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macocha

Member Since 01 Mar 2010
Offline Last Active Jan 05 2011 01:03 PM
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Topics I've Started

Me Again - Sorry - About My Daughter

16 December 2010 - 11:37 PM

I posted a bit ago and need some more follow up. I was looking at some of the photos and daughter's don't look exactly like. Her rash though is getting worse and no meds are working :( She has it on her eyelids, inner elbows/arm, and neck. The photos are poor quality because of the camera phone, but you get the gist.

On the eyelids - on the left side you can see a small bit in the crease, but tonight it has spread to be even redder (inflamed) and goes beyond the eyelid to the side of her face. (sigh) on the right it is in the upper eyelid and somewhat the crease. These areas burn a great deal and she is suffering :(

On her neck, they are 1 to 2 inch patches. Photos don't catch it all. those don't bother her as much, but they aren't as inflamed.

The ones on her arms (only including one side) are heck-a inflamed. they are horrid and hurt her a great deal too. the photo doesn't show how much it is inflamed, but it is...badly.

Do these even look like any cases you have seen? She doesn't get into the derm for a few weeks, so I am struggling with what to do for her to ease the pain.

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I Need Some Help - Very Frustrating Doc Appt

15 November 2010 - 12:33 PM

My daughter has fructose malabsorption. Just a tidbit of info.

she has been to an allergist and it was found she has a dustmite allergy. She also has horrible rashes inside her arms that he gave her an ointment for. it helps maybe a small bit, but not a lot. You can see where the outline of the ointment goes because it is a lot paler.

Now the rash has gone to her eye lids. It stings and hurts and is itchy. This new doctor we saw today says it is excema. Sigh. I just don't know anymore. I asked if we could test for DH and he didn't know what it was until I told him the long name and he doesn't think that it is and said in his 15 years he hasn't heard of how to test it. I mentioned biopsy. I believe (correct me if I am wrong) the biopsy will show if it is excema or that other one psorisis (sp?) but what tests are there to see if DH is celiac related? her blood tests for celiac are negative (her brother has celiac).

then he went on to say "I don't want to burst your bubble" on the whole dietary issues and FM, etc. I just said you didn't burst my bubble, I have my gut feelings and it hasn't steered me wrong. I can tell when she eats things she isn't supposed to and know that it isn't imaginary what her issue is. Her breath test was really high and she has had two SIBO infections and it is in fact an issue she is dealing with with her gut.

~banghead~ what a horrible experience. I got a referral to the dermatologist, but what do I take with me to validate my concerns or for the testing I want done? What tests do I want? Any links for research issues for DH?

thanks!

Help Please

17 August 2010 - 09:12 AM

I don't have a copy of my labs in front of me, but I asked for a total IGA and TTG-IGA

my numbers she gave me are 113 and -3 for those results. and said I was negative.

I can't find the ranges or whatnot and don't know what the other numbers are if they break down the total IGA or whatnot.

any input with what minimal info I gave and got at this time?

How To Do This? Camping And Need Help

27 July 2010 - 10:44 AM

This will be our first trip camping after having the diagnosis of celiac. Usually we like quick treats, but will have to pre-make a lot of those.

what are essential items you would make or take. We tent camp, so coolers are it for us and storing cold-items.

thanks

We Tried The Bisquick Mix

24 July 2010 - 05:50 PM

So, for $4.79 we got about 2 1/2 to 3 cups of mix :o

But, we got 10 biscuits out of it. it has around 5 recipes on the box for different items.

We did biscuits, so used 2 cups of the mix :unsure: and they turned out great. my other son who is not on a gluten-free diet (yet) devoured them and normally he turns his nose up to anything we make that is gluten-free after trying it. :blink: Everyone enjoyed them!

So, other than the price, they were a HUGE hit.