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Member Since 28 Dec 2004
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#685128 Possibly Celiac Disease But Not Sure - Canada

Posted by on 20 March 2011 - 05:22 AM

False negative results are fairly common, especially in children. I am not sufficiently familiar with the tests to comment on what might cause a false positive, but I do know that they are rare.

Sensitivity to MSG occurs in people with celiac disease at about the same rate as in the general population. Despite urban myths to the contrary, MSG is gluten-free.

I don't have any useful info on aspartame, other than that I have used without any troubles ever since it was invented.
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#685078 Possibly Celiac Disease But Not Sure - Canada

Posted by on 19 March 2011 - 07:15 PM

While being underweight and having diarrhea are classic symptoms of celiac disease, constipations and weight gain are also symptoms. You did not provide reference ranges for your test, but 47 is a high level in any case.

If you are going to have the endoscopy, do not change your diet until after the procedure.

A high reading on a test for antibodies to gluten is very suggestive of celiac disease. Some doctors will diagnose celiac disease based on that alone. Others still stick to the "gold standard" of biopsy-confirmed damage to the villi. False negatives on the biopsy happen from time to time. They can result from the disease being in an early stage and not yet doing enough damage to the villi, or because the damage is spotty and the biopsy did not hit the right spot. Ask the doctor to take at least six (6) samples from different locations.

IBS is not a diagnosis. It is a cop out when the doctor has no clue what is CAUSING the problem.
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#684775 Help - gluten-free Diet Before Or After Endoscopy

Posted by on 18 March 2011 - 03:56 PM

Do not start the diet until after the endoscopy. Doing so may well lead to a false negative.
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#684498 Celiac And Eggs

Posted by on 17 March 2011 - 06:19 PM

It is not uncommon for additional issues to surface after going going gluten-free. They may have been there all along, but the gluten reaction was so strong that the other issues got lost in the gluten issue.

Others have seen the opposite. They have found that after being strictly gluten-free for some time, they are now able to tolerate foods that they previously could not.

Before going gluten-free, I believed for years that I had a sensitivity to eggs. If I ate more than a couple in a week, I seemed to react. Since going gluten-free, I no longer have any issues with eggs. I typically have two eggs as part of my breakfast--no problem.
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#683926 Amy's Products? Trader Joe's Products?

Posted by on 15 March 2011 - 07:44 PM

In the US at present, there is no regulated defintion of "gluten-free."

There is a proposed rule under consideration by the FDA that would a require that the product test below 20 ppm. Everybody gets concerned about that, but a truly gluten-free product is, of course, below 20 ppm. The problem is that there is no test that can prove 0 ppm. There is an expensive test that can detect 5 ppm.
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#683739 Misdiagnosed?

Posted by on 15 March 2011 - 10:29 AM

Celiac disease is NOT an allergy. It is, of course, possible to have celiac disease and also be allergic to wheat.

Your follow-ups being normal is normal when you are strictly following the gluten-free diet. Without gluten to provoke the autoimmune reaction, there are no gluten antibodies and your body heals so the villi are healthy.

It is possible to have "silent," or asymptomatic, celiac disease. It does not mean no harm is being done to your body when you ingest gluten.

You did not say how you were diagnosed. False negatives are possible with both the blood test and the biopsy, but false positives are extremely rare.
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#683184 Is My Job Making Me Sick?

Posted by on 13 March 2011 - 08:02 PM

I don't work in a bar. I do work in a business where we have gluten products (dog biscuits are the most common) which I touch regularly. Every dog who comes into the store is offered a treat. I wash my hands after each one.

Hand sanitizer will ensure that your gluten is free of harmful germs. It will not do anything to the gluten. If alcohol destroyed gluten, we could all drink beer.

Washing your hands with soap and water will remove gluten. Make it a habit. If your hands become dry as a result, moisten them with a gluten-free lotion.
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#682438 "may Contain Label"

Posted by on 11 March 2011 - 08:42 AM

Even a "dedicated gluten-free facility" has the risk of cross-contamination. It can happen at any point on the supply line, not just at the final processing facility. And that UPS guy who just dropped off a package was eating a donut in his truck.

