StephanieL

I'll start with this: My DS was dx 2 years ago. Been gluten-free since. I am a perpetual researcher and have figured out things that the Dr's didn't. I think I know my way around Celiac.

So my DH's Aunt was over yesterday.  She was recently dx...via saliva...with a long list of issues.  So she is now off soy, gluten and a host of other things including beans, spinach, all nuts all seeds (she is vegan and has been for a long time).  They told her to eat sprouts for protein...at 4 grams pre cup.  I don't even want to know how many sprouts she was eating.


So she decided to school me in Celiac and gluten-free  

Did you know:  

It isn't genetic?
There is gluten in envelopes? (I know this is a common urban legend)
Corn gluten is the same as wheat, rye and barley gluten.
If it's whole grain, it's wheat.

She had a few others (her pharmacist said since DS is allergic to bananas he MUST be allergic to latex. I know this IS true for some but it is reverse. If you are allergic to latex you are often allergic to bananas, if you're allergic to bananas you MAYbe allergic to latex.)  She was arguing with me about this saying "MY PHARMACIST SAID IT'S TRUE!" to which I reply "My ALLERGIST said it is NOT and I tend to think HE has a little more knowledge about ALLERGIES!"

I was so frustrated at the end of this visit. Never mine the metric ton of crappy plastic junk toys she came with!


Thanks for letting me vent!

So what are your thoughts all?

My DS is 5.5 and has food allergies and Celiac.  Because of safety (crumbs plus his anaphylactic reaction possibility) his 3.5 yo sister is on the same diet here at home.  My 9 month old will be gluten-free till at least a year but most likely longer for the same reasons my daughter is.  She started preschool last spring and her teachers has all the same allergies and gluten issues, she was also DS's teacher so she knows our drill so it's not a really big deal now.  I am wondering if/when would you consider a gluten challenge?  Would you even?  Should we do the genetics?  I am guessing they'll be + since gee, the kids are genetically linked so wouldn't the chances be pretty high?  I am just thinking out loud here.

I am so excited! After 2 years gluten free, DS's ttg's are FINALLY NORMAL!!!!

We have been strict and cold not figure out why there were still not WNL.  I started poking around here and got some great leads and after demanding more testing and new Dr's we figured out DS also had hypothyroidism.  This was in Jan/Feb of this year.  So here we are in July with 5 months on synthroid and he's finally under 20!!! I am not happy they they didn't tell me what his number was (according to the Dr. they just say "below 20" which I am not sure I buy).  Still thinking of doing more Dr. shopping.  It was absolutely ridiculous that he couldn't have called me with the results since we are 2 years into this dx and DS is totally asymptomatic.  That was annoying but hey, we know now that his levels are good and I am a happy Mama!

So I have been experimenting a lot lately for a class I am working on.  I like what I am coming out with for the most part but things seem so dry.  Any ideas on how I can change that with the limitations of gluten-free, DF, EF and SF?

Thanks