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Member Since 15 Feb 2010
Offline Last Active Jul 26 2014 11:26 AM

Posts I've Made

In Topic: Help From Experts - Here Is My Story

26 July 2014 - 11:30 AM

Thanks SMRI they never told me any other reasons of what it could be. What's tropical sprue? I definitely could have had malnutrition at this time considering I had lost 30 lbs in 2 months.

In Topic: Help From Experts - Here Is My Story

25 July 2014 - 04:50 AM

Thank you all!  I am around the Madison area, and all 3 GI Dr's I have seen are clueless.  There is a new one that supposedly specializes in Celiac, I was going to see him...but then I cancelled the appointment.  I was thinking at this point the RD could help me more, so I am seeing them on 8/14.  The biggest thing that the Mayo Dr. and my Primary Dr (who I consider smart) were saying is the elvated lympocytes found on the endoscopy point to Celiac.  The GI Dr's note said it is not uncommon to see this, so who only knows.  I have been reading the Eat Right 4 Your Type Books, and find them interesting.  It says more than 48% of Type A's (which I am) are Celiac.  Most A's shouldn't eat Wheat at all.  Same with O type,  O Blood types should avoid wheat as well.

In Topic: Help From Experts - Here Is My Story

24 July 2014 - 03:49 PM

This makes me furious! I asked for the full celiac panel to be ran. How did they run only half of it. What do I have to say to these doctors to get the correct test!!!! Do you think the gene testing was accurate. I can't tell if they ran for one gene or both?

In Topic: Help From Experts - Here Is My Story

24 July 2014 - 02:45 PM

I see Nicoles testing above, but I don't know if those are the short names for my testing? Does it look like based on my blood test they I had a full celiac panel, or parts of one? I can't remember if I was on gluten for 12 weeks at the time. I was very sick. The testing was done on 12/12. I think I had been off gluten around this time. I told them that. They said you were on gluten in 2011 when they tested the Transglutaminase IGA only and it was 6 (normal)

In Topic: Help From Experts - Here Is My Story

24 July 2014 - 02:11 PM

I don't think they published my endoscopy reports on my chart at all. Currently the ear ringing is not happening. What is happening is diarrhea, vit d deficiency, and horrible upper back pain. I just called the clinic and asked for my celiac blood results. I am listing them here. My question is do the below results look like the full celiac panel? Same with the DQ testing, I can't tell if this Dr tested for both DQ genes.

Glidian Peptide 9 normal range between 0-19
Immunoglobulin A -182 normal (68-378)
Transglutaminase IGA - 5 normal (0-19)
Is this considered a full celiac panel?

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