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Member Since 28 Dec 2004
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#946920 Doubts About Diagnosis

Posted by on 10 June 2015 - 06:43 PM

Shows aspects of Celiac Disease March Classification 3B


This, as I see it, is a conclusive diagnosis of celiac disease, unless there is positive evidence that something else caused it. While there are other rare things that can damage the villi, that level of damage is almost certainly celiac disease in my understanding. That is the same level of biopsy-confirmed villi damage that I had.
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#946548 Going In For Surgery Next Week - Freaking Out At The Hospital...

Posted by on 02 June 2015 - 05:52 PM

Some people, including some people with celiac disease, have a bad reaction to refined MSG. But that does not mean MSG has gluten. Personally, I have an awful reaction to shrimp, but that allergy is unrelated to my celiac disease. It does not "prove" that shrimp contain gluten. Intolerance to nightshades is not uncommon, but they too are gluten-free. Folks with celiac disease have no reason to be any more concerned about these foods than folks who don't have celiac disease. You may need to avoid them, but it has nothing to do with celiac disease.

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#940784 No Printed gluten-free Menu At Red Robin

Posted by on 22 February 2015 - 07:37 PM

I was intrigued by this, so I went to the web site. I said I was in upstate New York, and chose the Henrietta location, then launched the allergen menu. Wow--not just a gluten-free menu, a customized menu covering multiple needs. I checked gluten and shellfish, and was shown what was okay for me to eat, with notes about what to leave out (if applicable). For those of us who need to dodge soy and/or dairy, both of those were available as allergens to avoid. I don't know why anybody would be unhappy about this--it is beyond my hopes and certainly better than a printed gluten-free menu that only addresses gluten. Your mileage may vary.
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#939839 Chance Of Gluten In Meds Very Low

Posted by on 05 February 2015 - 06:28 PM

That's odd because my personal pharmacist has a binder filled with medications that have gluten. She has called manufactures and, being a professional, been able to determine that many generics are made with cheaper binders, fillers, flavorings and coloring's that are not even determined to be gluten free or not.

Perhaps you could talk to your pharmacist and then share with us some of these meds that contain gluten. In almost fifteen years I have yet to find one myself. Keep in mind that "not gluten free" is a legal disclaimer and does not mean "contains gluten." But you said, "medications that have gluten," so please provide a few examples. It should be easy, after all, she "has a binder filled with medications that have gluten."
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#935943 How Much Can One Person Take? I've Reached My Limit...

Posted by on 02 December 2014 - 06:27 PM

Great news!
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#934603 November 11 Is Remembrance Day

Posted by on 10 November 2014 - 10:12 PM

Today is November 11, and this topic is as relevant as it was two years ago. Perhaps even more so with the recent deaths of Corporal Nathan Cirillo and Warrant Officer Patrice Vincent in terrorist attacks here in Canada.

Lest we forget.
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#934601 Labeling Laws In Us

Posted by on 10 November 2014 - 09:54 PM

The federal law known as FALCPA requires the top eight allergens to be clearly disclosed if they are intentionally included in a food. That covers wheat, but leaves barley, rye and oats up to voluntary disclosure.

Disclosure of shared facilities and/or shared equipment is entirely voluntary. Some manufactures make a voluntary disclosure; others don't.

Before you overthink this, consider that every restaurant you may visit is probably a shared facility with only one set of dishes and one dishwasher--shared equipment. If you have ANY gluten anywhere in your home, your home is a shared facility.
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#934476 Seem To Get A Rash From Bf's Water- Any Ideas?

Posted by on 08 November 2014 - 02:28 PM

It might indeed be chlorine, and it is quite possible that her water at home is not chlorinated. An increasingly common alternative to free chlorine is chloramine. Unlike chlorine, chloramine does not evaporate and it must be chemically removed from water to be used in an aquarium, for example.

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#932105 Kraft Products ... I'm Shocked!

