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Member Since 31 Dec 2004
Offline Last Active Aug 03 2015 06:24 AM

#724892 I Don't Want To Go!

Posted by on 23 August 2011 - 03:33 AM

I really like the idea of saying your doctor said... whatever... Telling them that you're fairly new to the diet/lifestyle and that your doctor strongly recommends not eating at other's homes for a (long) while is brilliant!

I think telling the boss to make chicken parm like he always would and bringing your own gluten-free portion is a great idea too!

One of my daughters and I attended a wedding shower at a fancy tea house where they served tiny delicate tea sandwiches on beautiful tiered serving plates. I brought tiny egg salad and tuna salad tea sandwiches for DD and me and we fit right in! It was great!
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#724652 Celiac Cost Me Everything

Posted by on 22 August 2011 - 06:03 AM

I am so sorry. Losing a pet is no less sad than losing a family member, imo. They ARE our family.

Count me too in the group who has appreciated your posts/advice/kind words.
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#724410 Dealing With Family

Posted by on 21 August 2011 - 05:51 AM

I only had one episode early on when a friend asked, sort of impatiently, "Can't you just eat a little??" I've never been the "Woe is me" person about it. I always enjoy what I can and never say a word about what's being offered that I can't have. I just said, "That's like me asking you if you can't just eat a little poison. Gluten is poison to me."

This was a friend who is an insulin-dependent diabetic who adjusts her insulin to accommodate whatever she wants to eat rather than modifying her diet so she can use the least amount of insulin... so...
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#724409 How Did Your Doctor Tell You?

Posted by on 21 August 2011 - 05:42 AM

I only had symptoms for 2 months when I saw a gastroenterologist. He sent me for bloodwork and scheduled me for a screening colonoscopy since I was close to 50. After my colonoscopy, he said, "I have good news and bad news." I asked for the good news first. He said, "I know what's causing your diarrhea and it can be stopped." Then I asked for the bad news. He said, "You can never eat wheat, rye, or barley again." He told me he'd never seen such high blood levels before.

I went home and did my own research so that by the time I actually got to the dietician/nutritionist at the hospital she told me I already knew more about celiac than she did.
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#722839 Recipe Challenge!

Posted by on 14 August 2011 - 04:54 PM

Come on folks,....I'm looking for bun recipes, not to have a thread chastising another member. :)

Ya know what? When I was a fairly new member, I made the mistake of posting that I wasn't so sensitive that I couldn't pick croutons off a salad and blow off the crumbs... or take a burger off a bun and eat it. The folks here set me straight... in NO uncertain terms... that what I was doing was NOT keeping a gluten-free diet and that I was hurting myself. I was so mad... I stripped my computer of the celiac.com website... and finally I realized that I was fooling no one but myself. The "tough love" approach set me straight and I've been completely gluten-free ever since. I've thanked those "tough love" peeps thru-out the years.
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#722717 Recipe Challenge!

Posted by on 14 August 2011 - 09:35 AM

I have discovered I can cheat, and have a regular store bought bun about once every 3 weeks and not have any abdominal issues....you may want to consider that.

PLEASE do not even consider taking this terrible advice! As is well known... even if you have no abdominal issues or any symptoms if you are glutened, you are damaging your small intestine by eating gluten. Eating it accidently is difficult enough... to do it on purpose is insanity.

I use Pamela's bread mix and simply fashion it into buns w/ a spatula. I get 9 rolls from a bread mix. You could absolutely use your bun pan. Lightly toasted, they are awesome.
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#709643 People Who "bailed" When You Were Sick/crippled With Pain?

Posted by on 17 June 2011 - 12:33 PM

Ya know when they'll "get it?" When something devastating happens to them. That's when the clueless realize that they weren't there for their friend and they'll feel terrible.

A similar thing happened to my youngest DD who's spent the last few years dealing w/ extreme food intolerances. She was the party house... loving to bake and cook and entertain... and turned into a sick little girl who could eat about 10 foods and had to be so careful, she couldn't even BE IN the restaurant where all her dodge ball team went for nachos after a game. She lost tons of weight, she and her fiance broke up and ALL of their friends simply disappeared! She was devastated. She finally talked to some of the friends and told them how hurt she was, but it'll never be the same.

I have another "forum" friend who's fairly young husband (40s) had a catastrophic stroke. She's been hurt just like you describe as all their friends slowly drifted away.

