cblack

Hi ya'll!


I will be vacationing for a week in July in the Destin/Ft. Walton/Miramar Beach area. Our condo has a kitchen in it thank God but we will be eating out on the beach & boardwalk alot. If you know of any safe suggestions please let me know! Otherwise I am going to be eating nothing but steamed crab legs & mussels!

Thank you!

Jess

Jess,
Jim N Nicks and Marlin Grill! Owner is good friend of mine.....wonderful food! Many gluten free choices! I was diagnosed 1 month ago and Tom (the owner) is very knowledgable about "gluten free".
Cindy

Sorry to say you did not get the full pannel. Your doctor needs to order a total IgA to see if you are deficient. If you are, then the standard IgA tests are invalid. Here are the tests he needs to order: total IgA, IgA tTg, antigliadin IgA/IgG, EMA and if IgA deficient, IgG tTg. Hope this helps! I had to request the doctor specifically write out each test separatly, because the first time (on both of my boys) they wrote a "celiac panel" (which to him he wanted all of the above), but the lab would not recognize the celiac panel and defaulted to the total IgA and the IgA tTg. So my one boy has been stuck twice. Also I did not know when I got tested that I needed all of those. I only initially had the IgA tTg and luckily (or I probably would still be undiagnosed) it was overwhelmingly positive. Don't be afraid to ask for the rest of them.

Thank you for replying Roda! I emailed my doctor's office earlier today requesting why only the one test was run. This is the reply tha I received:

"If Tissue Transglutaminase Ab, IgA is negative, the Endomysial Ab, IgA Titer by IFA is not performed."

Why does this have to be so difficult?!?

We have not had ANY luck with doctors in Mobile for our two young daughters. We have had to travel to Birmingham to have anyone take us seriously. Our 5yr old was vomiting at almost every meal, crying from stomach pain, stuggling with constipation one day and diarrhea the next; the baby refused to nurse from about 2 weeks old, cried all the time, had explosive diarrhea, and fell off the growth charts. We went to 3 different pediatric GIs in Mobile and Pensacola; everyone of them told us there was no problem.

I finally talked with a local GI (who, unfortunately, does not treat pediatric cases) who told me I really needed to take them to UAB. While we are still struggling for a "medical diagnosis" we've at least found a GI in Birmingham who is working with us to control their symptoms. The GI in Mobile that pointed me in the right direction was Dr. Benjamin Siegel. I taught his son last year, and always felt very welcome to call him with any questions. He's actually the one that suggested I look into celiac.

Hope you can find some help soon.

Thank you for your post. I think I'm just going to head to B'ham, I have been given a couple of doc's names there (Shallcross and Halama) that are supposed to be very educated in celiac disease. Good luck to you with your children, I hope you find the solutions you need.