Posted by on 05 October 2014 - 05:42 AM

SMRI, several of the items you listed have the word "wheat" in them, so there is no "uncertainty" in those cases. In the US, there are two distinct rules that are relevant. There is the new FDA regulation about "gluten-free," but there is the much older federal Food Allergen Labeling And Consumer Protection Act of 2004 (FALCPA) which requires wheat to be disclosed in every case. If any ingredient is derived from wheat, the word "wheat" must appear on the label.

Read more about FALCPA here on the FDA's web site.

In Canada, the rules are more inclusive, and all gluten sources, including oats, are on the top allergen list and must be clearly disclosed.
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#931996 Kraft Products ... I'm Shocked!

Posted by on 03 October 2014 - 05:09 PM

I agree with SMRI.  If they're so great, they should test and get certified and prove it.  They're a big enough company with plenty of money.

The cost of that testing will not come out of their profits--the shareholders would rebel. It can only come by increasing the cost of the product at retail. Food is a big part of our monthly budget. I don't need it to increase for no good reason.

Kraft would also lose customers from the 99% who don't care about gluten. Bad business decision for Kraft.

I think we have beaten this to death. If anybody has any genuinely NEW ideas, please share them. Otherwise, we are done here.
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#931936 Kraft Products ... I'm Shocked!

Posted by on 03 October 2014 - 07:01 AM

Ah, the old blue cheese myth again. Click here to learn that blue cheese is safe.
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#931890 Kraft Products ... I'm Shocked!

Posted by on 02 October 2014 - 05:36 PM

I think that the most important thing to do is to read the ingredient list on each and every product that you buy each and every time. I don't think that anybody here is saying that we should eat food without reading ingredients.

Exactly. Read the label, every time. A manufacturer making a gluten-free claim does not have to test, but they will be darned sure, for legal liability reasons, that if tested they will pass.

ETA: Where I am, the anti-caking agent in shredded cheese, when there is one, is powdered cellulose. Cellulose is gluten-free. As Karen said, flour would be a binding agent, not an anti-caking agent.
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#931802 Kraft Products ... I'm Shocked!

Posted by on 01 October 2014 - 06:31 PM

Here is a link to an explanation from Danna Korn about what "not gluten-free" means. It does not always mean "contains gluten."

Read more about customer service answers here.

It is instructive, and I would recommend reading it.

But let's suppose for a moment that the xxxxxx that Kraft bought from yyyyyy Inc. was contaminated. It is likely a minor ingredient, comprising a small percentage of the finished product. How much gluten would actually be in the final Kraft product? Would it even be detectable using R5 ELISA testing? I doubt it.

Make your own decision about your personal comfort level, but for the vast majority of us, these products are safe and widely available without having to pay a higher price to get something with a gluten-free label.

I have been buying with confidence from Kraft and the other companies I mentioned for over ten years without a problem, and yes, I am relatively sensitive and do react to small amounts.

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#931724 Kraft Products ... I'm Shocked!

Posted by on 30 September 2014 - 04:48 PM

As has been said, it is a legal CYA statement. I have been on the gluten-free diet for over 14 years, and have NEVER had a problem with a Kraft product. The same goes for Unilever, General Mills, Nestle, ConAgra, etc. All have a clear policy to disclose any known source of gluten, but will not make a "gluten-free" claim since they do not test. They don't test because it would add to production cost of the mainstream product in question, and make them less competitive for the 99% of the market who don't care about gluten. I wish it were not so, but it is, so get used to it.  ;)
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#931223 Endoscopy Or Not?

Posted by on 23 September 2014 - 06:09 PM

AImmunoglobulin A, Qn, Serum 5 (20-101)

RED FLAG! The total serum iGa is way below normal. The other tests may be false negatives due to this. She is not producing antibodies in the normal range overall, so the "low" gliadin numbers may not be meaningful. This could be age-related. Blood testing in very young children is notoriously unreliable.

As RavenWoodGlass said, having a confirmed diagnosis will be very important in enforcing her ADA 504 rights at day care, school, and in similar situations. I would do the endo if it was my child.
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