Like I said... they'll get it when something awful happens to them... NOT that I'd want anything bad to happen to anyone!! But it's THEN that they'll realize!
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#707995 Your Top Two Pieces Of Advice

Posted by on 12 June 2011 - 08:15 AM

I know there are a million different symptoms and levels of difficulty and sensitivity, but in general:

1. This isn't that big a deal. In the scheme of life and all the things/diseases, etc. that people can have and can go wrong... this is nothing. We just have to learn how to cook a little differently, that's all.

2. Read labels... every single time... even if it's something you've been buying for years.
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#697879 I Had My Colonoscopy Thursday.

Posted by on 08 May 2011 - 03:47 PM

I had mine at age 48, when I went to a GI doc for what turned out to be celiac disease. He ordered a bunch of bloodwork and said that 48 was close enough to 50, so a screening colonoscopy was in order. He then warned me that he wasn't a doc to use tons of anesthesia. I'd seen colonoscopies and endoscopies in nursing school many years before (where they gave you a valium and shoved a huge scope tube down your throat and kept saying, "Swallow!! Swallow!!" Yikes!!) so I wasn't worried.

I had a Go-Lightly prep... a gallon of soapy water to drink till "things" ran clear. I only had to drink about 2/3 of it. The procedure itself was fascinating. I got to watch the whole thing and ask lots of questions.

It was after the procedure that my doc said to me... "I have good news and bad news." I opted for the good news first. He said, "I know how to stop your unrelenting diarrhea." I asked for the bad news and he told me I could never eat wheat, rye, barley, or sometimes oats again."

The procedure itself was such a NOTHING that my PCP asked me to please tell all my friends so they wouldn't be so worried when it was their turn!
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#688063 Controversial Facebook Post By Chef

Posted by on 30 March 2011 - 07:47 AM

If you google his name... there are at least 10 sites where other celiacs have posted and responded to his outrageous behavior. I don't see any chef jobs in this guy's future!
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#687657 Controversial Facebook Post By Chef

Posted by on 29 March 2011 - 05:35 AM

I sent him a nice message telling him I'd keep watching because a lawsuit will be coming if he's telling people he's serving them gluten free pasta and intentionally serving gluten-filled pasta! What a world class jerk.
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#685160 Glutened At Chili's?

Posted by on 20 March 2011 - 08:55 AM

My last two experiences at Chili's were bad... I asked for the gluten-free menu both times... explained my whole deal... and then had to call the manager over to show him a tortilla stip in my salad. The manager said that the two salad mixes were probably next to each other. The last time, the salad I ordered also wasn't supposed to contain tortilla strips and it was FILLED w/ them... they chose the completely wrong salad mix! I told my husband (who loves Chilis) that I'd give it one more try before I wrote a scathing letter to the company, but we've not been back since. I'm not inclined to go now... after hearing your experience!!
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#676070 What Do You Do?

Posted by on 17 February 2011 - 05:41 AM

I was laid off 2 years ago from a really good job examining/investigating medical insurance claims and have been picking up freelance work doing QA for a transcription company. There are FEW jobs where I live (in the boonies of north central Arkansas) and I hesitate to commit to a full time (really low paying) job because my LOVE is the time I spend tutoring kids in reading (a fantastic program)and adults in ESL at the next town's Literacy Council. I can't (WON'T) give up the 2 days a week I spend there so I keep looking for work that can accommodate my volunteer work!
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#670041 Will My Friends And Family Believe Me...

Posted by on 23 January 2011 - 12:09 PM

I don't know why it matters that the "test" proves you have celiac? If eating gluten free makes you feel better, then what's the problem? I guess it wouldn't matter if it was never an issue... meaning you can simply bring your own food to anywhere away from home and don't eat out a lot or do your own research if you do. I've never had a problem w/ people not believing me or saying anything about it at all cause I've never made any of it an issue. It's not that different from a peanut allergy or even a food dislike. If you get a negative blood test, you simply CHOOSE to eat gluten free cause it's good for YOU. It doesn't matter if people believe you or not... as long as you take care of yourself and do what you need to.
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#662626 Hello? Are You Even Listening?

Posted by on 23 December 2010 - 07:17 AM

I think gluten cooks, w/ the best intentions, want to cook for us so we feel included ... and become a little intimidated when they realize what's involved. It's easier for us as we're used to it, but it can be daunting when you have to think of minute details... about CC.
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