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Member Since 13 Feb 2010
Offline Last Active Jul 09 2010 01:49 PM

Posts I've Made

In Topic: Eating In Nyc

30 June 2010 - 09:19 AM

Thanks to all...

In Topic: Children's Advil

09 May 2010 - 03:20 AM

According to the Advil FAQ... it is safe. My son has used it without incident.


In Topic: Conflicting Test Results - Drs. Say It's Not Celiac

08 May 2010 - 04:44 AM

After conflicting information received from my doctor... I insisted on a 2nd opinion and am going to see a GI specialist. I like my doctor, but I do not feel that she is up to date with the most current research. My son recently (Jan.) tested + TTA IgA 25.5. Because this number was a weak +, she said he doesn't have celiac. I took him to a pediatric GI, had a biopsy, and they confirmed moderate/severe celiac.

After that, I had the antibody testing and genetic testing for myself. My antibodies were all near zero but I was pos. for DQ2/DQ8. She "diagnosed" me with celiac based on the DNA even though my antibodies were within normal ranges. The way I understand this... no diagnosis can be made without the biopsy...my pos. genetic test only indicates that I may develop celiac, but it isn't a sure thing...

Furthermore, the pediatric GI I took my son to laughed when I told her that my regular MD said my son had a "weak pos." and therefor "not celiac". The GI said any pos. antibody indicates a problem as the antibodies are very specific to gluten. It is kind-of like taking a pregnancy test and then interpreting the results as "weak pos" and therefor "not pregnant". Makes sense when you look at it like that...

Anyway, my point is that a 2nd opinion might be a option if you are not 100% confident in your MD and/or test results.

In Topic: Help Me Understand

28 April 2010 - 05:47 AM

That depends, are you having symptoms? If you are you need to know that there are high rates of false negatives with the blood tests and even with the endo. If you are symptomatic, including fatigued, anemia, skin problems, issues with moods, fibro etc as well as, or instead of, GI issues you could still have an issue with gluten and a gluten-free trial after all testing would be in order.

Thanks! Yes, I believe I am having non-GI symptoms. My antibody test came back neg. but my genetic test is pos for DQ2/DQ8. I have made an appointment to see a GI specialist to set up a biopsy. My son has already been diagnosed with celiac via a biopsy and pos. antibody test. My daugter has had no testing done yet. This is all pretty recent in my family. I have made an appointment to have an antibody test for her, but didn't feel it was needed to have a genetic test being as I have already tested pos. on that end. I dont really feel that my family doctor knows enough about celiac disease to give me specific/accurate info...thanks for the info.

In Topic: Help Me Understand

28 April 2010 - 02:04 AM

I believe you have it correct.

Does this also mean that because I carry both genetic markers, DQ2/DQ8 that both of my children will have at least one of the markers? Either DQ2 or DQ8 plus another marker from their father?

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