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frieze

Member Since 07 Feb 2010
Offline Last Active Yesterday, 12:20 AM
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#909671 1 Year Later, Strict Diet, Debilitating Symptoms, Only Abnormality Is Excessi...

Posted by frieze on 20 March 2014 - 09:18 PM

perhaps you are a non methylater?  can they retest you blood and see if that is methylated B12 or not?

www.stopthyroiedmadness.com/mthfr/


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#908818 Confusing Results

Posted by frieze on 13 March 2014 - 05:41 AM

your doc is speaking out of the wrong anatomic orifice.


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#908249 Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga

Posted by frieze on 07 March 2014 - 11:39 AM

not having DQ8 or 2 is NOT an absolute that you can't have/develop celiac disease.


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#905034 Hello!

Posted by frieze on 04 February 2014 - 02:21 PM

your sister should be tested also, it is not uncommon to find Type I diabetes with celiac.


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#895818 I Have Some Newbie Questions About Celiac Disease

Posted by frieze on 14 November 2013 - 06:54 AM

the diabetics that you view as cured are no more cured than a gluten free celiac.  They are both using diet to control their conditions.


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#895654 Testing Question After Gf

Posted by frieze on 13 November 2013 - 02:29 AM

Just wanted to add that another option for you would be to get the gene testing.  If you're negative for the Celiac gene, then you cannot have Celiac - you most likely have gluten sensitivity.  No need to do the gluten challenge.  That said, I agree with the others that 1) your doctor is an idiot and/or ignorant and 2) you'd have to do a gluten challenge to get a reliable Celiac test at this point.

FYI, we have more than one biopsy proven celiac that does don't have those genes that post on this board.


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#895236 Question About Genetic Testing

Posted by frieze on 08 November 2013 - 10:49 AM

This isn't true.  At least not with current knowledge.  If you do not have a DQ 8 or DQ2 gene, you cannot have Celiac.  The DQ8 is the least common.  Only around 5% of people have this gene.

 

http://www.curecelia...benefit-from-it

 

http://www.curecelia...he-other-parent

Last time I read, those two account for 98+% of celiacs, that leaves a few "unaccounted for".  Raven is a biopsy dx celiac, I do believe, and she has neither.....other countries recognize other genes.


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#895182 Question About Genetic Testing

Posted by frieze on 08 November 2013 - 03:31 AM

no.  you can have celiac without DQ8 or 2.  and no, you husband contributed one gene to your daughter, he has two, you don't know which the other is.


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#894574 Too Limited Diet, And Still Sick. Not Sure What To Do...

Posted by frieze on 04 November 2013 - 07:08 AM

have you tried digestive enzymes?


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#893044 Muscle Weakness And Pain

Posted by frieze on 22 October 2013 - 09:18 AM

Vit D was at 38 in July doc says normal
B12 was at 482
Ferritin 31 just this month
Magnesium was 1.9

Kaiser doctors say all normal. The only abnormal was very low alkaline phosphate and they said its not a concern :-/

Vitamin D should be over 50, b12 over 500 (that one is close) ferritin I am not sure.. and magnesium should be in upper range of normal , ie closer to 2.5.  good luck

and if the little red dots are petechial, perhaps some K2?


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#892163 Do People Try To Make You Prove Your Intolerance?

Posted by frieze on 16 October 2013 - 07:41 AM

I suspect MIL wouldn't say boo, if it were a grandDAUGHTER.


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#892158 24 Hour Urine/follow Up Labs

Posted by frieze on 16 October 2013 - 06:21 AM

closest pediatric endocrinologist, renal maybe


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#887923 Is It Necessary To Have A Bone Density Test If Blood Work Is Normal?

Posted by frieze on 10 September 2013 - 07:25 AM

remember, the blood levels are the last place the def is going to show.  Homeostasis needs to be maintained or you will die.


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#887907 Is It Necessary To Have A Bone Density Test If Blood Work Is Normal?

Posted by frieze on 10 September 2013 - 05:45 AM

be careful of too much Ca++, my GYN doesn't recommend supplementing any more, r/t cardiac issues.  Vit D + K are big issues with bones.

read up on any  of the bone building meds, before you take!


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#885302 Blood Test Negative For Gene Terrified Of Endoscopy

Posted by frieze on 22 August 2013 - 07:58 AM

DQ2/8 do not account for 100% of celiacs, almost, but not all.


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