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Member Since 31 Dec 2004
Offline Last Active Dec 24 2005 09:31 AM

Topics I've Started

Are Mres Gluten Free? Need To Know Fast!

08 September 2005 - 01:00 PM

I have celiac disease and I'm going to the gulf coast to help provide disaster relief after hurricane Katrina. I'll be part of a medical team and where I get sent depends upon whether or not MREs are gluten-free. I can't find any factual information about whether red cross or military MREs are truly gluten free...does anyone know for certain? Or even have a good guess?

thanks for any help/input

Bombay Sapphire Gin: Gf?

06 January 2005 - 12:51 PM

A nutritionist assured me years ago that Bombay Sapphire Gin is gluten-free, but now that I'm looking for confirmation I can't find any.

Anybody know?

Polycythemia And Celiac

31 December 2004 - 03:36 PM


I was diagnosed with celiac disease about three years ago and was responding well to the gluten-free diet. I recently picked up a brand new diagnosis: polycythemia vera, also known as: Polycythemia rubra vera; Myeloproliferative disorder; Erythremia; Splenomegalic polycythemia; Vaquez's disease; Osler's disease; Polycythemia with chronic cyanosis - Myelopathic polycythemia; Erythrocytosis megalosplenica; Cryptogenic polycythemia.

It's basically a blood disorder where there is an over-production of red blood cells. This makes the blood thick and viscous, leading to fatigue, headaches, difficulty breathing, and even blurred vision. It can be dangerous if untreated becase of the risk of stroke, cardiac problems, etc. The cause is unknown, it's an acquired disorder (apparently not genetic), and the treatment is phlebotomy (siphoning off blood). With treatment it's supposed to be a benign disease for most people. A CBC is what gave mine away; I noticed I had an elevated hematocrit level (my physician completely missed it---always look over your own labs!).

I'm posting this for two reasons: First, does anyone else have celiac disease and polycythemia? But also, I notice that there are a lot of other posts that ask about symptoms that could be related to polycythemia: For example, other symptoms include extreme fatigue (almost as bad as narcolepsy), spleen dysfunction, itchiness (especially after bathing), and vision problems. I've also found posts about iron sensitivity, which apparently can lead to overproduction of red blood cells. There's no research investigating the comorbidity of the two disorders but I have to wonder if there's a connection.

It's apparently difficult to detect in Celiac patients, because so many of us tend to struggle with anemia. In "normal" polycythemia, there is a gradual onset but mine developed in a few months. My GI doc speculates that the celiac disease was causing malabsorbtion and anemia, but after being gluten-free for a long enough time, my body was able to process red blood cells like crazy.

Sorry for the long post, but one last thing: My red blood cells are back to normal now but I'm still exhausted. The hematologist and GI doc are wondering if somehow the celiac disease and polycythemia are related, so in combination they might lead to fatigue even when both are under control. It's very confusing but I'm tired of being tired.

If anybody out there has any ideas or experiences, I'd really appreciate hearing them. Thanks.

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