I am so frustrated and confused. I don’t know if I have a gluten intolerance or possibly dairy or something else?!? I have had tons of symptoms I won’t go into all of them but as far back as 12 I can remember my stomach swelling way up after I would eat. This past year I got extremely sick, I lost like 30 lbs in a month’s time. I was 5’7 and 155 to begin with, my lowest weight was 119. I ended up having my gallbladder removed, they thought it was that. I didn’t get better. I had two upper endoscopys and a colonoscopy. They found erosive gastritis in my first endoscopy. My blood test for celiac, negative. I had two done. Both negative. On my second endoscopy they found mildly elevated intraepithelial lymphocytes with normal vili architecture. I will also say that during the past two years anytime I had my blood work drawn, I would show elevated WBC, they couldn’t figure out why. It was always elevated with Lymphocyctes and Neutrophils. The GI Dr. that did my second endoscopy came out and told my Mom that everything looked fine, then we got a letter about two weeks later talking about the elevated intraepithelial lymphocytes. I had been so sick that I decided to go to Mayo clinic, only problem was my INS. Didn’t cover mayo, so I paid like 900.00 out of pocket just to consult and meet with one of their GI Drs. That GI Dr. told me he would work with my GI here. I called the Mayo Dr. and let him know about the lab results stating elevated intraepithelial lymphocytes. He told me that is a huge marker for celiac disease and to stop eating gluten. My regular family Dr. said I am not expert but from everything I know these test results are a big marker for celiac, stop eating gluten. However, the GI Dr. will not diagnose me with celiac. In my other testing we found that I am very vitamin D deficient and I am also not absorbing fats, they have no idea why I am having fat malabsorbtion issues. While I was so sick I was begging them to take some IGG testing for food intolerance stuff. Some of the prick tests came back showing Soy, Dairy, Chicken, Egg. That was on my back I had it done 6 months after on my arm, and didn’t react to anything the same. Except dust! I also had a blood draw done for an IGE (I think IGE panel) that test came back showing 15x higher than normal for cow’s milk, and also for egg. I was off gluten for a while, my stomach was flat. I have been back on gluten and get the big D. usually every day. I also get very dizzy spells at times, and have actually passed out. I have had a positive stool test for gluten done by Enterolab. I know many people on here do not vaildaet that testing. I have pain in my upper spine so bad that I wonder if I am in the beginning stages of Osteoporosis. I have had problems with my teeth this year, and needed a root canal. I just got really frustrated trying to know for sure if I was celiac or not…so I decided to ask/beg for the Gene testing. The GI Dr. who I am not at all impressed with (who told me everything was good when it wasn’t before) he ordered the gene testing this week. They just told me over the phone that the Dr. read the results and I DO NOT have the gene’s possible for celiac. I am so frustrated. I thought for sure I would have these genes and I could put this to rest in my mind once and for all. So now, I am back to the drawing board. Is this a gluten problem a dairy problem or a candida problem. Does anyone know if a dairy intolerance can create elevated intraepithelial lymphocytes in upper GI?
bekkazMember Since 15 Feb 2010
Offline Last Active Nov 27 2013 09:01 AM
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