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psawyer

Member Since 28 Dec 2004
Offline Last Active Private
*****

#887703 Work Conferences With Meal Provided....

Posted by psawyer on 08 September 2013 - 10:27 AM

Special dietary needs are common, and just about every caterer can accommodate them--provided they know in advance. Celiac disease is nothing to be ashamed of. I don't understand why you want to keep it secret.
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#887637 Airborne Gluten...

Posted by psawyer on 07 September 2013 - 05:47 PM

It seems that some celiacs believe that if it is a reaction that they don't have, it must be allergic.  It has been well established that some celiacs are sensitive to lower levels of gluten than others.  That could also be a reason why one reacts to something that another doesn't.  There are general indicators of allergy as opposed to a celiac reaction that can be discussed with an allergist.

Indeed. Itching (not on the skin as in DH), swelling, shortness of breath, hives, eye irritation and a few other symptoms are typical of allergies, not an autoimmune response. Many people with celiac disease also have allergies to certain grains. The fact that you react (which nobody is disputing) does not mean that it is not an allergy that you have in addition to celiac disease.
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#887574 What Does Reputation Mean?

Posted by psawyer on 07 September 2013 - 09:31 AM

Your reputation is is visible to everyone. It is zero when you first become a member.

In each post, there is a little box on the right side, under the body, but above the signature (if any). When the post is first made, the box is grey and contains the number zero (0).

Other members can also see a green square to the left of that box, with an arrow in it pointing up. If a member wishes to, they can click the box with the arrow to express their approval. Doing so will increase the number in the box, and the box will turn green showing the number of votes. A member can only vote once per post, and never on their own posts.

Each vote is counted twice: once on the post where it is made, and once in the profile of the person who made that post. That counter is the member's reputation.

So, in your case, four plus votes have been made. They could all be on one post, or could be spread around.
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#887224 Velveeta

Posted by psawyer on 04 September 2013 - 05:03 PM

Kraft will not hide gluten. Read the label. If it is not clearly listed on the label, it is not in the food.


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#887183 Blood Test Positive...biopsy Negative.

Posted by psawyer on 04 September 2013 - 12:13 PM

Hi,

 

You were diagnosed two years ago. If you have been following a gluten-free diet for two years, it is quite likely that your villi have healed, and will give a negative biopsy result. Likewise, a blood test today would not find antibodies, because you don't make them without gluten, and that's why your villi can heal.

 

I showed a strong positive on a biopsy in 2000. A repeat procedure a few years later showed no abnormalities. It didn't mean I don't have celiac disease; it meant that my adherence to the diet was successful, and my intestines had healed.

 

A competent gastroenterologist should know that.

 

:(


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#886337 Is It Possible To Get Gluten From The Dishwasher?

Posted by psawyer on 28 August 2013 - 04:12 PM

Can someone tell me why my dishwasher would not sanitize my cooking utensils?

The dishwasher will certainly sanitize your utensils, due to the heat. But that means killing microorganisms. Gluten can not be killed, and sanitizing has no effect on it. Gluten must be physically removed as part of the washing process. This is why porous or scratched surfaces are a concern.

It is common for people new to the process to think that alcohol or other sanitizers will neutralize gluten, but that is not the case.
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#885981 Wipes Vs Hand Sanitizer

Posted by psawyer on 26 August 2013 - 05:48 PM

Gluten can not be "killed" or "neutralized." It must be physically removed. Sanitizer will do nothing.

Wipes, if used with vigor, will help, but may still leave a trace of residue. If you can't get to soap and water, I would use them. But soap and water is better.
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#883401 Significant Other To Celiac

Posted by psawyer on 07 August 2013 - 01:01 PM

i sanitize the whole house with vinegar once a week to kill all gluten particles

Slightly off-topic, but important: gluten can not be "killed"--it can only be physically washed away. If vinegar killed gluten, then salad dressings with wheat would be safe. If alcohol killed gluten, we could all drink regular beer.
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#882607 Fda Finally Defines Gluten Free

Posted by psawyer on 02 August 2013 - 04:16 PM

So it sounds like "gluten free" means "there's some gluten, but a minuscule amount."

