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Mother of a Celiac

Member Since 28 Jan 2010
Offline Last Active Jun 19 2011 06:35 PM
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Posts I've Made

In Topic: Gluten Free Or Grain And Dairy Free Too?

19 June 2011 - 06:35 PM

I was just diagnosed with Celiac by both a blood test and an endoscopy. My question is this, I have read that sometimes when people are deep in gluten stress (which I am), the body can see even rice as if it were gluten because its protein resembles gluten. So it may be necessary and wise to go grain free and dairy free along with gluten free for three months to get to a "normal" space before introducing rice or dairy back in. Thoughts? I am just trying to decide whether to go entirely gluten free for a while and see how I feel or if I should try the previously mentioned idea?

Thanks!
Kim
diagnosed with celiac disease 2011

My daughter who was diagnosed a year and a half ago w/Celiac, seemed to do great for exactly a year gluten-free, then she started getting bad stomachaches again and headaches. I started her on the SCD diet and also removed dairy. All of her symptoms went away. We now follow the Paleo diet pretty much, which is grain free and dairy free. It is just very hard to follow for a 7 yr old. Lately she has had stomachaches again and some mild D. I'm hoping that it is just a stomach bug that has been going thru our house and not the return of symptoms yet again...
It sounds like you have already done some research and I don't know if you've read the Specific Carbohydrate Diet by Dr. Haas, but it could be very beneficial and enlightening. Also, The Paleo Solution by Robb Wolf is VERY good, as well. Good luck to you!

In Topic: Crohn's Disease And Gluten-Free Diets

19 June 2011 - 06:21 PM

Hi everyone,

Interesting to read the responses from the Celiac community. I have Crohn's disease, am working on a documentary film about treating digestive conditions such as IBS, Celiac, Crohn's & ulcerative colitis using alternative treatments when drugs and surgery no longer work.

Several of you are correct that there is no specific, doctor recommended dietary plan for treating Crohn's disease. Unless you talk to a Naturopathic doctor, but even then, it's still a mixed bag of responses. No standards at all.

I use primarily diet and supplementation to control my D and pain. I haven't been on medication since 2007. Gastroenterologists absolutely do not believe food plays a role and tell patients that the best course of treatment is medication and sometimes surgery. This is why some of you have run into opposition when trying to talk to your friends about diet treatments for Crohn's. They are told it doesn't work and they believe their doctors.

It is my hope with my documentary that I will prove that it can work! There are many people who are discovering this everyday and defying their doctor's requests to take immunosupressive drugs, which can have horrible side effects. It ain't easy, especially because we can't tolerate any grains at all (those of us who use special diets) and instead we make our breads with nut flours like almond and pecan. The most popular diet for us is called the Specific Carbohydrate Diet (SCD). If anyone with Celiac still has trouble on gluten free, I recommend SCD.

Thank you so much for this post. I just finished messaging another advanced member about my daughter's recent symptoms. She is 7 yrs old and was diagnosed a year and a half ago w/Celiac. She was doing great on the gluten-free diet for almost exactly a year to the date and then she started getting horrible stomach pains and bad headaches. Her GI suggested taking her off of lactose to see if it would help. It didn't. I started reading about the SCD diet and Dr. Haas' research and decided to take her off of ALL grains and also dairy which almost immediately seemed to work. Her symptoms went away. I tried to reintroduce rice and rice pasta a few weeks later and after 4 days of one serving a day, her symptoms returned. I also tried separately to reintroduce casein and the stomachaches returned as well. I am baffled that she could be doing so well and now she is so restricted on what she can eat. She also cannot tolerate corn so she is basically now following the Paleo diet: protein, vegetables, fruit, no grains...also, no starches, no corn, no dairy....VERY hard for a 7 yr old.
Over the past couple weeks a stomach bug has been going around our house where we feel pretty good until we eat something and then we get abdominal gurgling, loose stools, mild stomach pain, and loss of appetite. Most of us are recovered and pretty much back to normal, except for our daugher who is still having a lot of stomach pain and just doesn't feel good in general. I'm scared that her symptoms are now returning again since it is taking her so long to get over it. Have you found that following the SCD diet can possibly be temporary and then you are able to return to a "normal" gluten-free diet or is this a permanent solution? Dr. Haas talked about doing it for a number of years and then being able to return to normal foods. Thanks for any advice you can give!

In Topic: Leaky Gut Diet

29 March 2011 - 06:05 PM

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

I am halfway thru the Paleo Solution book by Robb Wolf. It is one of the most eye opening books I've ever read. I started reading it because my daughter has Celiac and her symptoms have returned after being gluten free and symptom free for a year. Our whole family is now going Paleo. It is hard and is taking some time to get used to, but I'm hoping it is the answer to healing.

In Topic: Headache Survey

29 March 2011 - 05:44 PM

My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been getting a lot of headaches lately that we are trying to figure out...

In Topic: Seriously? Corn Too?

29 March 2011 - 05:39 PM

I concur about the testing. All my daughter's and my own testing was "normal" However when I did elimination diets and then re-introduced foods we had very specific symptoms for each food. I even tried the foods twice just to make sure it wasn't something else going on, like some random virus. I believe most of the testing is very very primitive. I think the corn is making you sick, especially with the itchy skin. It sounds so much like my response. Not that we would all respond the same way, but it does coincide with your diet. I think if you get rid of it, you will feel better. I just posted the "Corn is bringing my family to its knees" post the other day. Corn is by far and away the toughest to eliminate. Just gluten would be a cake walk.

I agree. My daughter is now gluten, corn, grain, dairy, and chocolate free. People ask what we eat, all I say is thank God for almond flour! She/we live off of the almond muffin of the day, protein, veggies, and fruit. Although, I tried to reintroduce rice 3 days ago and now she is sick again. So yesterday we went back to grain free. Hoping that that is it and not something else. This is getting really tricky. Anyone else out there tried or have done the Specific Carbohydrate Diet for any length of time with success? I don't mind doing it, as long as I know we are on the right track to healing! Reading and trying the Paleo Solution Diet right now, very similar.