Glutino have dedicated gluten-free facilities. They don't say so on their packages, but they test for 20 ppm. Click here to see the statement on their web site.

IrishHeart, what do you think of Glutino? I respect the fact that they realize that even with a dedicated gluten-free facility, cross-contamination is possible, so they test. I use their products with complete confidence.
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#682352 Manufactured In Facility That Processes Oats..?..

Posted by on 10 March 2011 - 08:21 PM

A shared facility means that somewhere on the property there is wheat. For most products I do not worry about it. In most cases, the wheat is isolated from the product in question. I might be concerned if the facility was a bakery where wheat flour could be airborne and move from room to room in the air, or on people's clothing.

Shared equipment is a greater risk. But before you decide, consider this: If anyone in your house eats gluten products, you probably have shared equipment. You must have a different set of plates, pots, cutlery and a separate stove, cupboard, counter, etc.--in other words two complete and isolated kitchens in order to not have shared equipment.

If you ever eat at a restaurant, that is a shared facility and very likely has some shared equipment. How many dishwashers do they have? Can the knives and forks used for gluten-free food be easily identified so they can be put in the gluten-free dishwasher? Hmmm.

I lived for a number of years in a shared facility with shared equipment. I eat in restaurants that are gluten-free aware.
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#681845 Confused - Please Help

Posted by on 09 March 2011 - 10:52 AM

Yes, the villi that get examined and from which the biopsy to diagnose celiac disease are in the small intestine. The endoscopy can only see the first part of the intestine, which is over 20 feet long. Celiac disease cannot be determined from a colonoscopy, nor by a biopsy of the stomach lining.

My endoscopy in 2000 showed serious damage to the villi. A repeat in 2005 showed normal villi. I had completely healed on a strict gluten-free diet. If you have been gluten-free, or close to it, there may not be enough damage to be detected.
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#681659 Kraft Miracle Whip

Posted by on 08 March 2011 - 06:17 PM

Trish_Trish, I don't doubt that you react to something in the Kraft mayo. But I do sincerely doubt that there is hidden gluten in ANY Kraft product. They are very open in their labeling. As noted above, the soybean oil could have been legally listed as "vegetable oil" and is not an allergen that can be listed in the "contains" statement. Nevertheless, Kraft clearly listed it as soybean oil.
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#681453 Hand Sanitizer Question

Posted by on 08 March 2011 - 09:37 AM

Soluble in alcohol means that it can travel in alcohol, but it is intact. Dissolved does not been destroyed. Alcohol has no effect on gluten. If it did, we could drink beer!

Hand sanitizer will ensure that your gluten is germ-free, but it will still be gluten.
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#681429 Kraft Miracle Whip

Posted by on 08 March 2011 - 08:21 AM

Also, boomstick, the fact that soy is not declared in the "contains" statement is consistent with FALCPA, which explicitly exempts "highly refined oils" from the declaration requirement. Click here for a detailed discussion of FALCPA.

Click here for Kraft's label policy regarding gluten.
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#681311 Are Grains That Are Processed In A Facility That Handles Wheat Gluten Free?

Posted by on 07 March 2011 - 07:16 PM

This is one of the great questions of our world, and there is not a consensus on the answer.

My own view:

There is always a risk of cross-contamination in any product. It can occur at the final production facility, or at any other step along the way. A dedicated gluten-free facility can receive ingredients from another facility which are already contaminated when they arrive. A worker (or visitor) to the "gluten-free" facility could bring contamination into the facility on their person.

Personally, I don't worry about shared facilities. You must make up your own mind.
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#680962 Is Corned Beef Gluten Free?

Posted by on 06 March 2011 - 06:38 PM

"Pickled" usually means a brine consisting of some combination of water, salt and vinegar. Unless the vinegar is malt vinegar, no worries. If malt vinegar is used in an FDA product it must be labeled as such. ANY grain derived ingredient in a USDA product must be disclosed. Read the label, but I would be very surprised if you found a corned beef that contained gluten.

There are still a lot of outdated lists in circulation from the days before the current labeling laws (in effect for more than five years), and before we understood (due to better scientific knowledge) that such ingredients as vinegar, maltodextrin, and others were safe.
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