No, that is not the right interpretation. The rule is complicated, and 20 ppm is easy to grab onto. It is only part of the picture. There may be trace gluten from unavoidable contamination, but in no case may the amount exceed 20 ppm. To consistently achieve that, manufacturers must aim far lower due to test and batch variances. Remember, 20 is an upper limit. Zero is less than 20.

The actual rule as published in the Federal Register is here. It is 95 pages long.
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#882199 First Experience At Refusing The Food Someone Cooked For Me.

Posted by psawyer on 31 July 2013 - 03:05 PM

"May contain" is generally a warning about possible trace amounts from within the same facility. It is not the same as "does contain" and many such products are, in fact, safe to use. Also, be aware that "may contain" is a voluntary disclosure--just because you don't see it doesn't mean it isn't true.


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#881660 Endoscopy And Colonoscopy Tomorrow

Posted by psawyer on 28 July 2013 - 09:02 PM

Doing both procedures at the same time is normal. The prep for the colonoscopy is more involved, so it you are prepped for that then there is no additional prep for the endoscopy. Sedation is the same for both. Before they sedate you, ask about biopsies of the small intestine to look for damage caused by celiac disease. They should take six or more samples.
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#881053 Getting Drafted And Celiac Disease

Posted by psawyer on 24 July 2013 - 06:59 PM

It is my understanding that if you have celiac disease you will not be accepted into the US military, but if you are already in the service when diagnosed, you may or may not be medically discharged. You may be kept if your occupational specialty is such that it will not likely be a problem. Support roles are one thing, combat is another. There have been several discussions here--search the board with the keyword "military" and you should find them.


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#880377 Holy Molybdenum Batman. Eating Out gluten-free Is Hard

Posted by psawyer on 20 July 2013 - 06:08 PM

Granted there are debates regarding the glutenous nature of flavorings and colorings but I will not be taking that chance.

You are, of course, free to make you own decisions here, but most experts say not to be worried by these. Some people react to certain colorings, but that has nothing to do with gluten.

While "natural flavors" can contain gluten, they very rarely actually do. The most likely source would be barley malt, and that is a relatively expensive ingredient, so it is usually explicitly declared as "malt flavor."

If there were wheat in it, in the US (and Canada) it would be required by law to be disclosed as just that, "wheat." In Canada, barley also must be disclosed.

Shelley Case on flavorings:

It would be rare to find a "natural or artificial flavoring" containing gluten (a) because hydrolyzed wheat protein cannot be hidden under the term "flavor." and (b) barley malt extract is almost always declared as "barley malt extract" or "barley malt flavoring." For this reason, most experts do not restrict natural and artificial flavorings in the gluten-free diet.

Gluten-Free Diet - A Comprehensive Resource Guide, published 2008, page 46


Note: As of August, 2012, Canada requires ALL gluten sources to be explicitly disclosed. Some foods packaged before August 4 may still be in stores.
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#880183 Scared Of A Colonoscopy

Posted by psawyer on 18 July 2013 - 07:47 PM

I have had three colonoscopies. As Karen said, they can not diagnose (or rule out) celiac disease. The worst part is the preparation. The procedure itself is painless, and while nothing is completely risk free (including crossing the street), the risk associated with a colonoscopy or endoscopy is very low.

If you are having a colonoscopy, having an endoscopy with biopsies at the same time is a good idea. The prep for the endoscopy is a subset of that for the colonoscopy, so you are already there. An endoscopic examination of the upper intestine may detect celiac disease, or may reveal other causes for your symptoms.
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#879499 How Helpful Are Dietitians?

Posted by psawyer on 14 July 2013 - 07:07 PM

When I was in the hospital (when they found out I had Celiac through a biopsy) they sent a dietician to see me. I had never heard of Celiac, and evidently neither had she. She did give me a booklet full of errors (never eat vinegar of any kind, drink only potato vodka, etc.) told me to google Celiac. I did and landed here... Thank Goodness. What a lifesaver.  This was 6 years ago. I hope she has learned more. I surely have!

In addition to celiac disease I have diabetes. I went to see a dietitian after my celiac disease diagnosis. She totally focused on my diabetes, which was a 14-year-old issue that I had mastered. I knew more about the gluten-free diet than she did when I walked in her front door for my first (and only) appointment. That was after a short time reading. A complete waste of time and money--my time and my then-insurer's money.


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