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Member Since 13 Feb 2010
Offline Last Active Jun 08 2010 03:24 AM

Posts I've Made

In Topic: Nightmares About Teeth

22 February 2010 - 12:49 PM

Dreams about horrific protrusions from my skin have ceased with the omission of gluten, so have most of the odd dreams about my teeth falling out or being twisted, extended or bent unnaturally.

In my experience, dreams about strange mutilations or damages [especially ones which are inexplicable within the dream's context or its "feel"] often have direct meaning.

My tooth decay has slowed dramatically [or basically, stopped] since I quit gluten, and I've also been able to open my mouth, which is a plus. Thanks for the info on glucosamine, but I doubt I'll need it now.

In Topic: Anyone Recover From Chronic Insomnia After Going gluten-free?

21 February 2010 - 08:14 AM

@Jackay, Char and Bluebonnet – wow, it’s really fascinating that so many of us “gluten intolerants” have sleep issues. My insomnia has been so bad that it prevented me from going to grad school and I could only hold a part-time job, so needless to say, I feel for all of you! Thanks so much for your comments and suggestions. Around the same time I went off gluten, I also discovered I’m hypothyroid, as well as melatonin, vitamin d, zinc and b12 deficient, so this might be contributing to the insomnia as well… Just out of curiosity, do any of you have thyroid issues?

Thanks to all of you and sweet dreams!

[No known thyroid issues on me.] I've had Non-24 symptoms since possibly birth, definitely since 13+. I went gluten free a year or two ago and have tried orthomolecular solutions, which helped with other things, but no effect on sleep.

I'm glad to hear your melatonin's been tested. Were you also tested for circadian rhythm disorders?

In Topic: Melatronin

20 February 2010 - 01:36 PM

It's been reliably causing abdominal pain. The dose was .5mg of a marked gluten-free brand of melatonin; it's a little old, but nothing in the ingredients raises any sort of suspicions from me. There might be some constipation and odd-smelling blackish stool associated also [I don't know what else could have done it]. It reminds me of the symptoms that mostly cleared up after I went gluten-free. I'm discontinuing it.

This has also been an issue for me since I look like an obvious candidate for Non-24, yet can't comfortably participate in its typical treatment: I'm glad to leave this informational footprint here even if nothing comes of it.

In Topic: Newbie Needs Help !

13 February 2010 - 05:07 PM


I was convinced after only about two weeks on my gluten free diet, but my symptoms at that point were uncommon, mostly derm and neuro. I've heard it can be a slow process, and questions on the time and capability for recovery from various levels of damage have arisen.

On the slightly brighter side, there are things you can do to speed the process along. The most helpful link I found was this:


Any ingredient listed on a product that contains or may contain gluten is too much. The problematic items for me included caramel coloring [in my experience, that ALWAYS means gluten] and everything involving the word "starch" without specifying what sort of starch specifically; this is particularly disappointing with prescription medications due to the jumbled systems that dispense them, and also concerning in OTC medications and vitamins -- anything labeled a "dietary supplement" may have different rules from food.

I recommend coping with that to find specifically marked gluten free supplements for vitamin C, at the least. It worked miracles on my mental and physical fatigue and overall feeling of my state of health. What I consider an effective dose of vitamin C is probably a bad idea for someone with digestive problems, as large doses can cause diarrhea, but you should be safe for at least one gram a day, and I'd personally push the amount if it seems either helpful or harmless. I'm mentioning this because I STOPPED getting better after a few months, and saw no progress until I picked up v.C megadosing. To my knowledge, vitamin C supplementation could reasonably be more important for those with GI manifestations.

For comparison, healthy controls often reach bowel tolerance at four or more grams per day. I could take up to fifteen grams when I began vitamin C megadosing, which is not very abnormal for a moderately unhealthy person, and now [maybe 18 months from gluten-free diet] I'm down to about 3 or 5. One of my gluten intolerant relatives who has digestive problems can take only one total gram of vitamin C a day without incurring bad diarrhea and other problems; she and I both recommend "Ester C."

[Notice: orthomolecular medicine is officially worth as much as magic beans and voodoo, but I had nothing to lose from it, so I tried it once.]

Anyway, the complete elimination of gluten from your diet is the highest priority. Although I identify myself as the gluten bloodhound of the family, and hopefully others are not as sensitive to it, it should help to be thorough. Setbacks were very visible to me, and each cost me easily up to a week of progress or time, in terms of healing, health, physical/mental competence...

The worst setbacks were nothing more than the combination of hunger and "brain fog." I had to establish a routine of ALWAYS checking a product's ingredients, double-checking so as to never use unwashed cookware that was used to cook gluten foods, and never dining out.

It's unfortunate when fatigue, malabsorption, brain fog, pain, and all the "normal" elements of life combine to take away time and energy to prepare all of one's own meals, but I would not eat at any restaurant that doesn't have a gluten free menu section. Even then, note that caramel coloring is common in soy sauce and soft drinks, starch in mustard packets, and so on.

I hope your doctor has given thought to antiemetics and antidiarrheals... I don't have experience with those symptoms and can't think of anything to help with them beyond OTC products -- and with GI symptoms, I'd be cautious with many of those, although relatives recommend Pepto Bismol and Benadryl.

Good luck and get better soon.

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