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Kate S.

Member Since 24 Feb 2010
Offline Last Active Jan 03 2011 10:52 AM
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Posts I've Made

In Topic: The Hives Are So Bad

18 May 2010 - 05:02 PM

I'm so sorry . . . that looks very painful!

I have DH, my mom has DH, my sister has DH, and my brother has DH . . . and I have to tell you, your rash looks EXACTLY like my rashes. I showed my mom your pictures to verify, and she thinks so too.

I can usually feel my rashes coming before they show (a painful pricking sensation), and then after they appear, they itch terribly. Iodine and dry skin makes the itching much worse. Although Benadryl doesn't make them go away, it does help with the itching.

Interestingly, those who have DH may or may not have damage to their small intestine, so you can still have DH, even though your endoscopy came back negative for Celiac.

They diagnose DH by taking a biopsy of skin right next to the blisters (not the blisters themselves); however, the results of your test may be compromised if you are already on a gluten-free diet.

I know how dreadful these rashes can be: Last summer, my entire body was covered in rashes just like yours for three whole months before I was diagnosed with DH (before that, I had patches on and off for years).

I hope you feel better soon!

In Topic: Home Remedies

07 April 2010 - 06:18 AM

Thank you so much for all of your help!

I'm finally starting to feel better after having my worst outbreak ever. (I accidentally ingested a little gluten, and boy, did I pay for it! Don't you just hate it when you know you've messed up, and there is nothing you can do except wait to see how bad the rash is going to be. Ugh)

I will definitely go get some Weleda Calendula Baby Cream and an aloe plant. (I'm not sure why, but I get welts whenever I use band-aids now.)

WheatChef, I know the itching is completely miserable, but know that you are not alone!

In Topic: Home Remedies

10 March 2010 - 07:12 AM

Are you going with a pretty much whole unprocessed diet? Have you checked all meds and supplements? Meds need to be checked at each refill if they are generic and supplements can be labeled gluten-free even if they have wheat or barley grass. Do you have a significant other that eats or drinks gluten items? If you do have them throughly brush their teeth before any kissing. Do you consume distilled gluten grains in alcohol or vinegar? If you do drop them for a bit and see if it helps. Most of us will not react to them but some of us do. It takes a long time for the antibodies to leave the skin and new outbreaks are telling you that something is getting you somewhere.



Thank you for your help!

I agree: With new outbreaks, I have to be getting glutened by something. Things seemed to be clearing up (I had a huge outbreak on my face from Christmastime), but just last week, I had an outbreak covering my whole body. :( I was so close! Anyway, to finally figure out what I'm doing wrong, I started a dairy- and egg-free, unprocessed diet. (As far as I know, I don't have a problem with dairy and egg, but I read that you can have other sensitivities you didn't realize that make the healing process harder.) I have also completely eliminated iodine. Basically, all I'm eating is brown rice cooked with water, fruits, vegetables, and almonds and walnuts, which according to their packages were processed in a gluten-free facility.

I don't take any medications, and I switched all my vitamins/supplements to Country Life brand, as the entire line is certified gluten-free by the GFCO. I didn't know these things could be labeled gluten-free and still contain wheat or barley grass?! Isn't that infuriating!

I don't have a significant other, don't drink, and with this new diet, no longer have vinegar. I really hope this elimination diet helps because I love food (and absolutely hate it) and these rashes are so itchy and painful. I'm losing my mind!

Is there any way the heal the rashes faster once you get them? They take so long to go away!

In Topic: Home Remedies

08 March 2010 - 11:39 AM

I would also love to know if there is anything you can do at home to ease the rash once you've had an outbreak!

I was diagnosed about five and a half months ago, and it seems like no matter how hard I try, I keep getting very painful outbreaks. I've done my best to eliminate gluten from my diet, as well as all my personal care products, but nothing seems to work completely. I'm afraid of going on Dapsone, as I'm already anemic and have read quite a few horror stories about the side effects.

Is there anything else we can do?

I would truly appreciate any help. (At this point, I'm getting a little desperate!)