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StephanieL

Member Since 17 Feb 2010
Offline Last Active Yesterday, 07:19 PM
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Posts I've Made

In Topic: Daycare And 504 Plan

22 May 2015 - 05:30 PM

I have a meeting set with the director and nurse on Tuesday.  I will have to get my ducks in a row and figure out how they can make things safer for my son.  Who knows maybe if I'm lucky someone will have done some research and actually understand what celiac is and have some suggestions.  

 

They will not have. I would be 99.9% they know little to nothing about Celiac nor how it would be something they need to help you manage in a school environment.

 

Some things you may or many not have thought that YOU will need to teach them is:

 

1) Ply-doh-  This is a huge no no for kids with Celiac.  Some places will bring in gluten-free playdoh AND tools.  Some will just remove it from the class room totally.  Some wll ask you to provide your kid with tools and playdoh.  It's up to you how to deal with it.

 

2) Food boxes used for play. Again, you have to decide what you think about it if they have them in the school.

 

3) Box of safe snacks for those last minutes birthday parties and celebrations

 

4)  BYOF- If you are going to bring in all your kiddos food or what. 

 

Those would be the first things I would want them to learn about.  It's a baby step kind of thing and if the teacher is being reasonable then that's a great start!


In Topic: Daycare And 504 Plan

21 May 2015 - 06:28 PM

Ha! . I can not wait to stop packing lunches........I am so ready for summer!

 

Sing it sista! lol

 

Why is it easier to make them lunch when they are home vs. packing? lol


In Topic: Daycare And 504 Plan

20 May 2015 - 12:41 PM

I think it's admirable to want to send something similar but that's not something that'll be realistic for the long haul.  It just isn't.  And ANY school you send your kid to will have "buyers and packers" so there's a difference there.  It's not a huge deal really.  And kids don't seem to get board (as easily) with things like adults do.  One thing I remember reading is that if you look at a persons grocery bills over months that 80-90% of what is on are consistent.  Even with variety, we like what we like and make what we know how to make and seem to stick with that.

 

I am all for being "THAT" parent when I NEED to be.  There is a time and a place and that differs for each person in each situation.  We have not chosen to fight with the school about providing my kid with a school lunch.  Is he "entitled" to one? Yes.  Do I think they could manage a dairy, egg, peanut, tree nut, banana and gluten free lunch?  Nope. Not a chance I believe they could manage!  

 

I wouldn't worry too much about the director.  They are typically "lets not rock the boat kind of people.  Most don't WANT to know more.  I would focus on those who were directly responsible for your kiddo.  Perhaps a one page bullet point "Main things to avoid" for the director, but if they give you the impression that they aren't interested, they won't read much more.  I would also caution leaving any food there for daily use unless it's individually wrapped/labeled.  The though of a butter tub in the community fridge would cause me heart palpitations all day long!  lol


In Topic: Daycare And 504 Plan

19 May 2015 - 10:48 PM

Most people I know do not trust a school cafeteria to provide safe meals/snacks for kids.  

 

I would not go over anyones head unless/until you are forced to.  If you have a good working relationship with the teacher, keep that up.  Decide if them providing meals is something you really want to push for.  Keep in mind if your child will continue in that district and you start now going over heads- there is the potential to be seen as a "problem parent" (good or bad- it's the reality of things).  

 

Also, I am not surprised that they haven't mentioned a 504.  They aren't super common esp. for food related issues.


In Topic: Recovery Time For 15 Month Old

17 May 2015 - 01:19 PM

-tTG IgA and tTG IgG
-DGP IgA and DGP IgG
-EMA IgA
-total serum IgA and IgG (control test)
-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests
-endoscopic biopsy - make sure at least 6 samples are taken
 

 

Just as a note, NONE of these can be done on your child now because of being gluten free for a few months because the results will not be accurate. The only test you could run now (which isn't in any way diagnostic) is the genetic test.  Being as you (Mom) are positive, chances of kid being positive for the GENETICS is high so it just means there is the genetic predisposition to having it.